Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for June 2020

Concerned and frustrated

Hello am a newbie here. Apologies for length of this post but need to set background. Autumn 2018, achy pain in upper arms, left more than right. After it...

Hello am a newbie here. Apologies for length of this post but need to set backgr...

Icepack

•4 years ago

33 Replies

HELP!

HELP! I'm very new to PMR! Following my initial diagnosis in December 2019 I was prescribed 30mg of Prednisone. Within a couple of days I was feeling great. My...

HELP! I'm very new to PMR! Following my initial diagnosis in December 2019 I was...

pudd1tat

•4 years ago

25 Replies

Neck discomfort

I’ve just managed to get down to 1mg pred after 5 years. Using dsns method. I have a few aches that have returned in the normal places but will wait to see if...

I’ve just managed to get down to 1mg pred after 5 years. Using dsns method. I h...

Jennykk

•4 years ago

5 Replies

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Q&A from Prof Dasgupta

After Prof Dasgupta's webinar last week there were more questions for him to answer than there was time for. He has kindly written replies to these questions...

After Prof Dasgupta's webinar last week there were more questions for him to ans...

Fran_Benson

Partner•4 years ago

26 Replies

Prednisilone not working

Morning all. I’ve got my first face to face rheumatologist tomorrow and I’m ready to see him. My ANTICCP was >340, which is significant and I’m sure I’ll be...

Morning all. I’ve got my first face to face rheumatologist tomorrow and I’m read...

Piglet007

•4 years ago

4 Replies

New to GCA...biopsy next week

Hi all! I currently have Sjogren's Syndrome and Fibromyalgia but have been having extreme headaches, scalp, face, eyes, ears, gum/teeth, neck, and shoulder...

Hi all! I currently have Sjogren's Syndrome and Fibromyalgia but have been havi...

lgonzalz356

•4 years ago

8 Replies

Adrenal Insufficiency or Just PMR!!

I spoke to a Rheumatologist today. I’ve been in Pred more than 4 years every time I reduce I get a flare up. Or so I think. This time it’s my lower half left...

I spoke to a Rheumatologist today. I’ve been in Pred more than 4 years every tim...

Estellemac

•4 years ago

18 Replies

Blood results

My most recent bloods show Hba1 c now 40 from 42 yay but I have v mild Hypercalcaemia level is 2.62 upper limit is 2.60 so only just over-had PMR since May...

My most recent bloods show Hba1 c now 40 from 42 yay but I have v mild Hypercalc...

bakingD

•4 years ago

14 Replies

End of PMR any suggestions

I wanted to ask everyone a question I was diagnosed with PMR in December 2018. I am no taking .5 mg prednisone and next week I will go off prednisone...

I wanted to ask everyone a question I was diagnosed with PMR in December 2018. I...

jensen0518

•4 years ago

25 Replies

Rapid weight gain and failure to lose it on 3mg of pred.

Hi- I hope someone may help- about 18 months ago I started putting on weight at 3 pound a day- it went onto half stone then 1 and 2 and now 3 stone later. It...

Hi- I hope someone may help- about 18 months ago I started putting on weight at ...

friz42

•4 years ago

5 Replies

Alendronic acid

Hi, I've been on pred 4 yrs almost now. Currently on 3mg. Mum has had PMR for years and her oesophagus is shot to pieces. She is 91 but struggles hugely with...

Hi, I've been on pred 4 yrs almost now. Currently on 3mg. Mum has had PMR for ye...

JudithWarrior

•4 years ago

14 Replies

Pmr

I has pmr quite a few years ago and during lockdown has appeared again. Dr has said to take steroids but to date I have had no blood test to confirm if it has...

I has pmr quite a few years ago and during lockdown has appeared again. Dr has s...

diduck

•4 years ago

18 Replies

Etanercept - anyone tried it?

I was diagnosed with PMR 4 years ago and have been travelling a rocky road ever since. I go through phases of being well and then something kicks off. Many of...

I was diagnosed with PMR 4 years ago and have been travelling a rocky road ever ...

Lochy

•4 years ago

28 Replies

Dreadful Pain

I have been pain free for two weeks since being diagnosed and on 20mg of Pred per day. This morning I woke up with a stiff knee which has gradually got worse...

I have been pain free for two weeks since being diagnosed and on 20mg of Pred pe...

jaybee58

•4 years ago

13 Replies

Alendronic Acid

Had a fall at the weekend resulting in a broken wrist. It is an uncomplicated fracture but I have a feeling that the Rhumatologist will try to put me on...

Had a fall at the weekend resulting in a broken wrist. It is an uncomplicated fr...

jaycee444

•4 years ago

35 Replies

Does anyone experience this type of pain?

Has anyone ever had pelvic, vaginal pain? Have been on predisone for almost two years. Pain usually moves, but this is weird and really hurts. Don't know if...

Has anyone ever had pelvic, vaginal pain? Have been on predisone for almost two...

greenbayroad

•4 years ago

14 Replies

Hurting worse than ever.

The rheumatologist and my primary care doctor both agreed that I should see a physiatrist. I had 2 MRIs, X-rays of my neck and lower back and bloodwork. I have...

The rheumatologist and my primary care doctor both agreed that I should see a ph...

Lanakay

•4 years ago

2 Replies

Link to recording of Sara Muller's webinar

For those of you unable to attend Sara's webinar this morning or even if you'd like to watch it again, here's the link...

For those of you unable to attend Sara's webinar this morning or even if you'd l...

Fran_Benson

Partner•4 years ago

6 Replies

Tired very

Hi all just asking Yesterday was emotional and iron andrenalin rush call to say no fell get to her within five mins she had broken her hip after xrays and they...

Hi all just asking Yesterday was emotional and iron andrenalin rush call to say ...

Sasol

•4 years ago

13 Replies

Axcillary artery

Watched last weeks webinar as couldn’t get on to today’s - now I am worried my frozen shoulder is axcillary artery - GCA - wouldn’t I have headache, blurred...

Watched last weeks webinar as couldn’t get on to today’s - now I am worried my f...

Daffodilia

•4 years ago

4 Replies

Stuff fingers now I’m off pred.

I finally came off Pred sometime in May. I had been reducing very slowly but finished quite quickly because I wanted less complications if I had to face...

I finally came off Pred sometime in May. I had been reducing very slowly but fin...

queenhermione

•4 years ago

7 Replies

Talk on pmr

Tried to get link to talk on PMR today without success

Daffodilia

•4 years ago

7 Replies

New to this

Hi am Mary live in St Helen's, work in the NHS, feel I am constantly struggling with PMR and can relate to so many people on here

Hi am Mary live in St Helen's, work in the NHS, feel I am constantly struggling ...

Maz55

•4 years ago

20 Replies

Anyone Diagnosed with GCA under the age of 50?

I’m curious to know if anyone here was diagnosed with GCA under the age of 50. I’ve had this concern in the past that I have it. I had a c reactive protein...

I’m curious to know if anyone here was diagnosed with GCA under the age of 50. ...

PMRdaughter

•4 years ago

8 Replies

Hamstring injury

Oh no! Just went for an evening walk and have pulled my hamstring! Took ages to limp home! Will it take ages to heal? I'm icing it now. Argh!

Oh no! Just went for an evening walk and have pulled my hamstring! Took ages to ...

Blossom20

•4 years ago

9 Replies

Flare up's and how long

Hi all just a quick question I have had PMR for 11 month now and have been able to slowly taper down my Pred. I think I am experiencing a flare up, as my upper...

Hi all just a quick question I have had PMR for 11 month now and have been able ...

Yogurt55

•4 years ago

4 Replies

Still suffering - update

I’m feeling a lot better. Started taking pred before I go to bed and side effects are much reduced by morning - I would say reduced by 70% by the time I get...

I’m feeling a lot better. Started taking pred before I go to bed and side effect...

jessiem

•4 years ago

7 Replies

Pred dose advice

Hi all, It’s me again! I recently had a flare up after reducing from 10mg down to 9 mg which I then got under control by going up by 5mg for a week and then...

Hi all, It’s me again! I recently had a flare up after reducing from 10mg down...

Leepeelee

•4 years ago

6 Replies

Hot feet

Morning all Happy Father’s Day in the uk, I have a question about feet, the other day I did some exercise I swam for 40 minutes then had two short walks, (...

Morning all Happy Father’s Day in the uk, I have a question about feet, the o...

carolBF

•4 years ago

8 Replies

What is it

I woke up this morning with severe pain in both shoulders,the kind of pain that I experienced right at the start but not had since.In fact the only pain of any...

I woke up this morning with severe pain in both shoulders,the kind of pain that ...

yorkieme

•4 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2020

Concerned and frustrated

HELP!

Neck discomfort

Q&A from Prof Dasgupta

Prednisilone not working

New to GCA...biopsy next week

Adrenal Insufficiency or Just PMR!!

Blood results

End of PMR any suggestions

Rapid weight gain and failure to lose it on 3mg of pred.

Alendronic acid

Pmr

Etanercept - anyone tried it?

Dreadful Pain

Alendronic Acid

Does anyone experience this type of pain?

Hurting worse than ever.

Link to recording of Sara Muller's webinar

Tired very

Axcillary artery

Stuff fingers now I’m off pred.

Talk on pmr

New to this

Anyone Diagnosed with GCA under the age of 50?

Hamstring injury

Flare up's and how long

Still suffering - update

Pred dose advice

Hot feet

What is it

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