Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,306 members • 38,040 posts

All posts for June 2020

GCA Strange symptoms

Hi Everyone I am new here. Just a bit of a strange question but does anyone get feeling like there is something squirming in you head. I also get strange...

Hi Everyone I am new here. Just a bit of a strange question but does anyone get ...

A1430

•4 years ago

33 Replies

Rheumatology telephone appointment

Haven’t written on here for a while but do pop in and read what’s happening. Had my second rheumatology appointment yesterday over the phone. He said he had...

Haven’t written on here for a while but do pop in and read what’s happening. H...

Spittal9

•4 years ago

30 Replies

Hi Everyone

Thank you all again for being here for me. I did end up at the Rheumatology day unit yesterday afternoon to be given an infusion of 500mgs of a different...

Thank you all again for being here for me. I did end up at the Rheumatology day ...

shekinah66

•4 years ago

11 Replies

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Cortisol Test

I am currently on 2.5mg pred, tapering to 2mg using Dead Slow and Stop method. Have been at 2.5mg for 3 months. My GP want me to have a blood test to see, in...

I am currently on 2.5mg pred, tapering to 2mg using Dead Slow and Stop method. H...

Fifegran

•4 years ago

16 Replies

referral to rheumatologist

I had my phone call appointment with GP today. I have been trying to reduce my prednisolone from 10mg to 9 mg and a lot of my symptoms have come back. I have a...

I had my phone call appointment with GP today. I have been trying to reduce my p...

Barnaby2

•4 years ago

10 Replies

Omeprazole

Thanks to all for their replies, I will take your advice and proceed cautiously!

Thanks to all for their replies, I will take your advice and proceed cautiously!...

dolphin39

•4 years ago

Be the first to reply

Could antibiotics cause weakness?

My mum has been taking 20mg of Leflunomide as well as the reduced 25mg of Pred for about a month and has just started a second cause of antibiotics to clear up...

My mum has been taking 20mg of Leflunomide as well as the reduced 25mg of Pred f...

Jeromekjerome

•4 years ago

5 Replies

Rheumatologist says I'm too young for PMR and I have reactive arthritis following viral infection

I've given a run down of my history on my profile.... in brief, diagnosed with PMR in Dec 2019 and barely mobile at one stage. Was put on 15mg Prednisolone...

I've given a run down of my history on my profile.... in brief, diagnosed with P...

IncogEve

•4 years ago

11 Replies

Gout attack

I’m having a very painful gout attack. I’m down to 4.5mg of Prednisone. I’m worried that this will somehow cause me to have a flare. Should I go up another 5mg...

I’m having a very painful gout attack. I’m down to 4.5mg of Prednisone. I’m worr...

Blackcatlover

•4 years ago

23 Replies

I can barely see to write or type

I am so sorry to be a nuisance. A short while ago I went to type on my laptop and I could barely see what I was typing at q00% zoom, the same on my tablet. I...

I am so sorry to be a nuisance. A short while ago I went to type on my laptop an...

shekinah66

•4 years ago

20 Replies

Omeprazole

I was diagnosed with PMR over 4 years ago and have been taking pred, AA and omeprazole ever since. I have now been diagnosed with osteopenia and have gastric...

I was diagnosed with PMR over 4 years ago and have been taking pred, AA and omep...

dolphin39

•4 years ago

5 Replies

Prednisolone withdrawal and headaches?

I have been on Prednisolone for 11 years now ranging from 70 down to a low as 5mgs. For the last year around 12mgs. I was diagnosed with PMR initially for 6...

I have been on Prednisolone for 11 years now ranging from 70 down to a low as 5m...

Stkeyna

•4 years ago

13 Replies

Have I (just) over done it?

I’m two weeks in to taking pred. None of the ghastly side effects and still feeling joyous to be pain free and mobile. But I’ve woken today with my right leg...

I’m two weeks in to taking pred. None of the ghastly side effects and still feel...

DogAgilityObsessed

•4 years ago

7 Replies

Alopecia Areata

Now I know for sure it's not Pred that has caused this but 4 days after taking first dose on 15 June 2020 .. I wash my hair and a clump the size of an inch...

Now I know for sure it's not Pred that has caused this but 4 days after taking f...

Capprice

•4 years ago

5 Replies

Dosage Dilemma

Diagnosed with PMR/GCA 2 and half years ago. Managed to reduce steroid to 4mg Prednisilone by mid May 2020 then symptoms returned - UTI at the same time -...

Diagnosed with PMR/GCA 2 and half years ago. Managed to reduce steroid to 4mg P...

Jantayl

•4 years ago

32 Replies

which alternative (eventually) to pred?

I'd appreciate your views and experiences please - I've had PMR for 18 months, diagnosed (CRP 23, ESR 69) 14 months ago and started taking pred at 15mg....

I'd appreciate your views and experiences please - I've had PMR for 18 months, d...

MaltedMilk

•4 years ago

10 Replies

PMR

Have recovered from GCA, however once again suffering joint pain.Blood test said CRP is only 2. Can PMR be traced from blood test ?

Have recovered from GCA, however once again suffering joint pain.Blood test said...

Seagu11

•4 years ago

2 Replies

Some info about Vitamin D

I don't often use the links from one of the bone health notifications I get - they lady is a bit "born again" about some things. But this I thought was good:...

I don't often use the links from one of the bone health notifications I get - t...

PMRpro

Ambassador•4 years ago

28 Replies

I'm scared

Hi i was dignosed with Tempola Arteritis a week ago today after having severe head pain so much so that it hurt to lay my head on the pillow. I was given an...

Hi i was dignosed with Tempola Arteritis a week ago today after having severe he...

shekinah66

•4 years ago

16 Replies

+Throbbing in ears

I don't know when this started. When I'm relaxed I hear the sound of airplanes overhead. (There aren't any.) When my energy is higher I'm aware of a throbbing...

I don't know when this started. When I'm relaxed I hear the sound of airplanes o...

VicSat

•4 years ago

14 Replies

Increased Prevalence of Hospital-Diagnosed COVID-19 in Autoimmune/Immune-Mediated Inflammatory Diseases

Just another interesting article. Not shared to cause concern, or as a 'definitive' of anything. Just found it interesting that 'they," are even analysing...

Just another interesting article. Not shared to cause concern, or as a 'definiti...

Hidden

•4 years ago

19 Replies

Finally getting there!

I was diagnosed with PMR just over 2 years ago, I have never been keen on taking medication due to side effects but did go on to Prednisolone. I was determined...

I was diagnosed with PMR just over 2 years ago, I have never been keen on taking...

Bignorhill

•4 years ago

11 Replies

PMR and Cancer

Pleased to say that the cancer 'diagnosis' from my GP was incorrect and further investigations have shown no sign of cancer. Thank you for all the advice and...

Pleased to say that the cancer 'diagnosis' from my GP was incorrect and further ...

SanG55

•4 years ago

9 Replies

Seized up deltoids

Good morning everyone,I hope you are all in the best possible health and ready for a sunny day. I am still waiting for my rheumy to come forward with her...

Good morning everyone,I hope you are all in the best possible health and ready f...

yorkieme

•4 years ago

7 Replies

Sudden hearing loss

About six weeks ago my husband had an incident that was thought to be a stroke. At the time of the attack he said there was a bang in his ear. He was very sick...

About six weeks ago my husband had an incident that was thought to be a stroke. ...

Gillyfran

•4 years ago

2 Replies

Advice Please for a Recently New Member

I have been on Pred for around 7 weeks. Since taking the first tablets I have never had a twinge and I feel great. I went from 15mg to 12.5 after 3 weeks and...

I have been on Pred for around 7 weeks. Since taking the first tablets I have ne...

Gunflash

•4 years ago

5 Replies

Please help me to understand?

Good evening, I hope you are all having a good day. I am quite confused as to whether my symptoms are due to polymialgia or withdrawal symptoms from Pred. I...

Good evening, I hope you are all having a good day. I am quite confused as to wh...

Jlml

•4 years ago

18 Replies

Less than satisfactory telephone consultation

Hi all , after singing the praises of the dentist last week I have had a very disappointing consultant appointment today. Firstly it wasn’t a consultant but...

Hi all , after singing the praises of the dentist last week I have had a very di...

Devoid

•4 years ago

4 Replies

Advice please

Hi, I am now on week two of 6 mg, using Dorset Lady’s taper schedule. Thank you, it’s a great approach for me. I have acquired painful elbow joints recently....

Hi, I am now on week two of 6 mg, using Dorset Lady’s taper schedule. Thank you,...

Cyclegirl54

•4 years ago

36 Replies

Reducing frequency of Actemra - how to decide this ?

Hello , I have been diagnosed with GCA in March 2019. I was put on 60 mg prednisone and then tapering and now on 4 mg by DSNS method. Since April 2019 ,I was...

Hello , I have been diagnosed with GCA in March 2019. I was put on 60 mg predni...

Iwillwin123

•4 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2020

GCA Strange symptoms

Rheumatology telephone appointment

Hi Everyone

Cortisol Test

referral to rheumatologist

Omeprazole

Could antibiotics cause weakness?

Rheumatologist says I'm too young for PMR and I have reactive arthritis following viral infection

Gout attack

I can barely see to write or type

Omeprazole

Prednisolone withdrawal and headaches?

Have I (just) over done it?

Alopecia Areata

Dosage Dilemma

which alternative (eventually) to pred?

PMR

Some info about Vitamin D

I'm scared

+Throbbing in ears

Increased Prevalence of Hospital-Diagnosed COVID-19 in Autoimmune/Immune-Mediated Inflammatory Diseases

Finally getting there!

PMR and Cancer

Seized up deltoids

Sudden hearing loss

Advice Please for a Recently New Member

Please help me to understand?

Less than satisfactory telephone consultation

Advice please

Reducing frequency of Actemra - how to decide this ?

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