Phantosmia help : Hi all I've joined this forum... - PMRGCAuk

PMRGCAuk

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Phantosmia help

Bubble-ml profile image
10 Replies

Hi all

I've joined this forum on behalf of my mum ... She won't do these herself because I think she just gets to upset half the time .

But she's had no smell or tastebuds for a year now .

She's had tests and they can't find anything but reading on-line it seems to stem from some trauma ( mainly head ) of some sort ... ( sh had a really bad cold last summer )

She says the smell up her nose is absolutely vile ... I'm wondering if anyone has tried hypnosis to try trick the brain receptors In to functioning somehow ?

Has anyone tried it or can recommend a good hypnotherapist?

Thanks so much X

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10 Replies
Constance13 profile image
Constance13

This really isn't the forum for you - it is mainly for PMR/GCA patients. We do have smell and taste issues but it is usually because of the cortisone (or something similar) that we are taking.

SnazzyD profile image
SnazzyD in reply toConstance13

She does have GCA. There is more detail in the post earlier this morning.

Constance13 profile image
Constance13 in reply toSnazzyD

Upps!

Bubble-ml profile image
Bubble-ml in reply toConstance13

Thanks Hun , yes she does have GCA ( for 4 years now ) and she is t getting any better ... And to add to it she now has this taste / smell thing x

Constance13 profile image
Constance13 in reply toConstance13

Sorry, didn't know your Mum had GCA!

Bubble-ml profile image
Bubble-ml in reply toConstance13

That's ok , not to worry ... I'm new to this forum so I posted for 2 different types of advice

PMRpro profile image
PMRproAmbassador

No-one could recommend anyone specific as we don't even know what country you are in?

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Bubble-ml in reply toPMRpro

U.K.

maria40 profile image
maria40

I lost my sense of smell and taste for almost two years after a very heavy cold, well before I had PMR or GCA. The residual taste and smell were disgusting ; I do sympathise with your mother. A friend who was an ENT specialist gave me series of tests smelling or trying to smell various things - one that I got a very faint whiff of was cinnamon and I was told that this was a positive indicator that smell and taste could come back although perhaps not for a while. Perhaps your mother could try this?

If, when, it does come back it's marvellous. I remember walking past a florist's shop and being almost in tears at the smell of roses. I do hope this happens for your mother.

Bubble-ml profile image
Bubble-ml in reply tomaria40

Amazing .. I'm hopeful it will come back in time . Occasionally she does say " oh I can smell that " ! So that's good to hear , thank you

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