Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2020

Question about actemra

On 4th week (1 autoinject shot/ wk) of actemra. Treated for gca for nearly a year. I have other diseases including osteoporosis, multiple gastro problems....

On 4th week (1 autoinject shot/ wk) of actemra. Treated for gca for nearly a yea...

Spanky2019

•4 years ago

12 Replies

Corona and other nasties

All the publicity re corona has spooked me a bit, we are the ones at more risk, immunocompromised and elderly (me, that is). Am I over reacting declining an...

All the publicity re corona has spooked me a bit, we are the ones at more risk, ...

123mossie

•4 years ago

83 Replies

Up my dose?? for small surgery?

I just read that increasing prednisone is a good idea before a squamous cell skin cancer removal on my leg. Does anyone have any thoughts on upping my...

I just read that increasing prednisone is a good idea before a squamous cell ski...

yogabonnie

•4 years ago

10 Replies

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Diabetes drug may reduce harm of steroids

Just found this article about research of a drug to reduce the effects of steroids. This maybe the answer to our worry about the horrible side effects of...

Just found this article about research of a drug to reduce the effects of steroi...

KrisAnne51

•4 years ago

8 Replies

Wheening off Pred

I am getting closer to weening off Pred and my reumy told me about a speach on cortisone abstinence from an endochrinologist. He meantioned a period when you...

I am getting closer to weening off Pred and my reumy told me about a speach on c...

Pirnilla

•4 years ago

4 Replies

Split dose question

I am currently on 15mg pred, about to reduce to 12.5 (rheumy advise: rapid taper to help diagnosis ) I was having issues with returning Pmr Symptoms a few days...

I am currently on 15mg pred, about to reduce to 12.5 (rheumy advise: rapid taper...

Leepeelee

•4 years ago

10 Replies

Reducing

Think this was on before but not sure. I am presently reducing and have never really been totally pain free as I have arthritis. I am now at 4mg. Able to...

Think this was on before but not sure. I am presently reducing and have never re...

Robinsnest72

•4 years ago

4 Replies

Update “not sure if it is PMR“

Phoned for an appointment this morning, was told my GP on holiday so was given a slot with nice young (still training) GP. We decided as there had been slight...

Phoned for an appointment this morning, was told my GP on holiday so was given a...

Urtica

•4 years ago

13 Replies

B5 - how much?

I searched this morning and could not find the discussion about the value of B5 and, I think, B6, as one gets to the lower dosage of pred to give the adrenals...

I searched this morning and could not find the discussion about the value of B5 ...

clieder

•4 years ago

10 Replies

Diagnosis

Another question please. Has everyone on here been diagnosed through blood tests or is there another way. Reason I am asking is because I had two lots of blood...

Another question please. Has everyone on here been diagnosed through blood tests...

PMRNewcomer

•4 years ago

16 Replies

GCA-PMR awaiting biopsy

I started having left temporal headache and scalp tenderness a month or so ago. Spoke to my GP about it. ESR was 13 and CRP was slightly elevated at 0.98, so...

I started having left temporal headache and scalp tenderness a month or so ago. ...

Rv8apilot

•4 years ago

22 Replies

PMR or something else??? Please help!!

My mother has had PMR for over 2 years and has recently weaned off the steroids on drs orders. Blood tests show negative for PMR now. But she is experiencing...

My mother has had PMR for over 2 years and has recently weaned off the steroids ...

KaJoLe

•4 years ago

7 Replies

Adrenal Fatigue

I had a specialty lab test done through a holistic doc office. I saw one of the nurse practitioners and I was not given much help. My regular NP was away....

I had a specialty lab test done through a holistic doc office. I saw one of the...

Aleish

•4 years ago

39 Replies

Facial tingling and numbness

I was dx’d with PMR a year ago. Started at 20 mg prednisone. Increased to 60 in June 2019 due to suspected GCA. I have been titrating down slowly: 20-15-12.5...

I was dx’d with PMR a year ago. Started at 20 mg prednisone. Increased to 60 in ...

Anniegal

•4 years ago

16 Replies

The Good Doctor 👨‍⚕️ on Tele

Feacal Matter Transplants. blerrrgh! Poo may not be able tell your future health but it seems that ingesting others is good to gets rid off frequent UTI’s....

Feacal Matter Transplants. blerrrgh! Poo may not be able tell your future healt...

Estellemac

•4 years ago

11 Replies

Tremors

Tremors...does anyone on Pred suffer from slight tremors in arms/hands and jaw...even diaphragm?

Tremors...does anyone on Pred suffer from slight tremors in arms/hands and jaw.....

ian1951

•4 years ago

11 Replies

Tapering and Pain

HI I am new to this group. I'm writing for my husband who has PMR. He is down to 10 mg and has slight pain all the time. He is never pain free but it is...

HI I am new to this group. I'm writing for my husband who has PMR. He is down to...

rescuedogs

•4 years ago

28 Replies

Light headed ness/dizziness

Hi can anyone tell me if they suffered with the above when first starting on Pred. It maybe because last night I didn’t have a good night’s sleep so that could...

Hi can anyone tell me if they suffered with the above when first starting on Pre...

PMRNewcomer

•4 years ago

23 Replies

Fast taper and struggling

I'm writing this because I know you will all get it and I'm struggling- massively. I'm 46 and GP diagnosed PMR in January. Fast forward to rheumatology who...

I'm writing this because I know you will all get it and I'm struggling- massivel...

Coffeebeans

•4 years ago

75 Replies

Leg Hairs....

Another strange topic from me. On one side of my calf muscles I go bald grow hair back and then go bald again. It’s really weird.... Is it prednisolone...

Another strange topic from me. On one side of my calf muscles I go bald grow hai...

discoballs

•4 years ago

18 Replies

Tailing off prednisalone

Hi can someone point me in the right direction for a plan to tail of my prednisalone i remember seeing a really good phasing off plan but cant find it can...

Hi can someone point me in the right direction for a plan to tail of my prednisa...

Occhealth

•4 years ago

4 Replies

Weight loss and carbs for PMR

I’m looking for any advice or recommendations please for losing weight whilst on Predisnolone. I am currently slowly tapering from 15mg last July when first...

I’m looking for any advice or recommendations please for losing weight whilst on...

Ndnd

•4 years ago

11 Replies

Does anyone have Large Fiber Polyneuralgia?

18 months ago my rheumy's and Neurologist thought I had PMR/GCA. But I kept getting more symptoms. I just found out I have Large Fiber PolyNeuralgia.

18 months ago my rheumy's and Neurologist thought I had PMR/GCA. But I kept gett...

Pollymarierose19

•4 years ago

8 Replies

PMR

PMR can anyone tell me if this affects your eyesight or steroids does please? Maybe just a coincidence as turning 50 and I know your eye sight can alter x

PMR can anyone tell me if this affects your eyesight or steroids does please? Ma...

TMenz

•4 years ago

32 Replies

Pred withdrawal issue

Hi I had a big problem yesterday.Ihada flare up Of Temporal Arteritis.Jaw pain and Earpain.Interim Dr insisted I still lower fr ,50 to 35mg.i said NO I will...

Hi I had a big problem yesterday.Ihada flare up Of Temporal Arteritis.Jaw pain a...

Raewynne

•4 years ago

21 Replies

Mystery Needs Solving

Hi All, I have been suffering with PMR for about 2 1/2 years now - and think I can almost see the light at the end of the tunnel, having stabilised on 1.5 mg...

Hi All, I have been suffering with PMR for about 2 1/2 years now - and think I ...

Songbird69

•4 years ago

34 Replies

downsides of pred

I'm new to this forum - was diagnosed with GCA in January and went immediately on to 60 mg prednisolone. I'm now down to 20 mg , and am feeling much better,...

I'm new to this forum - was diagnosed with GCA in January and went immediately o...

Renaissance

•4 years ago

14 Replies

Still losing hair after stopping prednisolone tablets only four more prednisolone suppositories to go

Has anyone else continued to lose their hair after stopping prednisolone tablets I had intravenous prednisolone in hospital for ulcerative colitis and then 8...

Has anyone else continued to lose their hair after stopping prednisolone tablets...

Thebies

•4 years ago

6 Replies

GCA and Probiotics

GCA and Probiotics Any one any information on taking Probiotics with GCA, eith for or against.

GCA and Probiotics Any one any information on taking Probiotics with GCA, eith f...

tomh

•4 years ago

8 Replies

Is our Poo a Crystal Ball into our health destiny ? Auntie Bee did a little research to see if the truth is in our bowels.

After reading a post yesterday suggesting that using DNA or Gut Microflora testing may help me see into the Future of my long term health my curiosity was...

After reading a post yesterday suggesting that using DNA or Gut Microflora testi...

Blearyeyed

•4 years ago

94 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Question about actemra

Corona and other nasties

Up my dose?? for small surgery?

Diabetes drug may reduce harm of steroids

Wheening off Pred

Split dose question

Reducing

Update “not sure if it is PMR“

B5 - how much?

Diagnosis

GCA-PMR awaiting biopsy

PMR or something else??? Please help!!

Adrenal Fatigue

Facial tingling and numbness

The Good Doctor 👨‍⚕️ on Tele

Tremors

Tapering and Pain

Light headed ness/dizziness

Fast taper and struggling

Leg Hairs....

Tailing off prednisalone

Weight loss and carbs for PMR

Does anyone have Large Fiber Polyneuralgia?

PMR

Pred withdrawal issue

Mystery Needs Solving

downsides of pred

Still losing hair after stopping prednisolone tablets only four more prednisolone suppositories to go

GCA and Probiotics

Is our Poo a Crystal Ball into our health destiny ? Auntie Bee did a little research to see if the truth is in our bowels.

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