Suffering with the diseases we have can be quite challenging as I am learning, with much of my previous life having had to be placed on temporary hold.
As I enter another week of predicted poor sleep, frustration that there is much to accomplish in the house and garden, combined with missing exercise and a routine established over more than 50 years. I felt it is time to reflect on the positives.
The CGA is a given so nothing I can really say about that. The positive that I take is that it was diagnosed eventually, the treatment whilst taxing is successful at suppressing the symptoms and I have faith and trust in those both treating me and supporting me holistically. No sight loss, feel positive and looking towards every day.
Some days I have terrible side effects from my steroids, the cramps being the latest manifestation , particular my hands and feet. Allowing for that, for some reason tonic water helps me; an old trick which is probably placebo based, but it works for me, plus unlike some members here, I am retired, financially secure and have nothing of the worries they have. Not being smug, just being thankful.
My diet has changed markedly, particularly excluding carbohydrates to a more sensible level, however today I enjoyed a breakfast which my Polish father would have enjoyed with relish. Just no fresh bread.
Today, despite a poor night sleep wise, my wife and I enjoyed a nice walk in the sunshine with our dog in glorious countryside adjacent to our home. It wasn’t very far, but it is the third such walk in succession and I sense Ollie the collie has suffered a little as one of his pack has been absent. A big improvement on 4 weeks ago.
I have gone on and on about exercise since joining this group. Today I take delivery of an exercise bike. It is likely to get used initially for 5-10 minutes a day; If at all and a setting which will be at its lowest. Must be careful not to be like the proverbial bull, but progress nonetheless.
Finally, particularly as this is a Sunday and I am mindful that this is rapidly becoming a sermon. At the height of my acute episode, sat alone at night in pain, wondering how bad my now obviously not sinusitis could get. I find myself diagnosed, pain free (mainly) bad days which I get over and I know will not go on and perhaps more importantly I don’t feel alone; far from it.
Looking at this disease from my perspective and at this moment in time. Life isn’t too bad.
In the name of.........
Comment on exercise and fitness 
Should we start a 'Celebrating the Positives Only' post?
Morning (and all day) stiffness
Hello and Pred dose increase?
That was the year that was
