Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for March 2020

Reducing Prednisolone

I have had PMR for 2 years. Am taking 3mg peed after dancing back and forth between dosages. I have liveable discomfort in shoulders, neck and back, with the...

I have had PMR for 2 years. Am taking 3mg peed after dancing back and forth betw...

Hidden

•4 years ago

11 Replies

China Approves Use of Actemra in Battle Against Coronavirus Complications.

I thought the forum might find this interesting. https://www.nytimes.com/reuters/2020/03/04/world/europe/04reuters-health-coronavirus-china-roche-hldg.html

I thought the forum might find this interesting. https://www.nytimes.com/reuters...

cdenoncourt

•4 years ago

8 Replies

You're not sick. You're not old.

Discussion re C virus and vulnerability yesterday with my cleaner. Pushed my buttons I'm sad to say. I didn't rant but felt upset that she just grinned as if...

Discussion re C virus and vulnerability yesterday with my cleaner. Pushed my bu...

IdasMum

•4 years ago

28 Replies

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Corona virus and PMR risk

What complications would I have with corona virus while suffering pmr taking 6 mg of steroid

What complications would I have with corona virus while suffering pmr taking 6 m...

B4lamb

•4 years ago

14 Replies

Tapering schedule from my rheumatologist????

So yesterday I picked up a script of prednisone. The instructions said to take 10ml one even days and 15ml on odd days. Where did my rheumatologist get that...

So yesterday I picked up a script of prednisone. The instructions said to take 1...

singingloud

•4 years ago

11 Replies

Tapering

Hi I'm trying to taper from 12/11 before Christmas I had a bad flare I was down to 9mg but had to go up to 12mg, this is going into my third week I'm so tired...

Hi I'm trying to taper from 12/11 before Christmas I had a bad flare I was down...

Sailormo

•4 years ago

9 Replies

The onward journey

After spending six years reducing preds due to polymyalga and finally being off them for a quite a while and having several fractures the latest compression...

After spending six years reducing preds due to polymyalga and finally being off...

di-bach

•4 years ago

4 Replies

It's official...

the results of my independent, and totally unscientific test results are in! I have been trying to figure out why I've started getting those big, ugly, blood,...

the results of my independent, and totally unscientific test results are in! I ...

Hidden

•4 years ago

39 Replies

T-11 fracture! No wonder it hurts!

Yesterday, my husband drove me three hours roundtrip to see new rheumatologist (useless) and my pain specialist of several years (always helpful). Later...

Yesterday, my husband drove me three hours roundtrip to see new rheumatologist (...

Anniegal

•4 years ago

27 Replies

Undifferentiated Connective Tissue Disease vs PMR

In December after months of weak thigh muscles and pain in shoulders, upper arms and fatigue I saw my general practitioner. She ran tests that suggested PMR. I...

In December after months of weak thigh muscles and pain in shoulders, upper arms...

bunch1974

•4 years ago

3 Replies

Harlow Meet Up Group

Our next meeting is on Monday 9th March 1230 until 1400, or the tea and coffee runs out! Venue: Redeemer Lutheran Church, Bush Fair, 22 Tawneys Road, Harlow,...

Our next meeting is on Monday 9th March 1230 until 1400, or the tea and coffee r...

Roy46

•4 years ago

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GCA scalp symptoms

Has anyone with GCA experienced an itchy scalp? I know tender scalp is a recognised symptom and mine is much less tender since starting Prednisolone but is now...

Has anyone with GCA experienced an itchy scalp? I know tender scalp is a recogni...

fishers63

•4 years ago

9 Replies

Confused again

Just thought I’d give an update on my pain and tiredness after tapering my prednisone to 4.5. Before this forum I would have panicked and just upped the...

Just thought I’d give an update on my pain and tiredness after tapering my predn...

Blackcatlover

•4 years ago

17 Replies

Article in Times 2 today

In response to my earlier post... Note from PMRpro: For those of you who can't read it, here is the relevant text from about halfway down the first column:...

In response to my earlier post... Note from PMRpro: For those of you who can't ...

braininjurythepits

•4 years ago

55 Replies

One sided PMR?!

I have had PMR for almost 4 years. I would say I started with the classic symptoms listed on medical sites.....sudden onset pain in hips shortly followed by...

I have had PMR for almost 4 years. I would say I started with the classic sympto...

Orpheus82

•4 years ago

13 Replies

A note on pain

If you’re looking for a good description of how it feels to have undiagnosed PMR, look no further than Deborah Ross’s column in Times2 today — so familiar, and...

If you’re looking for a good description of how it feels to have undiagnosed PMR...

braininjurythepits

•4 years ago

3 Replies

Leg compression & protection from tears

I'm in my second Unna Boot for skin tears to facilitate healing and add compression to enhance blood flow. The doctor had recommended this now since I have...

I'm in my second Unna Boot for skin tears to facilitate healing and add compress...

Grammy80

•4 years ago

19 Replies

Alternative therapies: what I've learned

I've been on the PMR journey since 2014, and the pred episode since 2015. In that time I've also had an osteoporosis scare. Those interested in what I did...

I've been on the PMR journey since 2014, and the pred episode since 2015. In th...

HeronNS

•4 years ago

57 Replies

Flare

Am doing slow taper and just got to 4&1/2. My neck is hurting dreadfully. Is this a flare or steroid withdrawal?

Am doing slow taper and just got to 4&1/2. My neck is hurting dreadfully. Is thi...

Robinsnest72

•4 years ago

9 Replies

EYE Injection

L am having injections for wet macular ,L did have 9 of Lucentis but now i am having Austin .Does any one know which is best .I went to doctor to day he said...

L am having injections for wet macular ,L did have 9 of Lucentis but now i am ...

ballyboy

•4 years ago

7 Replies

GCA or not update 2

I had an appointment with Rhuem Consultant just over a week ago and he believes that I do not have GCA. The 2 main reasons are a negative biopsy and that I...

I had an appointment with Rhuem Consultant just over a week ago and he believes ...

Marlenec

•4 years ago

29 Replies

Has anyone been diagnosed with Lymphoma?

Everything was going ok until my blood test last week. My numbers for crp and esr were good but I now have Lymphomatitis. I am having another blood test in...

Everything was going ok until my blood test last week. My numbers for crp and ...

shazstep

•4 years ago

9 Replies

Disappointed

Been to see my GP this morning. Back in September last year a different GP diagnosed me with PMR and possible GCA. I’ve been on 30mg pred most of the time...

Been to see my GP this morning. Back in September last year a different GP diagn...

Dee02

•4 years ago

53 Replies

Confused

Feeling anxious! Just tapered from 5mg of prednisone to 4.5mg of prednisone using the DSNS method. Have not felt well for two days. Headache and arm pain....

Feeling anxious! Just tapered from 5mg of prednisone to 4.5mg of prednisone usin...

Blackcatlover

•4 years ago

18 Replies

EYE INJECTION

HI ALLi am back again been to hospital yesterday bad news injections doing no good .I have to have 5 more of a different type has any on had that .o and by the...

HI ALLi am back again been to hospital yesterday bad news injections doing no go...

ballyboy

•4 years ago

3 Replies

So glad I found this group!

I already feel less alone, having found this group. Diagnosed with PMR in June, after months of pain, a misdiagnosis, etc. Can't seem to get below 7 mg...

I already feel less alone, having found this group. Diagnosed with PMR in June,...

msdale

•4 years ago

13 Replies

Prednisone tapering

Hi! Could someone please post the prednisone tapering method? Thank you so much!

Hi! Could someone please post the prednisone tapering method? Thank you so much!...

Joy713

•4 years ago

7 Replies

Coronavirus and contact with children

I am sure I read somewhere that people in risk groups should avoid contact with children but now I can't find it. I usually look after my 10 yr old grandson on...

I am sure I read somewhere that people in risk groups should avoid contact with ...

maria40

•4 years ago

29 Replies

Just a tad discouraged

I have Polymyalgia and GCA.I really should not complain as I am pain free and actually feel very well . However as I decrease my Prednisone my CRP keeps...

I have Polymyalgia and GCA.I really should not complain as I am pain free and ac...

Darcy2000

•4 years ago

4 Replies

Coronavirus (COVID-19) - Read the facts

There is understandably a lot of concern about the coronavirus (COVID-19) and it's quite natural for people to want to read and follow all the media stories....

There is understandably a lot of concern about the coronavirus (COVID-19) and it...

Fran_Benson

Partner•4 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

Reducing Prednisolone

China Approves Use of Actemra in Battle Against Coronavirus Complications.

You're not sick. You're not old.

Corona virus and PMR risk

Tapering schedule from my rheumatologist????

Tapering

The onward journey

It's official...

T-11 fracture! No wonder it hurts!

Undifferentiated Connective Tissue Disease vs PMR

Harlow Meet Up Group

GCA scalp symptoms

Confused again

Article in Times 2 today

One sided PMR?!

A note on pain

Leg compression & protection from tears

Alternative therapies: what I've learned

Flare

EYE Injection

GCA or not update 2

Has anyone been diagnosed with Lymphoma?

Disappointed

Confused

EYE INJECTION

So glad I found this group!

Prednisone tapering

Coronavirus and contact with children

Just a tad discouraged

Coronavirus (COVID-19) - Read the facts

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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