Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,148 members•40,079 posts

All posts for February 2020

Blepharitis

Does anyone know about the connection between autoimmune disease and blepharitis? I have had eye inflamation for about four months now and it's getting worse....

Does anyone know about the connection between autoimmune disease and blepharitis...

maria40

•5 years ago

26 Replies

Elevated ESR & CRP

Started 50 mg in March/19 after GCA dx. Tapering has been going pretty well, with a few little hiccups along the way. In June had to increase pred from 25 up...

Started 50 mg in March/19 after GCA dx. Tapering has been going pretty well, wi...

pugrescue

•5 years ago

6 Replies

Tart cherry juice

Any opinion using this for PMR, as part of your diet?

Chevypickup

•5 years ago

7 Replies

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Methotrexate pill or injection ???

Does anyone have any suggestions re: Methotrexate pills as opposed to injection??? I started methotrexate 3 weeks ago and all seems a bit better, but the last...

Does anyone have any suggestions re: Methotrexate pills as opposed to injection?...

Musiclady18

•5 years ago

8 Replies

Another update on friend and tapering

Those of you who’ve read my earlier posts know I’ve been in one of those rough patches that we’re so familiar with. This one seems to be paralyzing me in...

Those of you who’ve read my earlier posts know I’ve been in one of those ro...

Mstiles

•5 years ago

36 Replies

Folic Acid mistake....oops

Last time I saw my doctor he prescribed me Folic Acid. I think he'd assumed my rheumy had prescribed it....she hadn't. So, new one on me, I picked some up and...

Last time I saw my doctor he prescribed me Folic Acid. I think he'd assumed my r...

IdasMum

•5 years ago

19 Replies

Medical alert bracelet

Many thanks to all who responded to my post about a medical alert bracelet. I've whittled it down to the mollymandy theidband.com company. I'll place an order...

Many thanks to all who responded to my post about a medical alert bracelet. I've...

Roy46

•5 years ago

3 Replies

I have to withhold my tocilizumab

I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to...

I was taken into hospital again with cellulitis on my leg put on intravenous ant...

Teekay2

•5 years ago

8 Replies

GP refuses to acknowledge I may have PMR, even though he first suggested it!

Starting 5 or 6 years ago I was increasingly suffering from stiff and painful joints after being inactive for a few minutes and more particularly in the...

Starting 5 or 6 years ago I was increasingly suffering from stiff and painful jo...

ShadowFx

•5 years ago

27 Replies

Gene associated with Autoimmune diseases

Sorry if this has already been posted, I hadn’t seen it. Hope for the (distant) future perhaps?...

Sorry if this has already been posted, I hadn’t seen it. Hope for the (distant) ...

Roltuba

•5 years ago

5 Replies

It's Back

After being healthy and having gone through PMR more than 10 years ago, it's back. Hopefully, the low and short term dose will do the trick. I was on it for...

After being healthy and having gone through PMR more than 10 years ago, it's bac...

Clammy65

•5 years ago

18 Replies

On the “horns of a dilemma” re Alendronic Acid 😳

Your thoughts/ experience would be welcome please. My situation: diagnosed with PMR Dec2019. Pred dose 15, increased to 17.5 for a couple of weeks, now...

Your thoughts/ experience would be welcome please. My situation: diagnosed with...

SurreyFlower

•5 years ago

12 Replies

Hairloss on pred

Hi all, I know I've talked about my hairloss before but just wondering how low on pred do you have to be before the hairloss stops, I'm down to 9mg now from 40...

Hi all, I know I've talked about my hairloss before but just wondering how low o...

Poppylop

•5 years ago

21 Replies

Has anyone’s PMR gone away ?

I am a super actuve 55 year old that was diagnosed last week... I just tried to exercise this week and feel it was not great I am going on a ski trip this...

I am a super actuve 55 year old that was diagnosed last week... I just tried t...

MRSKI

•5 years ago

24 Replies

Tocilizumab after 12 months

Hi interested in if anyone has been on tocilizumab for GCA and what has happened after the 12 months nice funding

Hi interested in if anyone has been on tocilizumab for GCA and what has happened...

Devoid

•5 years ago

14 Replies

PMR pain and prednisone

I am currently down to 10 mg prednisone, after starting at 60 in Sept. at time of PMR diagnosis. There has been some pain since 25 mg, but more than tolerable...

I am currently down to 10 mg prednisone, after starting at 60 in Sept. at time o...

OpieD

•5 years ago

3 Replies

Where do I go from Here?

Briefly, I was diagnosed with GCA in November 2018 and prescribed.40 mgms of Prednisolone by my GP and referred to the Rheumatology dept . All went steadily...

Briefly, I was diagnosed with GCA in November 2018 and prescribed.40 mgms of Pre...

Jane-s

•5 years ago

9 Replies

tapering down and had to go up again

Not sure how I should feel .Had PMR since May 2019 . Was at 20 mg. Gradually went down to 7mg for the month of January and got extremely stiff. thought I could...

Not sure how I should feel .Had PMR since May 2019 . Was at 20 mg. Gradually wen...

Paperroses

•5 years ago

9 Replies

Body has stopped producing cortisol hormone

having been on Pred for 6 years my body has stopped producing cortisol. I take 6mg of Pred each day and wonder about switching to hydrocortisone? Does anyone...

having been on Pred for 6 years my body has stopped producing cortisol. I take ...

tinwoman

•5 years ago

23 Replies

Blood pressure

I know this is a bit off topic but my blood pressure is 90/70 is that low enough to worry about? Just got back from doctor for a review, usual been on steroids...

I know this is a bit off topic but my blood pressure is 90/70 is that low enough...

1964-karina

•5 years ago

23 Replies

Lower immune system?

Maybe a silly question, but never the less, i,m going to ask. Does PMR, or even beeing on Pred, lower ones immune system? The reason for my question, is...

Maybe a silly question, but never the less, i,m going to ask. Does PMR, or even ...

Stifffingers

•5 years ago

9 Replies

Medical Alert Bracelet

I had a tag attached to my keys which said that I take steroids. The tag broke, so now I'm thinking about a wrist bracelet to tell medical staff etc that I'm...

I had a tag attached to my keys which said that I take steroids. The tag broke, ...

Roy46

•5 years ago

24 Replies

Ringing in my ears

I just had a half hour nap after lunch. Woke up with ringing in my ears. Been going on for an hour now. Is this prednisone related? GCA since October...

I just had a half hour nap after lunch. Woke up with ringing in my ears. Been ...

alvertta

•5 years ago

23 Replies

Prolia. Info please.

I was reading some posts on here...always informative and helpful...and discovered that the injection I was given of Prolia two months ago is not a straight...

I was reading some posts on here...always informative and helpful...and discover...

agingfeminist

•5 years ago

27 Replies

Completely at a loss

I have had PMR for 4 1/2 years now. Did get down to 1 mg per day back in October. In September I had a sudden onset of neck pain which would wake me up when I...

I have had PMR for 4 1/2 years now. Did get down to 1 mg per day back in October...

Fimckenz

•5 years ago

19 Replies

2.5mg joint pain getting worse

Hi All , I wrote on here a while back that I was down to 2.5mg , I stopped taking ranitidine for my stomach and that’s was fine on such a low dose of pred....

Hi All , I wrote on here a while back that I was down to 2.5mg , I stopped takin...

Gaz227

•5 years ago

18 Replies

No More Prednisone

I gained weight and subsequently became depressed ( this was scary stuff), had a stomach ache which was awful but was relieved by eating (more weight gain),...

I gained weight and subsequently became depressed ( this was scary stuff), had a...

Zafra

•5 years ago

18 Replies

Naproxen instead of Prednisolone

Has anyone else been told to come of steroids and take Naproxen instead? I have been told to reduce from 5mg to zero (4mg this week then 3 then 2 etc )and use...

Has anyone else been told to come of steroids and take Naproxen instead? I have ...

JanetT58

•5 years ago

55 Replies

Low-dose pred for osteoarthritis after PMS

I was diagnosed with PMR in November of 2017. Prednisone worked like magic to take away the pain, although I hated dealing with the side effects. This week,...

I was diagnosed with PMR in November of 2017. Prednisone worked like magic to t...

Moralis

•5 years ago

11 Replies

Prednisalone query.

Prednisalone induced myopathy. Knitterss thanks everyone for their very helpful replies.

Prednisalone induced myopathy. Knitterss thanks everyone for their very helpful ...

Knitterr

•5 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Blepharitis

Elevated ESR & CRP

Tart cherry juice

Methotrexate pill or injection ???

Another update on friend and tapering

Folic Acid mistake....oops

Medical alert bracelet

I have to withhold my tocilizumab

GP refuses to acknowledge I may have PMR, even though he first suggested it!

Gene associated with Autoimmune diseases

It's Back

On the “horns of a dilemma” re Alendronic Acid 😳

Hairloss on pred

Has anyone’s PMR gone away ?

Tocilizumab after 12 months

PMR pain and prednisone

Where do I go from Here?

tapering down and had to go up again

Body has stopped producing cortisol hormone

Blood pressure

Lower immune system?

Medical Alert Bracelet

Ringing in my ears

Prolia. Info please.

Completely at a loss

2.5mg joint pain getting worse

No More Prednisone

Naproxen instead of Prednisolone

Low-dose pred for osteoarthritis after PMS

Prednisalone query.

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