Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2020

Osteoporosis treatments

Alendronic Acid bluefish treatment for osteoporosis side effects and medication

Alendronic Acid bluefish treatment for osteoporosis side effects and medication ...

Sam041155

•4 years ago

2 Replies

Travel insurance

Has anyone else found reasonably priced travel insurance? My quotes since reaching 73 and listing polymyalgia are sky high. More than the cost of a flight to...

Has anyone else found reasonably priced travel insurance? My quotes since reachi...

Thelmarina

•4 years ago

9 Replies

After another opinion from the experts here ...

Don’t know if you remember that I recently had my second flare in succession and took myself back up to 15mgs pred from 6.5mgs, with a CRP of 96 and ESR of 65....

Don’t know if you remember that I recently had my second flare in succession and...

LemonZest11

•4 years ago

42 Replies

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Positive progress

My journey so far. 79 yo male diagnosed with PMR October 2018. 15mg pred worked its miracle and have been symptom free since. Steady slow taper (despite mild...

My journey so far. 79 yo male diagnosed with PMR October 2018. 15mg pred worked ...

squashie

•4 years ago

8 Replies

Are draining skin tears on the leg common too?

I've been wearing support hose because I have started to have some fluid retention in my legs. I don't mean colossal swelling, I have some varicose veins,...

I've been wearing support hose because I have started to have some fluid retenti...

Grammy80

•4 years ago

18 Replies

Compromised imune system and Coronavirus

I have been treated for PMR for the last 20 months by taking steroids (prednisolone) and therefore have a compromised imune system. I am male and 76 years...

I have been treated for PMR for the last 20 months by taking steroids (predniso...

apttony

•4 years ago

23 Replies

Update on grief over friend and pain when tapering

Hello everyone, I can’t thank you enough for your wonderful encouraging responses to my post and all the practical advice. I was in a quandary and...

Hello everyone, I can’t thank you enough for your wonderful encouraging resp...

Mstiles

•4 years ago

17 Replies

Dorothy Byrne Trustee R4 Desert Island Discs

https://www.bbc.co.uk/sounds/play/m000fx1k This is Dorothy Byrnes Podcast Desert Island Discs Sunday 2nd March Dorothy Byrne is Head of News and Current...

https://www.bbc.co.uk/sounds/play/m000fx1k This is Dorothy Byrnes Podcast Dese...

Estellemac

•4 years ago

5 Replies

Caronavirus and PMR

Are PMR patients more at risk from coronavirus than others

Lakesider

•4 years ago

18 Replies

Grapefruit

On Saturday morning I unwittingly ate grapefruit marmalade for breakfast. At the moment I am in remission from GCA and not on predisolone. All weekend my...

On Saturday morning I unwittingly ate grapefruit marmalade for breakfast. At the...

prunus

•4 years ago

9 Replies

Sober and qualified advice on treatment in the event of Covid-19 infection.

I decided to start a new thread on Covid-19 specifically to ask for suitably qualified professional advice for us all in the event that we believe we may have...

I decided to start a new thread on Covid-19 specifically to ask for suitably qua...

Dasein

•4 years ago

6 Replies

Help! Please share Dorothy's GCA article in the Guardian

Dear HealthUnlocked members, hopefully you have seen the article written by our vice-chair, Dorothy Byrne, which appeared in the Guardian yesterday:...

Dear HealthUnlocked members, hopefully you have seen the article written by our ...

Fran_Benson

Partner•4 years ago

5 Replies

Coronavirus

Hi All I’m very troubled but not quite panicking. I’ve been on steroids for 6 years for PMR. I’ve been on 5mg for a couple of years - it’s too low a dose but...

Hi All I’m very troubled but not quite panicking. I’ve been on steroids for 6 ye...

susanspurs

•4 years ago

15 Replies

Corona virus: VasculitisUK's advice

This link has been posted on the VasculitisUK's forum today: https://www.vasculitis.org.uk/uncategorised/coronavirus-covid-19 It is written in sensible and...

This link has been posted on the VasculitisUK's forum today: https://www.vasculi...

PMRpro

Ambassador•4 years ago

62 Replies

Phantosmia help

Hi all I've joined this forum on behalf of my mum ... She won't do these herself because I think she just gets to upset half the time . But she's had no...

Hi all I've joined this forum on behalf of my mum ... She won't do these herse...

Bubble-ml

•4 years ago

10 Replies

GCA help & advice for my mum .

Hi All Lovely to read all your posts . I've just joined this forum in need of some help for my 72 yr old mum : ( I'm getting worried so much for her now...

Hi All Lovely to read all your posts . I've just joined this forum in need of ...

Bubble-ml

•4 years ago

45 Replies

Flair not fall ....

I have been to my GP who says my hip is bursitis type pain. I kept thinking everything hurt from my fall but when I did the math it has been months. So I...

I have been to my GP who says my hip is bursitis type pain. I kept thinking eve...

Hidden

•4 years ago

20 Replies

PMR and Covid19

Anyone with any understanding of likely interactions? As I am also on MTX (Methotrexate), an immunosupressant, I wonder if I am more at risk or less at risk...

Anyone with any understanding of likely interactions? As I am also on MTX (Metho...

ignatz

•4 years ago

25 Replies

More from Dorothy Byrne....

She’s followed up DID with an article in the Guardian about GCA this evening. 👍...

Highlandtiger

•4 years ago

22 Replies

MTX stopped

Anyone else decided that they have had enough of being nauseous for 4-5 days after each MTX? Then, of course, there were the endless infections to cope with...

Anyone else decided that they have had enough of being nauseous for 4-5 days aft...

Nagswoman

•4 years ago

17 Replies

At last Low Carbs!

Finally I have decided to add in Low/No Carbs, Keto to our Intermittent Fasting regime. I do hope it works. We've been doing it since since Thursday and so far...

Finally I have decided to add in Low/No Carbs, Keto to our Intermittent Fasting ...

IdasMum

•4 years ago

22 Replies

Change is the only constant in life

"Change is the only constant thing in this world. Just like seasons, life and people changes too. You get things the way you like it and then something beyond...

"Change is the only constant thing in this world. Just like seasons, life and pe...

PMRpro

Ambassador•4 years ago

15 Replies

How do/did you feel with pmr and gca?....... I felt I'd aged....

Jinasc linked to this research yesterday within a post. Given that a few new members have joined since Xmas, I thought I would post the research article as it...

Jinasc linked to this research yesterday within a post. Given that a few new mem...

Hidden

•4 years ago

102 Replies

PMR vs CFS Flare

I was diagnosed with PMR on December 12, 2019 and started on 10 mgs daily. I have also suffered from first, fibromyalgia (20 yrs) and then Chronic Fatigue...

I was diagnosed with PMR on December 12, 2019 and started on 10 mgs daily. I hav...

bunch1974

•4 years ago

14 Replies

1 month off Prednisone

Greetings, I am celebrating my first month anniversary off Prednisone. It has been a good month. My walking is not good but I hope to start walking outdoors...

Greetings, I am celebrating my first month anniversary off Prednisone. It has b...

Gary1310

•4 years ago

29 Replies

Dorothy Byrne on Desert Island Discs

I just listened - fascinating on her life and interesting quirky choices, also very funny backhanded compliment to Melvyn Bragg! Most importantly she raised...

I just listened - fascinating on her life and interesting quirky choices, also v...

Marijo1951

•4 years ago

25 Replies

Esomeprazole after 14 days?!

I’m a bit confused by the advice on Nexium / Guardium / esomeprazole. It says you should consult your doctor if your symptoms do not improve or worsen after...

I’m a bit confused by the advice on Nexium / Guardium / esomeprazole. It says y...

Stephenjjohnson1978

•4 years ago

9 Replies

Pain when walkkng

Hi, i hope someone can help.in the last 5 weeks i get excruciating pain in my lower back, thighs, occasionally my left knee ,i am trying to taper the steroids...

Hi, i hope someone can help.in the last 5 weeks i get excruciating pain in my l...

Scotty7

•4 years ago

24 Replies

Up the Prednisone ladder, and down again.

With support and suggestions from this site I went up from my 9mg Pred dose to 11mg as I wasn't doing well. (I'm using my Dorset Lady's Slow Taper.) I stayed...

With support and suggestions from this site I went up from my 9mg Pred dose to 1...

HelenDaisy

•4 years ago

2 Replies

Flare after Pred?

I’ve happily been off Pred for 8 months now and life (and weight) back to normal. However having just come back after 3 months in very hot Oz to very cold...

I’ve happily been off Pred for 8 months now and life (and weight) back to normal...

kezzybabes

•4 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

Osteoporosis treatments

Travel insurance

After another opinion from the experts here ...

Positive progress

Are draining skin tears on the leg common too?

Compromised imune system and Coronavirus

Update on grief over friend and pain when tapering

Dorothy Byrne Trustee R4 Desert Island Discs

Caronavirus and PMR

Grapefruit

Sober and qualified advice on treatment in the event of Covid-19 infection.

Help! Please share Dorothy's GCA article in the Guardian

Coronavirus

Corona virus: VasculitisUK's advice

Phantosmia help

GCA help & advice for my mum .

Flair not fall ....

PMR and Covid19

More from Dorothy Byrne....

MTX stopped

At last Low Carbs!

Change is the only constant in life

How do/did you feel with pmr and gca?....... I felt I'd aged....

PMR vs CFS Flare

1 month off Prednisone

Dorothy Byrne on Desert Island Discs

Esomeprazole after 14 days?!

Pain when walkkng

Up the Prednisone ladder, and down again.

Flare after Pred?

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