Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2020

Temporal arteritis and polymalasia rheumatica symptoms and flareups

Blackandwhite2

•3 years ago

2 Replies

Sleeping after 4am

I recently asked for some advice about why I kept waking at 4 and got lots of help. I decided to start taking my pred in the evening, with the aim of having...

I recently asked for some advice about why I kept waking at 4 and got lots of he...

Seraphina56

•3 years ago

47 Replies

GCA pain and Paracetamol

Have had PMR for eleven months. Now slow tapering from 9mg to 8mg and going quite well. Just to mention, also: I have been tense for some time and would not be...

Have had PMR for eleven months. Now slow tapering from 9mg to 8mg and going quit...

ChinaWuntoo

•3 years ago

12 Replies

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border collie

I was diagnosed with polymyalgia six weeks ago even though the pain is much better I am suffering with muscle pain at the back of my thighs when sitting and...

I was diagnosed with polymyalgia six weeks ago even though the pain is much bett...

reading_novels

•3 years ago

7 Replies

Am overwhelmed with over 20 friends who have voted so far since I posted on Facebook last night. My Mum is on a mission to raise awareness

https://www.movementforgood.com/12days/index.php?cn=1128723&ct=health

Daughters2

•3 years ago

28 Replies

I don't have swelling of joints, only stiffness and clicking, plus muscle fatigue. Rheumy still considers 55 Is too young for it to be PMR?

I'm concerned that being treated for PMR with Prednisolone and Amitriptyline could well mean my true condition 🤷🏻‍♀️ (whatever that may be) is not being...

I'm concerned that being treated for PMR with Prednisolone and Amitriptyline cou...

Capprice

•3 years ago

15 Replies

Migraine... ?

Those of you who have GCA, are the visual disturbances at all like those of Migraine? I am still on 6 mg Pred split morning/evening after more than 7 years of...

Those of you who have GCA, are the visual disturbances at all like those of Migr...

Roltuba

•3 years ago

14 Replies

Inflammation dampening??

Good evening everyone, it has taken me nearly 5 years to get to 5mg for the 2nd time. First time I've dropped without any side effects 2 weeks ago. Then 3...

Good evening everyone, it has taken me nearly 5 years to get to 5mg for the 2nd ...

diana1998

•3 years ago

9 Replies

YOGA for Stress Management

Hi. I am, as you can see from my handle.. a yoga teacher.. and I was thinking that since I zoom classes that I might add a FREE workshop/intro class for only...

Hi. I am, as you can see from my handle.. a yoga teacher.. and I was thinking th...

yogabonnie

•3 years ago

34 Replies

Alcohol and PMR

Hi everyone, I’m new here after being diagnosed with PMR 2 months ago. Thanks for all the great advice and tips you share, it makes such a difference! I read a...

Hi everyone, I’m new here after being diagnosed with PMR 2 months ago. Thanks fo...

Charliepeace

•3 years ago

63 Replies

How long does it really take to recover

Hi everyone I am moving into my 4th year of PMR. I am off prednisone and have been for about 3 months. I am left with costachondritis. I believe this is a...

Hi everyone I am moving into my 4th year of PMR. I am off prednisone and have ...

JulieR2

•3 years ago

24 Replies

https://www.bbc.co.uk/news/health-55022288

Would this affect us? hearing so many mixed review about this

rustyrussell

•3 years ago

9 Replies

Life on Pred is bearable

I’ve always been massively active (horses, farming etc) but RA flares and the overuse of nurofen/Voltarol kept me going with quite bad joint damage. When I...

I’ve always been massively active (horses, farming etc) but RA flares and the ov...

Lollybygolly

•3 years ago

4 Replies

Grapefruit

Husband just said he bought a grapefruit for breakfast tomorrow. But can I have grapefruit with our usual meds?

Husband just said he bought a grapefruit for breakfast tomorrow. But can I have ...

DogAgilityObsessed

•3 years ago

21 Replies

Earache

3 weeks ago I cut down by 0.5mg pred to 6.5. Yesterday I started to have an earache and a sore throat on the right hand side. This is what always happens when...

3 weeks ago I cut down by 0.5mg pred to 6.5. Yesterday I started to have an eara...

Suet3942

•3 years ago

18 Replies

Grateful

I eventually got diagnosed 4 years ago.Luckly I found this site at the beginning of my ‘sentence ‘.It’s been invaluable.I definitely appreciate all the advice...

I eventually got diagnosed 4 years ago.Luckly I found this site at the beginning...

Dewdrop456

•3 years ago

10 Replies

Fatigue

Also forgot to mention I am having flashes off and on badly. I literally have to wipe my head and then I get cold again.

Also forgot to mention I am having flashes off and on badly. I literally have to...

Robinsnest72

•3 years ago

1 Reply

Fatigue

I have not posted for a while but am looking for some answers. I was on prednisone for a little over two years. I reduced slowly under rhemys direction. My...

I have not posted for a while but am looking for some answers. I was on predniso...

Robinsnest72

•3 years ago

11 Replies

Dosage

I was diagnosed with PMR early March 2020, after six months of pain three different diagnoses by three doctors. Posture - I did the exercises given to me for...

I was diagnosed with PMR early March 2020, after six months of pain three diffe...

Tinasleepyhead

•3 years ago

18 Replies

newbie with knees and night pain

Interested in hearing from anyone who has knee involvement (intermittent pain and swelling) with PMR. Both my GP and an orthopedic surgeon thought it was...

Interested in hearing from anyone who has knee involvement (intermittent pain an...

1234v

•3 years ago

15 Replies

Weight gain

Hi All, Been on 15mg Pred daily for 2 months, about to reduce to 10mg. I have suddenly developed an insatiable appetite resulting in a 10 lb weight gain in...

Hi All, Been on 15mg Pred daily for 2 months, about to reduce to 10mg. I have ...

Handler5

•3 years ago

50 Replies

Breast pain and steroids

Hi everyone I am new here and find this site so helpful. I have PMR and GCA since 2018 taking 5 MGM’s prednisilone at the moment and have recently developed...

Hi everyone I am new here and find this site so helpful. I have PMR and GCA sinc...

garden49

•3 years ago

7 Replies

PMR and chest pain

My husband was diagnosed with PMR in September 2016, and GCA in December 2016. He has gradually decreased his steroids to 10mg but despite several attempts at...

My husband was diagnosed with PMR in September 2016, and GCA in December 2016. H...

Nidgey

•3 years ago

30 Replies

Pred cut back

Sorry that first attempt was a type error

TINYdes

•3 years ago

1 Reply

Predict cut back

Hi again everyone. Need some more advice. Been on pred now one year. Have managed to get to 6mg. Tried to cut to 5.5 and felt terrible after one day. Went back...

Hi again everyone. Need some more advice. Been on pred now one year. Have manage...

TINYdes

•3 years ago

20 Replies

Is Omeprazole prescribed for Tocilizumab or steroid only related ?

Hi is anyone taking TCZ on its own (so no steroid involved) also still prescribed omeprazole (or equivalent) ? Thanks.

Hi is anyone taking TCZ on its own (so no steroid involved) also still prescribe...

Sefu

•3 years ago

4 Replies

Pmr

What is PMR?

Frankcally

•3 years ago

2 Replies

Hospital want to put me on Methotrexate - yay or nay?

I’ve had multiple surgeries for synovitis but no trace of RA - yay or no when no clear diagnosis? I’ve had RA blood tests at least 4 or 5 time - nothing...

I’ve had multiple surgeries for synovitis but no trace of RA - yay or no when no...

jg5118

•3 years ago

4 Replies

A few more questions from a new member

Firstly, I just wanted to say thank you for all of the replies to my first post, I have found this group to be unbelievably helpful and definitely felt a...

Firstly, I just wanted to say thank you for all of the replies to my first post,...

Sophiestree

•3 years ago

8 Replies

Long Covid? Or something from the autoimmune menu?

https://www.theguardian.com/world/2020/nov/19/long-covid-overlap-emerges-with-me-including-debate-over-treatment Thought the discussion about the treatment was...

https://www.theguardian.com/world/2020/nov/19/long-covid-overlap-emerges-with-me...

PMRpro

Ambassador•3 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Temporal arteritis and polymalasia rheumatica symptoms and flareups

Sleeping after 4am

GCA pain and Paracetamol

border collie

Am overwhelmed with over 20 friends who have voted so far since I posted on Facebook last night. My Mum is on a mission to raise awareness

I don't have swelling of joints, only stiffness and clicking, plus muscle fatigue. Rheumy still considers 55 Is too young for it to be PMR?

Migraine... ?

Inflammation dampening??

YOGA for Stress Management

Alcohol and PMR

How long does it really take to recover

https://www.bbc.co.uk/news/health-55022288

Life on Pred is bearable

Grapefruit

Earache

Grateful

Fatigue

Fatigue

Dosage

newbie with knees and night pain

Weight gain

Breast pain and steroids

PMR and chest pain

Pred cut back

Predict cut back

Is Omeprazole prescribed for Tocilizumab or steroid only related ?

Pmr

Hospital want to put me on Methotrexate - yay or nay?

A few more questions from a new member

Long Covid? Or something from the autoimmune menu?

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