Its me again.Moved in May got a relapse so upped my prednisone from 7 to 10.Stayed on that for 8 weeks.Trying to taper slowly but got to 8 and i ache all over again.Can't get to my reumy so not sure what to do.Iam yo yoing. I know thats not good!!!
Frustrated: Its me again.Moved in May got a relapse... - PMRGCAuk
Frustrated
Where didn't you ache?
At 10mgs.
My reumy will be upset iam not lower aft a year and a half.
His problem - there is no point taking any if it isn't enough. You tell him you had a flare - and moving house in the middle of Covid would be enough to give anyone a flare!!!
You 're right.I had a phone consultation in May but was down to 7mg.Aft moving i couldn't move and ached all over.Waited to see if it was just from doing too much.It didn't improve so upped to 10mgs.Aft a week i felt much better.
Stress will cause a flare - and I bet you are still sorting out and worried about it? Or something else ...
In what drop size do you go and for how long each time. This is a difficult area of dosing for many as it is also time when the adrenals need to make up a bit of the shortfall of cortisol. 7-8mg is enough to make the adrenals feel they don’t have to work much but too little for some people to feel they’ve got enough for the day. I felt permanently achey until the adrenal glands kicked in and I only had GCA but at times I though it might be PMR. I just plodded through this no man’s land at 0.5mg every 6-8 weeks. Felt so much better by 5mg. I guess for those with PMR the challenge is to decide whether it’s low adrenal aches or PMR flare.
I did .5mg but only a month before i dropped again.
Was the month because you felt fine and imposed (by you) period of time before the next drop?
Yes it was me.Felt fine in the 10mgs for 2 months.My reumy wanted me to start lowering last Dec.But my body is saying no way!!!
Sorry, what I was asking was when you dropped each time towards the 7mg, did you drop because you felt fine after a month? Moving house under 10mg sounds horrendous and I’m impressed you managed it.
I have to say that 10mg was when I felt the best in the whole journey from 60mg it felt I and could take on the world again. Doses under this were a shock because although the Pred side effects reduced, I felt like the stuffing had been knocked out of me and my deconditioned muscles were so easily upset, plus I was permanently tired and achey. I can see why people yo-yo. By 3mg I felt so much better. You need to think whether you just feel less good than you expected or whether your pains are the PMR from before.
I've got to 8.5 mgs now but over a few days i feel like i did when i first got the pmr.Symmetrical pain,swelling in legs,achey arms and pain in hips.