Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2020

Transport to Hospital

My local hospital seems to have stopped doing blood tests, xrays etc. (I am very suspicious and think someone has plans for a housing estate). Has anyone any...

My local hospital seems to have stopped doing blood tests, xrays etc. (I am very...

piglette

•4 years ago

88 Replies

My thanks~~my hopes~!

As anyone who has read my posts before knows, like many who were fortunate enough to find this forum, when I found PMRGCuk....I'd gotten a diagnosis of GCA in...

As anyone who has read my posts before knows, like many who were fortunate enoug...

Grammy80

•4 years ago

23 Replies

CATARACT

Has anyone had cataract surgery while still on prednisone for GCA? I know I have a steroid induced cataract in one eye (the eye that I had temporary loss of...

Has anyone had cataract surgery while still on prednisone for GCA? I know I hav...

Pamk1949

•4 years ago

19 Replies

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Day to day living with GCA

Being new to all this way of life, I just have a couple of questions. What does it mean in day to day life to be immune suppressed? My doctor has told me to...

Being new to all this way of life, I just have a couple of questions. What does ...

Keeping_healthy

•4 years ago

24 Replies

A big Thank you to everyone for the support this forum provides

I would like to Thank everyone for taking the time to read and respond to posts, I've only been a member for 3 months but have found the knowledge and support...

I would like to Thank everyone for taking the time to read and respond to posts,...

Topcar

•4 years ago

7 Replies

What’s ultimately worse for your body: steroids or inflammation?

Which is worse for your body? Having mild inflammation and tolerable pain or a higher dose of steroids? In other words, I am keen to taper as much as possible....

Which is worse for your body? Having mild inflammation and tolerable pain or a h...

Fin70

•4 years ago

47 Replies

Up the Prednisolone?

Morning all. I'm 2 weeks into my latest taper and pain is returning beyond that of withdrawal symptoms so I'm considering going up again to the last dose. I'm...

Morning all. I'm 2 weeks into my latest taper and pain is returning beyond that ...

Coffeebeans

•4 years ago

8 Replies

Now down to 2.5mg pred

I was diagnosed in December 2018 with PMR. It’s been a bumpy journey but thankfully just over 18 months in I’m down to 2.5mg. Currently I’m symptom free and...

I was diagnosed in December 2018 with PMR. It’s been a bumpy journey but thankfu...

Mikeysaab

•4 years ago

11 Replies

Update on dizziness/fainting & arm pain

Now that I have a reference for comparison, I would choose higher dose prednisone. I'm currently on 8 mg & don't feel well. But it appears much of what ails...

Now that I have a reference for comparison, I would choose higher dose prednis...

Spanky2019

•4 years ago

5 Replies

Rheumatologist query

After reading that many of you have had rheumy contact, I'm posting to ask if anyone had any recommendations for a good one in the NW or NE of England? I am...

After reading that many of you have had rheumy contact, I'm posting to ask if an...

Burroughs123

•4 years ago

13 Replies

Just one more thing

Ok so I am almost hysterical about all the stuff keeps happening. I have a phone appointment with surgeon tomorrow for pre colonoscopy I think. My...

Ok so I am almost hysterical about all the stuff keeps happening. I have a phon...

Hidden

•4 years ago

12 Replies

Admin Post - Site Changes. Replies turned off.

Candy I fail to see how 2 part-time staff can manage the site as well as the Moderators have been doing for the past years. A site that has been a safe...

Candy I fail to see how 2 part-time staff can manage the site as well as the Mo...

jinasc

•4 years ago

74 Replies

Weird sensation in head

Can anyone give me any advice about strange sensations I am experiencing in my head

Can anyone give me any advice about strange sensations I am experiencing in my h...

Trish21

•4 years ago

5 Replies

Recently diagnosed with GCA

Hi everyone. It took me a couple of weeks to look at online sites as I was too scared as to what people’s experiences were, I didn’t want to read anything...

Hi everyone. It took me a couple of weeks to look at online sites as I was too s...

Keeping_healthy

•4 years ago

19 Replies

Admin changes

Dear all, We have been reflecting on how we run the PMRGCAuk HU forum in order that we can ensure that all of our members get the most out of the site, and...

Dear all, We have been reflecting on how we run the PMRGCAuk HU forum in order ...

Hidden

•4 years ago

Diagnosis Advice

Hi All, I joined this forum mid last year as I was struggling with some issues and thought PMR could possibly explain it. I did a lot of research here and then...

Hi All, I joined this forum mid last year as I was struggling with some issues a...

vosadrian

•4 years ago

6 Replies

Possible new GCA symptom?

When I started with GCA in 2017 I had the severe headaches and scalp tenderness, as well as the chronic fatigue and general unwellness. However I didn't have...

When I started with GCA in 2017 I had the severe headaches and scalp tenderness,...

Marijo1951

•4 years ago

20 Replies

Ouch...!

Been tapering (basically from 15 mg PMR dx Oct) - spent 4 weeks at 7.5 because had some neck/shoulder ache (site of my original discomfort). A week ago I felt...

Been tapering (basically from 15 mg PMR dx Oct) - spent 4 weeks at 7.5 because h...

kalimche

•4 years ago

18 Replies

Update on my GCA diagnosis

Hi everyone hope you're all keeping as well as possible during these strange times!! Today I finally had my first rheumatology appointment and I was dubious as...

Hi everyone hope you're all keeping as well as possible during these strange tim...

Topcar

•4 years ago

25 Replies

Thank you to all our volunteers

It's Volunteers Week and we want to thank all our volunteers who help make this charity what it is. We know there are many of you on here - whether you help...

It's Volunteers Week and we want to thank all our volunteers who help make this ...

Fran_Benson

Partner•4 years ago

11 Replies

12 months on Steroids & Methotrexate and still struggling with GCA

What experience do others have of Methotrexate? It was given to me when I was struggling to reduce my steroids from 30mg. Now after several months my steroids...

What experience do others have of Methotrexate? It was given to me when I was st...

Kailacobweb

•4 years ago

10 Replies

Is GCA affected by hot weather?

Morning everyone. I would appreciate thoughts and wisdom about a question that has arisen because of the hot weather. I was diagnosed with GCA in November...

Morning everyone. I would appreciate thoughts and wisdom about a question that ...

FnF36

•4 years ago

13 Replies

Interesting study and comments around PMRGCA and Adrenal Insufficiency

https://twitter.com/mdwarrington/status/1226184929756753921?s=21

Phoenix51

•4 years ago

7 Replies

Steroids and Essential Tremor

I have had Essential Tremor since I was 12 (am now 78) I have just started on steroids for possible Ploymyalgia. Does anyone know if this medication tends to...

I have had Essential Tremor since I was 12 (am now 78) I have just started on st...

Francesbarbara

•4 years ago

14 Replies

Anyone have covid?

I wonder if there is anyone of us in the PMR group who have been tested and know for certain, not just anecdotally, that he or she has had Covid-19....

I wonder if there is anyone of us in the PMR group who have been tested and kn...

yogabonnie

•4 years ago

16 Replies

Hair-loss and other side effects

Hello, This is my first input to this very helpful forum! I live in Switzerland but find your information so useful to complement what I read and what my...

Hello, This is my first input to this very helpful forum! I live in Switzerland ...

Laopdr

•4 years ago

14 Replies

Pred steroid med only option new to this nine months almost ten months

Thx for everyone’s replies regards messages I wasn’t sure how to thx again I see many of you talk about pred med steroid I tapered down after nine months but...

Thx for everyone’s replies regards messages I wasn’t sure how to thx again I see...

Sasol

•4 years ago

12 Replies

Missing my Daily Digest

I’m wondering why I haven’t received a Daily Digest since Saturday. Reading this is the first thing I do every morning. I sure do miss it!

I’m wondering why I haven’t received a Daily Digest since Saturday. Reading this...

Lanakay

•4 years ago

4 Replies

Milia?

Has anyone else with PMR developed a raised whitish facial cyst. I'm in self-isolation and have been aware of this for several months. A google search has...

Has anyone else with PMR developed a raised whitish facial cyst. I'm in self-i...

fitzida

•4 years ago

21 Replies

Send post to others ?

Trying to send msg but ask fir someone username

Sasol

•4 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2020

Transport to Hospital

My thanks~~my hopes~!

CATARACT

Day to day living with GCA

A big Thank you to everyone for the support this forum provides

What’s ultimately worse for your body: steroids or inflammation?

Up the Prednisolone?

Now down to 2.5mg pred

Update on dizziness/fainting & arm pain

Rheumatologist query

Just one more thing

Admin Post - Site Changes. Replies turned off.

Weird sensation in head

Recently diagnosed with GCA

Admin changes

Diagnosis Advice

Possible new GCA symptom?

Ouch...!

Update on my GCA diagnosis

Thank you to all our volunteers

12 months on Steroids & Methotrexate and still struggling with GCA

Is GCA affected by hot weather?

Interesting study and comments around PMRGCA and Adrenal Insufficiency

Steroids and Essential Tremor

Anyone have covid?

Hair-loss and other side effects

Pred steroid med only option new to this nine months almost ten months

Missing my Daily Digest

Milia?

Send post to others ?

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