Where have all the rheumies gone ?

[Seagu11]

I thought it was only in Scotland, but your experience is the same as mine.

However take great care with steroids.

I was on maximum dosage for sometime due to GCA, a few months in I was diagnosed with osteoporosis I have since had a total hip replacement albeit successful. I think now I may have PMR I would be nervous to take steroids although they saved my sight and maybe even my life.

[DorsetLady PMRGCAuk volunteer]

I guess this was an answer to someone? Who?

Why are you nervous about taking Pred?- you admitted they may have saved your sight.

[PMRpro Ambassador]

PMR and GCA are the same disorder. This PMR could be the start of another lot of GCA - untreated PMR is much more likely to progress to full-blown GCA.

[piglette]

Did you break your hip because of the osteoporosis?

[Seagu11 in reply to piglette]

I had an X-ray before being diagnosed with GCA it was clear ,however I was on the steroids at 60mg for some time before reducing the dosage I do think they were responsible.

However I do understand that the medics have to weigh up the consequences to treat or not, with your sight or mobility at stake as I said just be careful.

[PMRpro Ambassador in reply to Seagu11]

x-ray? that won't show reduced bone density. Not unless your bones are almost transparent ...