Vertigo is it pmr: Hi all 👋 I have had pmr for... - PMRGCAuk

PMRGCAuk

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Vertigo is it pmr

greenvegan profile image
greenvegan
•6 Replies

Hi all 👋 I have had pmr for three years, I am down to 1 mg prednisone, I still have manageable symptoms,but recently I have vertigo, the doctor believes it’s crystals moved in inner ear, could it be related to pmr? Has anyone here experienced this ?

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greenvegan
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PMRpro profile image
PMRproAmbassador

mayoclinic.org/diseases-con...

BPPV can happen anyway, I don't think it is linked to PMR, but is he sure that's what it is? Has he tried doing an Epley manoeuvre to clear it?

The fact you mention still having symptoms does mean the underlying cause of the PMR is probably still active and there is a chance it could be GCA starting up - it can affect the 8th cranial nerve and cause ear symptoms including dizziness and hearing problems.

greenvegan profile image
greenvegan• in reply toPMRpro

That’s concerning, should I increase prednisone to see if it helps?

greenvegan profile image
greenvegan• in reply togreenvegan

Also I spoke to the doctor over the phone, I did try the Brant daroff exercise which made me feel sick.

PMRpro profile image
PMRproAmbassador• in reply togreenvegan

I don't think that is a good idea - if it is GCA it would need a lot more than you are on at present. No, I think you need to keep an eye on it and get sensible medical advice.

Yes - the Epley is also likely to make people feel sick - which is why a lot of doctors won't do it in the office!!!

Manchild profile image
Manchild

Look up Epley Maneuver on youtube. It is pretty easy to master yourself and it did work for me totally after two tries.

greenvegan profile image
greenvegan• in reply toManchild

Thanks for your help, I tried it yesterday and feeling a lot better, think I’ll give it one more try.

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