Extreme nosebleed: Hi I was diagnosed with PMR at... - PMRGCAuk

PMRGCAuk

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Extreme nosebleed

Rutger-red profile image
6 Replies

Hi

I was diagnosed with PMR at the end of September and started on 30 mg pred plus injection as my ESR was very high and rheumatologist concerned about GCA. I had instant relief from pain but then other problems set in due to adverse effects of pred which were quite unlike most people's i.e. I lost weight, BP dropped and was passing out. Pleased to say due to prompt NHS treatment and checks this has all been sorted and I'm now managing to taper and started on 7.5 this week although am beginning to have some pain albeit manageable.

The reason for my post is that I have noticed increased bruising and bleeding under the skin in the last few weeks and yesterday I had a massive nosebleed that lasted nearly 2 hours. I ended up phoning 999 and the paramedic I spoke to said I needed to get to hospital within the hour either by ambulance or own means. Fortunately the bleed stopped just in time. Phew!!!

I've read that steroids can cause epistaxis but would like to hear of other members' experiences.

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Rutger-red profile image
Rutger-red
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6 Replies
Blearyeyed profile image
Blearyeyed

I assume you still went to A and E?

If not , you need to get to out of hours to discuss what occurred yesterday or just go to the GP for an Emergency appointment when your surgery opens.

This could be anything and just because the bleeding has stopped doesn't mean that you no longer need treatment.

Do get an appointment and let us know how you get on

Rutger-red profile image
Rutger-red in reply to Blearyeyed

No I didn't go as could not face the long wait due to the usual Saturday afternoon sports injuries, having been there at this time before. I will phone my GP tomorrow and can usually get prompt appointment if I explain reason.

Thanks for your concern.

PMRpro profile image
PMRproAmbassador

I do bruise a bit but I do take anticoagulants as well - I do notice slight nosebleeds if I have a cold but never anything like that. Nor can I remember anyone mentioning it on the forums.

The problem now may be that that clot gets disturbed and you bleed again - I do hope not. If it does, I don't think it is unreasonable to get medical advice immediately. And your GP needs to know and possibly do some simple blood tests.

Rutger-red profile image
Rutger-red in reply to PMRpro

Many thanks for prompt response? Will contact GP asap.

PMRpro profile image
PMRproAmbassador in reply to Rutger-red

Do let us know how you get on - nosebleeds may not be dangerous but they are an utter pest!!!!

Theziggy profile image
Theziggy

My daughter (who does not have PMR) has to get her blood vessels in her nose cauterised as she had frequent nosebleeds. She hasn't had any since the operation.

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