Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,500 members • 38,477 posts

All posts for February 2020

Tapering down off Prednisolone

Hi everyone, not posted in awhile. Hope everyone is doing okay. I'm at present on 4mgs tapering down and eventually hoping to come off. Had my adrenal glands...

Hi everyone, not posted in awhile. Hope everyone is doing okay. I'm at present o...

Dappa

•4 years ago

37 Replies

Status from my PMR (?) journey

As promised, here is the latest news. Last week I saw a dermatologist who specialises in connective tissue diseases. It was a professional connection of mine...

As promised, here is the latest news. Last week I saw a dermatologist who specia...

krillemy

•4 years ago

10 Replies

Steroids not working- still stiffness and pain

Steroids Ineffective My sister diagnosed with pmr 2 months ago after a virus and cough. 12.5 mg of steroids ineffective. Do you think she may need a higher...

Steroids Ineffective My sister diagnosed with pmr 2 months ago after a virus an...

Bearroxie

•4 years ago

15 Replies

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Thank you.

Just a thank you for all the information on this site. PMR is a puzzling condition and it is helpful reading about others who have this.

Just a thank you for all the information on this site. PMR is a puzzling condit...

Adults2Kids3

•4 years ago

2 Replies

Update on joint pain at 2.5mg

Hi All , I wrote last week about how my joint pain seemed to be getting worse especially in my sternum and across my left clavicle , those mainly but my knees...

Hi All , I wrote last week about how my joint pain seemed to be getting worse es...

Gaz227

•4 years ago

11 Replies

Back to psychologist

I was at doctor my new GP for a follow up on my femur pain knee and ankle. Well I had something new my ear is hurting and it happens on occasion when I...

I was at doctor my new GP for a follow up on my femur pain knee and ankle. Well...

Hidden

•4 years ago

16 Replies

Information please

Does Prednisone take all the pain away or does it just relieve symptoms?

PMRNewcomer

•4 years ago

50 Replies

GCA and visual disturbances

Hello, has anyone with GCA experienced visual disturbances for example shimmering bands of black and white light - I get short episodes of this from time to...

Hello, has anyone with GCA experienced visual disturbances for example shimmerin...

knitmaster

•4 years ago

24 Replies

Extreme nosebleed

Hi I was diagnosed with PMR at the end of September and started on 30 mg pred plus injection as my ESR was very high and rheumatologist concerned about GCA. I...

Hi I was diagnosed with PMR at the end of September and started on 30 mg pred pl...

Rutger-red

•4 years ago

6 Replies

GP on the ball

When to my GP on Friday for unrelated consultation and as I was feeling what I thought was A flare coming on asked his thoughts on increasing my pred from 8.5...

When to my GP on Friday for unrelated consultation and as I was feeling what I t...

Rosbud

•4 years ago

23 Replies

Finger / Thumb bruising.

Does anyone suffer from finger/thumb bruising? I watched my thumb turn rapidly purple a week ago with swelling..a few days later it died down..and today...

Does anyone suffer from finger/thumb bruising? I watched my thumb turn rapidly p...

Mellow-Yellow

•4 years ago

10 Replies

Dorothy Byrne on Radio 4

For UK members, Dorothy Byrne, head of Channel 4's news and current affairs is the guest on 'Desert Island Discs' next Sunday 1st March and the following...

For UK members, Dorothy Byrne, head of Channel 4's news and current affairs is t...

Marijo1951

•4 years ago

24 Replies

Tuesday - pancake day

All this talk of waffles, anyone got a good low carb pancake mix for next Tuesday please. Only one I can find is made with almond flour more like drop scones...

All this talk of waffles, anyone got a good low carb pancake mix for next Tuesda...

Dorsetgirl17

•4 years ago

57 Replies

A solution to a cause of PMR?

I'm in a PMR flare ., and I got my DNA tested. I have microbiome of which is highest in this bacteria.. it seems to me to be the cause of PMR for me. I tried...

I'm in a PMR flare ., and I got my DNA tested. I have microbiome of which is hig...

Jan_Noack

•4 years ago

12 Replies

Parker and M’Lady A Difficult Day

"Today was a Difficult Day," said Mi’Lady There was a pause. "Do you want to talk about it?" asked Parker "No," said M’Lady after a bit. "No, I don't think...

"Today was a Difficult Day," said Mi’Lady There was a pause. "Do you want to t...

Estellemac

•4 years ago

14 Replies

Prednisolone withdrawal

My doctor wants to take me down from 50mg to 35 I have been getting jaw pain.Would this be safe.I have very bad vision loss.Glaucoma I think.Very dizzy and on...

My doctor wants to take me down from 50mg to 35 I have been getting jaw pain.Wou...

Raewynne

•4 years ago

23 Replies

Best pillows for my aching neck?

Hello, just been diagnosed with GCA. Any suggestions as to most comfy pillows for back of neck pain? I can't get on with those hard ones in two horizontal...

Hello, just been diagnosed with GCA. Any suggestions as to most comfy pillows fo...

delta-dawn

•4 years ago

12 Replies

Is there a blood test~~pred withdrawal

hypothalamic-pituitary-adrenal-axis (HPAA) function....I have read a lot about this with Prednisone withdrawal. Is there a simple blood test to evaluate this?...

hypothalamic-pituitary-adrenal-axis (HPAA) function....I have read a lot about t...

Grammy80

•4 years ago

24 Replies

Synthasin test

What is the injection given during synthesin test

Tippit

•4 years ago

2 Replies

Chaffle

1 medium egg 1tbs ground almonds A quarter cup of finely grated cheddar Cook in waffle maker, makes one. Serving suggestion only. Appx150 calories 0 carbs

1 medium egg 1tbs ground almonds A quarter cup of finely grated cheddar Cook in ...

scats

•4 years ago

93 Replies

Low carb.....again.

In my never ending search for more low carb goodies to brighten my life I spend many an hour searching the web, there are numerous helpful sites and blogs....

In my never ending search for more low carb goodies to brighten my life I spend ...

scats

•4 years ago

85 Replies

Not sure if it is PMR now

I posted 9 days ago regarding shoulder/arm pain and stiffness. Briefly I was diagnosed with PMR in Dec 2016 and slowly reduced and stopped Oct 2019. First...

I posted 9 days ago regarding shoulder/arm pain and stiffness. Briefly I was dia...

Urtica

•4 years ago

10 Replies

tapentadol

After going up to 20ml of pred (once again ) with moderate relief my Dr suggested trying tapentadol to maybe help a little. Well I must say after maybe an hour...

After going up to 20ml of pred (once again ) with moderate relief my Dr suggeste...

groovyguy

•4 years ago

5 Replies

Knee problem linked to PMR?

Until a week ago I had been doing quite well and had tapered down to 5mg with no pain in all the usual places. Recent dexscan was normal and I was feeling...

Until a week ago I had been doing quite well and had tapered down to 5mg with no...

Mikeysaab

•4 years ago

26 Replies

Go to a higher dose for a few days?

I've tapered steadily to 9mg using Dorset Lady's taper since diagnosis in April 2019. For the last week I've been feeling rough for no real reason, but also...

I've tapered steadily to 9mg using Dorset Lady's taper since diagnosis in April ...

HelenDaisy

•4 years ago

20 Replies

Why take Vitamin K?

Hello all. Can anyone explain to me the reason for taking Vitamin K? I see it mentioned frequently on this and other forums but have never been advised to use...

Hello all. Can anyone explain to me the reason for taking Vitamin K? I see it me...

bright-horizon

•4 years ago

27 Replies

BI-Carb

Hi - I remember taht there was a post about research around bicarb possibly being helpfulf for PMR - I think for auto-immune diseases as well. Does anyone...

Hi - I remember taht there was a post about research around bicarb possibly bein...

Slosh

•4 years ago

5 Replies

Raynaud’s and GCA?

Has anyone experienced Raynaud’s in their fingers with GCA? I’ve had periodic episodes of Raynaud’s in my fingers over the years, but this week have had a...

Has anyone experienced Raynaud’s in their fingers with GCA? I’ve had periodic ep...

GratefulBailey

•4 years ago

6 Replies

Stenosis - Bad Pain Down Left Leg

Bad pain down left leg when standing or walking. GP and PT suspect stenosis - will confirm by MRI next week. I'm a 3 year PMR on dead slow tapering (4 and...

Bad pain down left leg when standing or walking. GP and PT suspect stenosis - wi...

skipspmr

•4 years ago

10 Replies

Dicky Heart Again!

Had another emergency admission with atrial flutter a week ago. This is the second one in three months. The paramedics wouldn't take me to the same hospital...

Had another emergency admission with atrial flutter a week ago. This is the seco...

Marilyn1959

•4 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Tapering down off Prednisolone

Status from my PMR (?) journey

Steroids not working- still stiffness and pain

Thank you.

Update on joint pain at 2.5mg

Back to psychologist

Information please

GCA and visual disturbances

Extreme nosebleed

GP on the ball

Finger / Thumb bruising.

Dorothy Byrne on Radio 4

Tuesday - pancake day

A solution to a cause of PMR?

Parker and M’Lady A Difficult Day

Prednisolone withdrawal

Best pillows for my aching neck?

Is there a blood test~~pred withdrawal

Synthasin test

Chaffle

Low carb.....again.

Not sure if it is PMR now

tapentadol

Knee problem linked to PMR?

Go to a higher dose for a few days?

Why take Vitamin K?

BI-Carb

Raynaud’s and GCA?

Stenosis - Bad Pain Down Left Leg

Dicky Heart Again!

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