Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for November 2020

Happiness

So, yesterday I awoke at 5.00am to hear heavy rain lashing down outside my window. Another gloomy and depressing day I thought, as over the past two years I've...

So, yesterday I awoke at 5.00am to hear heavy rain lashing down outside my windo...

Kendrew

•4 years ago

11 Replies

PMRGCA

I've had PMR on and off for 11 years. Does anyone suffer with muscle spasms ,? I get the occasional esophagus spasm and the horrible rectal spasm. Am I alone I...

I've had PMR on and off for 11 years. Does anyone suffer with muscle spasms ,? I...

Alandronic

•4 years ago

3 Replies

GCA??

Hi everyone I’ve had PMR since January this year, I’m currently taking 6mg prednisone daily. About 10 days ago I tapered from 7mg down to 6mg, I had the...

Hi everyone I’ve had PMR since January this year, I’m currently taking 6mg pr...

Leepeelee

•4 years ago

33 Replies

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Recent diagnosis

I am a 57 year old previously healthy lady. I have recently been diagnosed with PMR . Blood results normal but diagnosis from symptoms. I have bilateral...

I am a 57 year old previously healthy lady. I have recently been diagnosed with...

Lyndalou62

•4 years ago

18 Replies

Problems with artheritis after long cortisone treatment?

I am in remission since April, so happy to get out on the other side of this journey. I am experiencing something that I think is the start of artheritis in my...

I am in remission since April, so happy to get out on the other side of this jou...

Pirnilla

•4 years ago

30 Replies

Introducing myself.

Hi, I am a English 70 year old living in Spain. Before this desease started in June I was one very fit lady, spinning instructor, underwater photographer,...

Hi, I am a English 70 year old living in Spain. Before this desease started in...

Lico

•4 years ago

14 Replies

Covid Vaccine

Sorry im a little behind. Just saw that Kaolajane asked this previously.

daisylazy

•4 years ago

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Covid Vaccine

Now that a vaccine seems to be on the horizon I wondered what we need to know to prepare. Will it be OK for someone with adrenal insuffiency to take it. Do we...

Now that a vaccine seems to be on the horizon I wondered what we need to know to...

daisylazy

•4 years ago

1 Reply

An update on inflammatory arthritis diagnosis

I finally had a face to face appointment with the rheumatologist a few days ago and he has diagnosed psoriatic arthritis based on me saying I have psoriasis...

I finally had a face to face appointment with the rheumatologist a few days ago...

Surami2020

•4 years ago

8 Replies

Photo

You will all be pleased to hear I am back to normal (if that is possible)👵🏻🤪. I will now get rid of the photo I put up to stop my mug appearing nearly every...

You will all be pleased to hear I am back to normal (if that is possible)👵🏻🤪....

Constance13

•4 years ago

13 Replies

Weight loss on Prednisolene

Good morning! I was diagnosed with PMR in July 2019 and put on 15mg of Pred. I managed to get down to 5mg by September this year but after a flare in October...

Good morning! I was diagnosed with PMR in July 2019 and put on 15mg of Pred. I ...

DD25

•4 years ago

14 Replies

Glad she’s not my doctor!

https://www.dailymail.co.uk/health/article-8948927/DR-ELLIE-CANNON-effects-steroids-taking.html

https://www.dailymail.co.uk/health/article-8948927/DR-ELLIE-CANNON-effects-ste...

RoadTrip

•4 years ago

7 Replies

Found this info while doing some research..Etanercept

I came across this treatment for several auto-immune inflammatory issues and it says it may be helpful for other similar ailments. Has anyone had any...

I came across this treatment for several auto-immune inflammatory issues and it ...

Dydee

•4 years ago

4 Replies

Help

Hello. This is my 1st post and need some advice please. I was diagnosed with polymylagia March this year and was put on 40mg Prednisolone and have now tapered...

Hello. This is my 1st post and need some advice please. I was diagnosed with po...

Teacup777

•4 years ago

19 Replies

inflammation markers - ESR "old-fashioned"???

Thanks to all your expertise I now know a bit about ESR and CRP. I recently discovered that our surgery never gives ESR tests, which they think is an...

Thanks to all your expertise I now know a bit about ESR and CRP. I recently disc...

humlies

•4 years ago

51 Replies

Is management of a 'flare' different to from 'going too low'?

Since going from 3mg to 2.5mg the hip and shoulder stiffness seems to have wracked up, when I bend down and stand up, and lasts all morning . The trigeminy...

Since going from 3mg to 2.5mg the hip and shoulder stiffness seems to have wrack...

Lovebikes

•4 years ago

9 Replies

Sudden bursts of heat and nausea

Three weeks ago I had to stop methotrexate after 5 months because of developing nausea. With PMR and GCA and tapering prednisone now down to 10mg I find I am...

Three weeks ago I had to stop methotrexate after 5 months because of developing ...

Caloo650

•4 years ago

12 Replies

Wining/buzzing.

Does anyone experience pain from the neck going up the side of head without pain but with tightness and with a sort of wining/buzzing? Almost dulling my...

Does anyone experience pain from the neck going up the side of head without pain...

Alandronic

•4 years ago

4 Replies

No question (at the moment!) but "Thank You" for education and hope.

I only found this forum 2 months ago and wish I had known about it from the beginning of my diagnosis a year ago. It has made all the difference to my...

I only found this forum 2 months ago and wish I had known about it from the begi...

Queenie1901

•4 years ago

6 Replies

Interested in dosages, staged cutting down, longevity of condition, recovery stories, things to watch for.

I thought I had Long Covid until I had multiple antibody tests. Very similar symptoms. Very rapid onset, but no discernible reason. I had a sore chest and for...

I thought I had Long Covid until I had multiple antibody tests. Very similar sym...

Predderman2020

•4 years ago

17 Replies

Unsure why doctors put me on theses

Hi All I’ve had a lot of pain my knees elbow s wrist hip bones all hurt rang doctor last week booked me for a full blood test Tuesday and doctor rang to today...

Hi All I’ve had a lot of pain my knees elbow s wrist hip bones all hurt rang doc...

Hidden

•4 years ago

19 Replies

tapered off but what if....

I've tapered off of prednisone now after a little over 3 1/2 years, my start was 20mg...I went very slow especially when I got under 10mg...my question is,...

I've tapered off of prednisone now after a little over 3 1/2 years, my start was...

daworm

•4 years ago

21 Replies

Tapering issues

I’m learning a lot from reading the many posts here, especially interested in the various effects of tapering steroids. I’m currently on a slow path from 15mg...

I’m learning a lot from reading the many posts here, especially interested in th...

Jackie_boy

•4 years ago

5 Replies

Polymyalgia

Great to be a member of this group, it’s fantastic that I can now share my pain and gain with other people that are suffering the same as me.

Great to be a member of this group, it’s fantastic that I can now share my pain...

Lico

•4 years ago

10 Replies

Piriformis Syndrome with PMR

I have had a terrible day today starting with not being able to get off the sofa. WE had to call an ambulance and paramedics needed to give me gas and air for...

I have had a terrible day today starting with not being able to get off the sofa...

Barnaby2

•4 years ago

12 Replies

Can PMR pain migrate (move) from one area to another?

Hi all (from Nashville, TN - USA) Firstly - this site is invaluable for PMR folks with my rheumatologist(s) stating the same. I was diagnosed 2 years ago this...

Hi all (from Nashville, TN - USA) Firstly - this site is invaluable for PMR folk...

pmrusa

•4 years ago

8 Replies

My dad has been recently diagnosed with PMR

Hi all, I’m hoping that someone is able to offer some advice. My dad, who is in his mid 60’s has recently been diagnosed with PMR after weeks of debilitating...

Hi all, I’m hoping that someone is able to offer some advice. My dad, who is in...

Lea-D

•4 years ago

23 Replies

Natural remedies for reducing inflammation

Hello folks, Just wondered if anyone has tried Resveratrol and curcumin as anti-inflammatories when tapering off Prednisolone? I've found a few studies online...

Hello folks, Just wondered if anyone has tried Resveratrol and curcumin as anti-...

strawclutching

•4 years ago

38 Replies

Hair?

For the last three days every time I get up I feel dizzy. Pmr stable, arthritis behaving itself - hair in an absolute mess - so I thought I'd put curlers in...

For the last three days every time I get up I feel dizzy. Pmr stable, arthritis...

Constance13

•4 years ago

52 Replies

No rheumatologist appointment

Cornwall apparently doesn't offer appointments with a rheumatologist so after 14 months of pred tapering and then GCA after tapering too low I still haven't...

Cornwall apparently doesn't offer appointments with a rheumatologist so after 14...

Waves2

•4 years ago

34 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Happiness

PMRGCA

GCA??

Recent diagnosis

Problems with artheritis after long cortisone treatment?

Introducing myself.

Covid Vaccine

Covid Vaccine

An update on inflammatory arthritis diagnosis

Photo

Weight loss on Prednisolene

Glad she’s not my doctor!

Found this info while doing some research..Etanercept

Help

inflammation markers - ESR "old-fashioned"???

Is management of a 'flare' different to from 'going too low'?

Sudden bursts of heat and nausea

Wining/buzzing.

No question (at the moment!) but "Thank You" for education and hope.

Interested in dosages, staged cutting down, longevity of condition, recovery stories, things to watch for.

Unsure why doctors put me on theses

tapered off but what if....

Tapering issues

Polymyalgia

Piriformis Syndrome with PMR

Can PMR pain migrate (move) from one area to another?

My dad has been recently diagnosed with PMR

Natural remedies for reducing inflammation

Hair?

No rheumatologist appointment

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