Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,235 posts

All posts for February 2021

GCA in new area?

Could anyone tell me whether it is possible that I now have GCA inflammation on my right hand side after being treated with Pred for it on the left hand side...

Could anyone tell me whether it is possible that I now have GCA inflammation on ...

HappyDiamonds

•4 years ago

8 Replies

Toobusyforthis

Hi everyone after seeing my GP and having the Blood test for PMR he said I was negative 😳 to go away and take ibuprofen. I was shocked by his diagnosis so...

Hi everyone after seeing my GP and having the Blood test for PMR he said I was n...

Toobusyforthis

•4 years ago

42 Replies

5 mg what happens next?

I’m about to decrease prednisone to 5 mg (been tapering from 60mg since May 2020 - GCA). I’ve been tapering 1mg every 2 weeks since 10 mg, generally without...

I’m about to decrease prednisone to 5 mg (been tapering from 60mg since May 202...

Eliza4

•4 years ago

8 Replies

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Question regarding use of gelatin capsules for prednisone

Further to my post this morning, I am requesting some information regarding using gelatin capsules for my prednisone...I take my prednisone after breakfast (8...

Further to my post this morning, I am requesting some information regarding usin...

GratefulBailey

•4 years ago

18 Replies

Hello everyone

I've recently been diagnosed with GCA after experiencing several episodes of double vision. Hopefully the pred is getting it under control. I was introduced to...

I've recently been diagnosed with GCA after experiencing several episodes of dou...

Lutra2

•4 years ago

9 Replies

Not good day

Hi all, after dr said yesterday about my sore lips being from my inhaler not sure about it now, today have just felt not well but can't actually say why I...

Hi all, after dr said yesterday about my sore lips being from my inhaler not sur...

Hidden

•4 years ago

10 Replies

eye pain and unusual eye symptoms with gca

Hi did anyone get strange visual effects first thing in the morning probley before going on pred . I used to wake up with what looked like an eclipse. I was...

Hi did anyone get strange visual effects first thing in the morning probley befo...

Rrnijmv

•4 years ago

5 Replies

Anyone take fish oil or krill oil to help with inflammation?

I had been taking fish oil for several months and a few weeks ago started taking a good brand of krill oil. Now this may just be a coincidence, but i have been...

I had been taking fish oil for several months and a few weeks ago started taking...

Paperroses

•4 years ago

6 Replies

Interesting Day?

Today I had my 3 monthly face to face appointment at Southend Rheumatology department and I had this with Prof. Dasgupta. Good news was my GCA seems to be...

Today I had my 3 monthly face to face appointment at Southend Rheumatology depar...

Helipad

•4 years ago

60 Replies

newbie...1st post

check profile for history....reading posts seems am not alone in my suffering...just wanted to see if ok to go back to dosage effective level without bothering...

check profile for history....reading posts seems am not alone in my suffering......

johnybiker

•4 years ago

11 Replies

PMR and cancer treatment

I was diagnosed with PMR in November last year and am taking 4x5mg pred per day. I have now been diagnosed with early stage prostate cancer and have been...

I was diagnosed with PMR in November last year and am taking 4x5mg pred per day....

Hankb

•4 years ago

26 Replies

Family needs to understand how your energy level will change even by the hour.

I would echo all the good advice that has been given to you here and just say because you are only 50 with teenage children- learn to be kind to yourself. Take...

I would echo all the good advice that has been given to you here and just say be...

PickyQ

•4 years ago

3 Replies

Sore neck advice

Hello Everyone After a small blip where I have had to increase steroids from 8mg to 10mg to get rid of pains in hips and shoulders, I have not been able to get...

Hello Everyone After a small blip where I have had to increase steroids from 8mg...

Mamamia21

•4 years ago

15 Replies

Still struggling with 20 mg pred

It has been forever. I try to get down just a milligram and my eyes start to hurt. What does that mean? In the hospital once last year by accident they gave...

It has been forever. I try to get down just a milligram and my eyes start to hu...

Trevgrrl

•4 years ago

4 Replies

Prof.Dasgupta on PMR and GCA

Thought some folf might find this interesting. Rheumatology physio talking to Prof Dasgupta on PMR and GCA. https://youtu.be/vdwjdQOfjMc It's about 45 minutes...

Thought some folf might find this interesting. Rheumatology physio talking to Pr...

More-physio

•4 years ago

24 Replies

Missed methotrexate dose tonight.

Help please, not for me but for OH. Working away today back tomorrow. He has RA and is on methotrexate 20 mg a week. Dose was due this evening, but he forgot...

Help please, not for me but for OH. Working away today back tomorrow. He has RA ...

Dontwannabesick

•4 years ago

9 Replies

Any GCA patient with carotid artery involvement?

Diagnosed Feb. 2018 Had MRA done Jan 2020 Another Jan 2021 - this time showing thickening of internal left carotid. So when, in the course of prednisone did...

Diagnosed Feb. 2018 Had MRA done Jan 2020 Another Jan 2021 - this time showing t...

Blurry62

•4 years ago

8 Replies

Tocilizumab extension

Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but...

Hi I wrote a couple of weeks ago asking if anyone had been told that their tocil...

Devoid

•4 years ago

22 Replies

Cataract Surgery

At the moment I’m on 9mg of steroids, when I went for my assessment in January for a Cataract Operation I was on 3mg now due to a flare up I’m gradually...

At the moment I’m on 9mg of steroids, when I went for my assessment in January f...

Phed

•4 years ago

28 Replies

Follow up from Feeling Low

Thanks to those who replied with supportive comments. What a weeekend! Clearly need my meds adjusted, as couldn’t get to speak to Rheumatologist, i rang 111...

Thanks to those who replied with supportive comments. What a weeekend! Clearly ...

Forestlady

•4 years ago

18 Replies

Tired

Hi.its me again,I get up feeling sick and very tired I could sleep all day.how long does this last.i am on 9mg.down from 10mg,started 9mg on feb 1st.doing 1mg...

Hi.its me again,I get up feeling sick and very tired I could sleep all day.how l...

Flosy

•4 years ago

6 Replies

Why it might be best to avoid painkillers as a precaution before your COVID-19 vaccine

https://www.cbc.ca/news/health/fever-reducers-covid-vaccinations-1.5912295 Thought this might be interesting

https://www.cbc.ca/news/health/fever-reducers-covid-vaccinations-1.5912295 Thou...

Bcol

•4 years ago

4 Replies

Sore mouth

Hi, woke up this morning with sore lips inside, top is mouth ulcers right across and bottom red and sore, never had mouth ulcers before, is it from...

Hi, woke up this morning with sore lips inside, top is mouth ulcers right across...

Hidden

•4 years ago

14 Replies

I feel so deflated

My Doctor called me this afternoon to tell me that he is going to refer me to a specialist for my polymyalgia as I have now had this condition for 3 years and...

My Doctor called me this afternoon to tell me that he is going to refer me to a ...

Sandidee

•4 years ago

59 Replies

Hair loss

Thank you all for your replies, really helpful so very much appreciated. It's just great to know this forum exists and we are faced with similar journeys....

Thank you all for your replies, really helpful so very much appreciated. It's ju...

Lagoon2

•4 years ago

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Reducing medication

Hi i'm very new to this site only digonosed with gca in January 2021 I have had pmr from 2019. I have been sitting here wondering what is the best way to...

Hi i'm very new to this site only digonosed with gca in January 2021 I have ha...

Rrnijmv

•4 years ago

5 Replies

Really need help please

Hi I'm really sorry to bother you. But I'm so worried. In January after suffering headaches and blurry eyes and colours seem to go lighter then go back to...

Hi I'm really sorry to bother you. But I'm so worried. In January after suffer...

lindabear

•4 years ago

59 Replies

Covid jab

I had 1st Astra Zeneca vaccine on Monday. I went to bed and developed a very high temperature and was somewhat delirious, felt very sick and couldn’t sleep. I...

I had 1st Astra Zeneca vaccine on Monday. I went to bed and developed a very hig...

tgca

•4 years ago

46 Replies

Adrenal function

I've had PMR for 2 years and 2 months and am currently on 5mg Pred having reduced from 20mg with occasional fluctuations due to a few flares. I thought I...

I've had PMR for 2 years and 2 months and am currently on 5mg Pred having reduce...

WillOllier

•4 years ago

14 Replies

Have received Oxford vaccine !

Very pleased to add my name to the list of people who have received a vaccine without any problems. I was diagnosed early last May and am taking 9mgs at the...

Very pleased to add my name to the list of people who have received a vaccine wi...

larkthebark

•4 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2021

GCA in new area?

Toobusyforthis

5 mg what happens next?

Question regarding use of gelatin capsules for prednisone

Hello everyone

Not good day

eye pain and unusual eye symptoms with gca

Anyone take fish oil or krill oil to help with inflammation?

Interesting Day?

newbie...1st post

PMR and cancer treatment

Family needs to understand how your energy level will change even by the hour.

Sore neck advice

Still struggling with 20 mg pred

Prof.Dasgupta on PMR and GCA

Missed methotrexate dose tonight.

Any GCA patient with carotid artery involvement?

Tocilizumab extension

Cataract Surgery

Follow up from Feeling Low

Tired

Why it might be best to avoid painkillers as a precaution before your COVID-19 vaccine

Sore mouth

I feel so deflated

Hair loss

Reducing medication

Really need help please

Covid jab

Adrenal function

Have received Oxford vaccine !

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