Phantosmia help : Hi all I've joined this forum... - PMRGCAuk

PMRGCAuk

20,342 members38,113 posts

Phantosmia help

Bubble-ml profile image
10 Replies

Hi all

I've joined this forum on behalf of my mum ... She won't do these herself because I think she just gets to upset half the time .

But she's had no smell or tastebuds for a year now .

She's had tests and they can't find anything but reading on-line it seems to stem from some trauma ( mainly head ) of some sort ... ( sh had a really bad cold last summer )

She says the smell up her nose is absolutely vile ... I'm wondering if anyone has tried hypnosis to try trick the brain receptors In to functioning somehow ?

Has anyone tried it or can recommend a good hypnotherapist?

Thanks so much X

Written by
Bubble-ml profile image
Bubble-ml
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Constance13 profile image
Constance13

This really isn't the forum for you - it is mainly for PMR/GCA patients. We do have smell and taste issues but it is usually because of the cortisone (or something similar) that we are taking.

SnazzyD profile image
SnazzyD in reply to Constance13

She does have GCA. There is more detail in the post earlier this morning.

Constance13 profile image
Constance13 in reply to SnazzyD

Upps!

Bubble-ml profile image
Bubble-ml in reply to Constance13

Thanks Hun , yes she does have GCA ( for 4 years now ) and she is t getting any better ... And to add to it she now has this taste / smell thing x

Constance13 profile image
Constance13 in reply to Constance13

Sorry, didn't know your Mum had GCA!

Bubble-ml profile image
Bubble-ml in reply to Constance13

That's ok , not to worry ... I'm new to this forum so I posted for 2 different types of advice

PMRpro profile image
PMRproAmbassador

No-one could recommend anyone specific as we don't even know what country you are in?

Bubble-ml profile image
Bubble-ml in reply to PMRpro

U.K.

maria40 profile image
maria40

I lost my sense of smell and taste for almost two years after a very heavy cold, well before I had PMR or GCA. The residual taste and smell were disgusting ; I do sympathise with your mother. A friend who was an ENT specialist gave me series of tests smelling or trying to smell various things - one that I got a very faint whiff of was cinnamon and I was told that this was a positive indicator that smell and taste could come back although perhaps not for a while. Perhaps your mother could try this?

If, when, it does come back it's marvellous. I remember walking past a florist's shop and being almost in tears at the smell of roses. I do hope this happens for your mother.

Bubble-ml profile image
Bubble-ml in reply to maria40

Amazing .. I'm hopeful it will come back in time . Occasionally she does say " oh I can smell that " ! So that's good to hear , thank you

You may also like...

GCA, help... Pred not helping

something else even though I've had a positive biopsy and blood work. Feel like she has just hung...

Elimination diets, do they help PMR

would be really helpful to hear if anyone has had some success in reducing their discomfort and...

Help for these fingers and an angel drawing

I don’t have pain. My father had Dupuytren’s contracture but she doesn’t think it’s that....

Help me understand this? LOL

this. Feels like some kind of cold or sinus thing. Not surprising since my husband has had a bad...

low cortisol help please

Hi everyone I had a cortisol test recently and it measured 28, according to my rheumatologist it...