Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,236 posts

All posts for November 2020

Forgotten my dose?!

Sitting here feeling ridiculous. Filling up my steroid dispenser with no memory of taking today’s tablet. Am on 2.5 a day but reducing to 2 on one day a week,...

Sitting here feeling ridiculous. Filling up my steroid dispenser with no memory ...

Pongo13

•4 years ago

10 Replies

Steroid withdrawal pain or PMR pain

Please remind me which is the one which comes first when tapering. Thank you.

IdasMum

•4 years ago

11 Replies

It’s me again- so frustrated

I’m so frustrated and don’t know where to turn. I have been sick and in pain since September 9th - my bloodwork didn’t show inflammation, my bilateral temporal...

I’m so frustrated and don’t know where to turn. I have been sick and in pain sin...

Bro-

•4 years ago

3 Replies

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Alendronic Acid

I was diagnosed with PMR in 2013 and began taking Prednisolone (15mg daily) and Alendronic Acid. After many 'flare-ups', and reducing very, very slowly I...

I was diagnosed with PMR in 2013 and began taking Prednisolone (15mg daily) and ...

GpaJ

•4 years ago

23 Replies

Reminder of PMRGCAuk forum rules

Whilst the vast majority of the community here on our forum abide by the rules, we have had to take action on a few posts and replies recently. As a result,...

Whilst the vast majority of the community here on our forum abide by the rules, ...

Fran_Benson

Partner•4 years ago

Pain relief and osteoarthritis

What do you all use for osteoarthritis pain while on pred? Tylenol doesn’t do much. I’ve used ibuprofen a few times which seemed to help but wary...

What do you all use for osteoarthritis pain while on pred? Tylenol doesn...

Mstiles

•4 years ago

47 Replies

Gabapentine and vertigo

Hi, just wondering if anyone has had vertigo from years of taking gabapentine? Thanks in advance, Dan

Hi, just wondering if anyone has had vertigo from years of taking gabapentine? T...

Danman473

•4 years ago

6 Replies

Pmr news

Tapering steroids

junepat12

•4 years ago

1 Reply

Buzybe

PMR and Type 2 Diabetes. Hi everyone I was diagnosed with PMR in July this year and Prescribed steroids 15mg. The pain subsided after a few days and I am now...

PMR and Type 2 Diabetes. Hi everyone I was diagnosed with PMR in July this year ...

Buzybe

•4 years ago

8 Replies

Blood tests?

My blood work is now very good (except for kidney problems) - ESR 20 CRP 6 (8 1/2 years PMR, 4 mg pred now). How often should I now have blood tests?

My blood work is now very good (except for kidney problems) - ESR 20 CRP 6 (8 1...

Constance13

•4 years ago

3 Replies

Blood thinner meds causing unbearable PMR swelling and pain

Diagnosed with PMR after back surgery 2.5 years ago. Also had deep vein thrombosis, and again after hip replacement a year ago. Tried Xarelto and Eliquis and...

Diagnosed with PMR after back surgery 2.5 years ago. Also had deep vein thrombo...

AdoptMeow

•4 years ago

19 Replies

Learning how to deal with PMR

Hello! I am very new to this and just found out I have PMR. I was in denial at first thinking I was misdiagnosed and got off of the prednisone. The pain and...

Hello! I am very new to this and just found out I have PMR. I was in denial at f...

Sh18348

•4 years ago

19 Replies

Swimming. Good news.

I found a small (3 lanes) private pool 10 minutes from home. 83C. Salt. Super Covid practices. I am in heaven.

I found a small (3 lanes) private pool 10 minutes from home. 83C. Salt. Super Co...

alvertta

•4 years ago

16 Replies

Actemra

I just did shot 3. (Every two weeks) And I feel like I have menopause all over again. Hot. Sweaty. Very tired. On 27 prednisone now. Reducing by 2 per week...

I just did shot 3. (Every two weeks) And I feel like I have menopause all over a...

alvertta

•4 years ago

8 Replies

Bone problem from preds

I have had PMR on and off for 6 years and on Pred i came off it about 1year ago but now it is back really bad but i am worried about talking to the Doctor as...

I have had PMR on and off for 6 years and on Pred i came off it about 1year ago ...

FLOWERGIRL01

•4 years ago

2 Replies

Life After Pred!

Hi everyone, I have been off Pred for about 4 weeks now after being on it for just over 6 years. I thought I would feel great once I was off it, but instead I...

Hi everyone, I have been off Pred for about 4 weeks now after being on it for ju...

Attic

•4 years ago

15 Replies

hi,am so tired

hi, i am fed up feeling sick,tired no enery every day.sorry i dont know i question before.i do rest every day.i went back to work last mon and tue did 16 hrs...

hi, i am fed up feeling sick,tired no enery every day.sorry i dont know i quest...

Flosy

•4 years ago

19 Replies

The Covid vaccine question

I thought I would share this link which popped up in my inbox today:...

PMRpro

Ambassador•4 years ago

97 Replies

PMRGCAuk Christmas Cards are well worth buying.

If you’re thinking of buying Christmas Cards from our Charity don’t hesitate. I’ve just received mine, the Robin ones, and am delighted with them. The...

If you’re thinking of buying Christmas Cards from our Charity don’t hesitate. ...

Telian

•4 years ago

18 Replies

Had PMR for approx 6 years. Advice on dose of pred for acute flare up: was on 15mg for flare up but as soon as I reduced symptoms back

on Pred for 6 years: got down to 4mg but symptoms come back. Recently( 2 months ago) was put on 15 mg as bad flare up. Dr didnt see me but phone consultation(...

on Pred for 6 years: got down to 4mg but symptoms come back. Recently( 2 months ...

sheffie21

•4 years ago

8 Replies

COVID -19 testing research study in England

COVID-19 testing research study in England I have just received a letter from the NHS re the above. Has anybody else . I have agreed to take part. Will be...

COVID-19 testing research study in England I have just received a letter from th...

Suffererc

•4 years ago

4 Replies

OCT Scan for eyes

I have been offered an OCT scan at my routine eye test this morning. I have declined as I believe any abnormalities would be picked up by the usual tests. Has...

I have been offered an OCT scan at my routine eye test this morning. I have decl...

jacdo

•4 years ago

12 Replies

Advice pkease

I am due to have a tumour removed from my bladder in the next couple of weeks. How will I react as taking 13.5mg pred. Do I need to take more before op.

I am due to have a tumour removed from my bladder in the next couple of weeks. H...

Joanbill13

•4 years ago

17 Replies

Is this a flare?

Having tapered down to 2.5mg in the early summer, PMR symptoms that I now think had probably been grumbling from about 5mg, began to increase. I took advice...

Having tapered down to 2.5mg in the early summer, PMR symptoms that I now think...

Kendrew

•4 years ago

17 Replies

I am worried that I will not be allowed the COVID vaccine because Pred is an immune suppressant?

COVID vaccination

Tiramisu76

•4 years ago

9 Replies

GCA returned because of hip transplant. What's what?

Hi there. I could really do with some advice here. It's pretty specific. Non diagnosed GCA at 41 Diagnosed GCA at 50 7 mild strokes, one big one and another 6...

Hi there. I could really do with some advice here. It's pretty specific. Non dia...

StanDieks

•4 years ago

21 Replies

PMR flare on Actemra?

Dx with gca may 2019, lots of other health issues,i.e. osteoporosis, esophageal issues, cervical/lumbar issues. Had a lot of issues with difficulty walking,...

Dx with gca may 2019, lots of other health issues,i.e. osteoporosis, esophageal...

Spanky2019

•4 years ago

5 Replies

Prednisone tapering and Acterma

I have been on prednisone for PMR for 3 years now. Started with 20 mg and now I stuck on 5-4 mg for a year already. Had several flare ups, still somewhat sore...

I have been on prednisone for PMR for 3 years now. Started with 20 mg and now I ...

Inika

•4 years ago

17 Replies

Negative Covid test

Just had second Covid test...negative! Symptoms were simple head cold/congestion, tiredness and headache. My GP acted with due diligence in referring me for...

Just had second Covid test...negative! Symptoms were simple head cold/congestio...

Purplecrow

•4 years ago

5 Replies

COVID 19 vaccination

hi, I have just read that the vaccine may not be given people with weakened immune systems. Do we, with PMR have a weakened immune system? Thanks for your......

hi, I have just read that the vaccine may not be given people with weakened immu...

Koalajane

•4 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Forgotten my dose?!

Steroid withdrawal pain or PMR pain

It’s me again- so frustrated

Alendronic Acid

Reminder of PMRGCAuk forum rules

Pain relief and osteoarthritis

Gabapentine and vertigo

Pmr news

Buzybe

Blood tests?

Blood thinner meds causing unbearable PMR swelling and pain

Learning how to deal with PMR

Swimming. Good news.

Actemra

Bone problem from preds

Life After Pred!

hi,am so tired

The Covid vaccine question

PMRGCAuk Christmas Cards are well worth buying.

Had PMR for approx 6 years. Advice on dose of pred for acute flare up: was on 15mg for flare up but as soon as I reduced symptoms back

COVID -19 testing research study in England

OCT Scan for eyes

Advice pkease

Is this a flare?

I am worried that I will not be allowed the COVID vaccine because Pred is an immune suppressant?

GCA returned because of hip transplant. What's what?

PMR flare on Actemra?

Prednisone tapering and Acterma

Negative Covid test

COVID 19 vaccination

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