Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for November 2020

Wondering about PMR diagnosis

I wondered if all you lovely ladies and gentlemen would have a look over my symptoms and give your advice as to if you think my diagnosis of PMR is valid. The...

I wondered if all you lovely ladies and gentlemen would have a look over my symp...

Lyndalou62

•4 years ago

43 Replies

Study of PMR in rural communities

A week ago, maybe two, I saw a link for this — I think — on this forum, sent it to a fellow sufferer in the depths of countryside, but she’s lost it and I...

A week ago, maybe two, I saw a link for this — I think — on this forum, sent it ...

braininjurythepits

•4 years ago

1 Reply

At last!

Have just had my prescription delivered complete with Pred 1mg e/c. with a 2022 expiry date. Hope everyone else is getting them too.

Have just had my prescription delivered complete with Pred 1mg e/c. with a 2022 ...

maria40

•4 years ago

5 Replies

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Painful feet

I have just been reading some older posts about painful feet. I am down to 7mg Pred and suddenly (within a week) my feet are so painful I can hardly walk by...

I have just been reading some older posts about painful feet. I am down to 7mg P...

Bubble56

•4 years ago

4 Replies

Prednisolone

I was diagnosed with PMR 14th February 2018 and I have had a few flares since then. I am currently taking 1mg prednisolone daily and this seems to work for me....

I was diagnosed with PMR 14th February 2018 and I have had a few flares since th...

Horizon12

•4 years ago

28 Replies

BLOODS

Are blood tests totally accurate for PMR! I still suffer from the usual aches and pains i.e. shoulder, neck, upper arms, lower back, fatigue that diagnosed...

Are blood tests totally accurate for PMR! I still suffer from the usual aches an...

SRIXON

•4 years ago

10 Replies

Newbie - are my GCA issues familiar?!

Hi all, I’m new here and am glad to join the forum. I’ve been diagnosed with GCA (abdominal and thoracic aorta, bilateral subclavian and carotid arteries) for...

Hi all, I’m new here and am glad to join the forum. I’ve been diagnosed with GC...

Kafkaontheshore

•4 years ago

13 Replies

Wrist and Hand Pain

I had pain all over the weekend in my left hand, through my wrist and up into the palm of my hand, ending up with my hand almost seizing up, yesterday the pain...

I had pain all over the weekend in my left hand, through my wrist and up into th...

jaybee58

•4 years ago

16 Replies

Hunter 134 can't get my CPR down

I 've been in a flare since June.Went up to 10mg slowly felt better but had blood work done and my crp is 19.Is the pmr causing this?

I 've been in a flare since June.Went up to 10mg slowly felt better but had bloo...

Hunter134

•4 years ago

5 Replies

Neuropathy in vasculitis: A study

https://healthunlocked.com/vasculitis-uk/posts/144815558/your-help-is-needed-neuropathy-study?utm_source=notification&utm_medium=email&utm_campaign=email_indivi

https://healthunlocked.com/vasculitis-uk/posts/144815558/your-help-is-needed-neu...

PMRpro

Ambassador•4 years ago

17 Replies

Breaking News on the Pfizer/BioNtech vaccine

Having analysed the result, Pfizer have just announced that the success rate of their vaccine is better than they expected at 95%, which is comparable to the...

Having analysed the result, Pfizer have just announced that the success rate of ...

PMRpro

Ambassador•4 years ago

48 Replies

ITCHING - ALLERGIC REACTION TO PREDNISALONE

Itching!!!! I'm down to 9 mg pred using DSNS method. New side affect is an allergic reaction to the Pred at this level :horrific itching!! so severe I'm...

Itching!!!! I'm down to 9 mg pred using DSNS method. New side affect is an all...

Pollynolongerinagony

•4 years ago

8 Replies

Tempted fate

Recently I've spoken about how my doctor told me to just stay on my current dose of 3mg during these Covid times. Happy to do that because under that causes...

Recently I've spoken about how my doctor told me to just stay on my current dose...

Hollyseden

•4 years ago

20 Replies

PMR

I have been tapering off pred since diagnosed July 2018 started prednisone at 15mg tapering 1mg every 4 weeks this was too fast and GP agreed so went to 8...

I have been tapering off pred since diagnosed July 2018 started prednisone at 15...

Twinkling1

•4 years ago

25 Replies

doctors should listen to their patients

Hi all my husband had another phone consultation today trying to convince doctor he has pmr , she just gave him pain killers which we didnt even bother picking...

Hi all my husband had another phone consultation today trying to convince doctor...

zabzab12

•4 years ago

54 Replies

Getting confused now, about COVID and Prednisolone

Getting confused now, about COVID and Prednisolone. I am told I am clinically extremely vulnerable because of my age, because I have been on prednisolone > 5mg...

Getting confused now, about COVID and Prednisolone. I am told I am clinically ex...

Dontwannabesick

•4 years ago

31 Replies

Stuck on 13 mg for 4 months, not sure what to do

Hi everyone, I’m feeling very despondent. Last June I was down to 9 mg and had a wonderful rheumatologist who listened and worked with me. (Originally...

Hi everyone, I’m feeling very despondent. Last June I was down to 9 mg and ...

Mstiles

•4 years ago

12 Replies

12 hours late with Methotrexate dose.

I failed to collect my prescription for Methotrexate last week. I take my dose on Sunday so had to wait until Monday lunchtime to take the dose. Boy do I know...

I failed to collect my prescription for Methotrexate last week. I take my dose ...

IdasMum

•4 years ago

1 Reply

So confused at the moment

I was diagnosed with GCA in February 2017 and started on 60mgs Prednisolone. Regular blood tests and consultant rheumatology visits followed. A year later I...

I was diagnosed with GCA in February 2017 and started on 60mgs Prednisolone. Reg...

MavisEllen

•4 years ago

3 Replies

Leflunomide

I’ve posted this a reply to head girl but thought I would also add as a separate post saw Dr Hughes yesterday for a catch up. I was diagnosed with PMR Dec...

I’ve posted this a reply to head girl but thought I would also add as a separate...

SurreyFlower

•4 years ago

26 Replies

GCA

What is GCA? Saw the acronym in post re: shingles vaccine triggering GCA

Frankcally

•4 years ago

1 Reply

Vote for PMRGCAuk to win £1,000

We have a chance of winning £1,000 from Ecclesiastical who are giving away 120 lots of £1k donations this December. All you need to do to help us, is vote for...

We have a chance of winning £1,000 from Ecclesiastical who are giving away 120 l...

Fran_Benson

Partner•4 years ago

21 Replies

Reduced dosage.

I have suffered from PMR for more eight years and have been taking prednisolone for that length of time, after managing the pain with 5mg per day for some...

I have suffered from PMR for more eight years and have been taking prednisolone ...

alansouthworth42

•4 years ago

15 Replies

Blood Work

Hello , Can Prednisone throw off blood work such as small elevated reading of Lymphocytes , and WBC count . I also had a low Glucose count. I took my...

Hello , Can Prednisone throw off blood work such as small elevated reading of...

Athena2020

•4 years ago

13 Replies

A quick update

Telephone consultation with Prof Dasgupta today. He was very unhappy with the higher dose of steroid I've had to increase to and wants me to get down using...

Telephone consultation with Prof Dasgupta today. He was very unhappy with the h...

Kendrew

•4 years ago

65 Replies

Moon face

I’ve been on Pred since March and it’s only been the last 3/4 months that my face has started to get rounder. It’s not weight gain, as I’ve been having tests...

I’ve been on Pred since March and it’s only been the last 3/4 months that my fac...

Doraflora

•4 years ago

19 Replies

Managing persistent/chronic pain

This arrived in my in-box today, and I've just gone through the first few segments. Thought it interesting for our community:...

This arrived in my in-box today, and I've just gone through the first few segmen...

HeronNS

•4 years ago

3 Replies

Are you interested in exercise for PMR? (Another one for UK patients).

Dr Sarah Mackie (rheumatologist, Leeds) is planning an online meeting for patients interested in physical activity/exercise for PMR. It's due to take place on...

Dr Sarah Mackie (rheumatologist, Leeds) is planning an online meeting for patie...

Fran_Benson

Partner•4 years ago

28 Replies

Pericardial Effusion

Firstly, when I was first diagnosed with PMR I was also found to have a small pericardial effusion. This was not thought too important by my rheumatologist and...

Firstly, when I was first diagnosed with PMR I was also found to have a small pe...

Hidden

•4 years ago

4 Replies

Research for patients in rural areas (UK)

If you live in a rural area and are interested in taking part in some research about the healthcare and outcomes for people outside of urban areas please see...

If you live in a rural area and are interested in taking part in some research a...

Fran_Benson

Partner•4 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Wondering about PMR diagnosis

Study of PMR in rural communities

At last!

Painful feet

Prednisolone

BLOODS

Newbie - are my GCA issues familiar?!

Wrist and Hand Pain

Hunter 134 can't get my CPR down

Neuropathy in vasculitis: A study

Breaking News on the Pfizer/BioNtech vaccine

ITCHING - ALLERGIC REACTION TO PREDNISALONE

Tempted fate

PMR

doctors should listen to their patients

Getting confused now, about COVID and Prednisolone

Stuck on 13 mg for 4 months, not sure what to do

12 hours late with Methotrexate dose.

So confused at the moment

Leflunomide

GCA

Vote for PMRGCAuk to win £1,000

Reduced dosage.

Blood Work

A quick update

Moon face

Managing persistent/chronic pain

Are you interested in exercise for PMR? (Another one for UK patients).

Pericardial Effusion

Research for patients in rural areas (UK)

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