Neuropathy in vasculitis: A study

[PMRpro]

healthunlocked.com/vasculit...

John Mills has put this post up looking for participants for this study.

There has been a fair bit of discussion about neuropathy recently so I thought it might be of interest.

[SheffieldJane]

Thanks, completed.

[DorsetLady PMRGCAuk volunteer]

Fortunately never afflicted by neuropathy, good its being studied.

[nuigini]

Interesting that GCA is listed as an option to select in the survey question of type of vasculitis, but not PMR. Is PMR as a vasculitis still unproven/questioned?

[PMRpro Ambassador in reply to nuigini]

Questioned by some I suspect - although the link between PMR and GCA is not questioned, the joiny-uppy bit of LVV (large vessel vasculitis) hasn't registered.

[tangocharlie in reply to PMRpro]

Although some eg Dr Mackie seem to be on the case

[PMRpro Ambassador in reply to tangocharlie]

Yup - my guy too. HE wrote a paper about it ...

[tangocharlie in reply to PMRpro]

Ah yes, that Dejaco one? Very interesting and informative

[SheffieldJane in reply to PMRpro]

I said that in the remarks bit.(LVV)

[Longtimer]

Completed thank you....

[Hidden]

Thank you. Have completed the questionnaire

[aladymo]

Very relevant. Thanks PMRpro

[strathearn]

I've completed the survey - very interested in participating.

[Jackoh]

Thank you. Yes have completed.

[Horsewhisper]

Done!

[LIVEORDIEHEREIAM]

Done! Will we see results?

[PMRpro Ambassador in reply to LIVEORDIEHEREIAM]

No idea, sorry.

[Alpineflower]

Thanks for making this available. I had been told by doctors that my symptoms of peripheral neuropathy were probably due to the GCA medications and not to the GCA although all symptoms started 6 months after diagnosis. Also have suspected LVV.Really good news that this is being studied.