Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,497 members • 38,469 posts

All posts for June 2019

igA vasculitis and PMR

My sweet 7 year old grandson has been hospitalized with complications ..bowel obstruction.. from ira vasculitis which I have read now is in the same family as...

My sweet 7 year old grandson has been hospitalized with complications ..bowel ob...

yogabonnie

•5 years ago

32 Replies

Could burning shoulders be something other than GCA PMR?

Stuck on 9mg prednisolone after 3 and a bit years. Azathioprine as steroid sparer. Rheumatologist always say shoulder pain is not the disease, has sent me for...

Stuck on 9mg prednisolone after 3 and a bit years. Azathioprine as steroid spare...

Cally55

•5 years ago

20 Replies

GCA - I am not going to apologise for this long post.

I replied to Davidcantswim post when he was on holiday in Cyprus, I came late to his post and was horrified to see that he had not gone to hospital, for all...

I replied to Davidcantswim post when he was on holiday in Cyprus, I came late ...

jinasc

•5 years ago

35 Replies

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Adcal-C and pill absorption

Thanks for all the contributions to this question. As there seems to be incomplete information about this I decided to go and ask a pharmacist I’ve known for...

Thanks for all the contributions to this question. As there seems to be incomple...

Roltuba

•5 years ago

13 Replies

GCA- saga

3 days of testing, OCT & can 't remember other test names. Hope blurred vision still could be from 60 mg pred. Could hardly do tests, so weak & can't...

3 days of testing, OCT & can 't remember other test names. Hope blurred vision ...

Spanky2019

•5 years ago

4 Replies

DXA scans

I have just read Healthworrier et al for the 7th. By coincidence I had just received my own results, having requested a copy from my Consultant's secretary. I...

I have just read Healthworrier et al for the 7th. By coincidence I had just rece...

prunus

•5 years ago

4 Replies

Not so. Happy anymore: sacral fractures

After weeks of buttock pain on one side, MRI shows bilateral insufficiency sacral fractures. What next? Now i have roaring belly from the Leflumonide? My...

After weeks of buttock pain on one side, MRI shows bilateral insufficiency sacra...

composition

•5 years ago

8 Replies

Back heat

I have been wondering if the heat on my back when I get up in the morning is a sign of inflammation. It does tend to go by midday after the steroids have...

I have been wondering if the heat on my back when I get up in the morning is a s...

Koalajane

•5 years ago

4 Replies

GCA treatment

https://www.google.com/amp/s/www.express.co.uk/life-style/health/947595/temporal-arteritis-giant-cell-treatment-breakthrough-drug-symptoms/amp I by accident,...

https://www.google.com/amp/s/www.express.co.uk/life-style/health/947595/temporal...

YuliK

•5 years ago

3 Replies

Flu Shot or Not?

I live in Perth, WA and we are experiencing a bad flu epidemic. I usually have a flu shot but haven’t had one since my PMR diagnosis last November after...

I live in Perth, WA and we are experiencing a bad flu epidemic. I usually have a...

JohnnyQ50

•5 years ago

12 Replies

Saga..... keep chugging along........🚂

Hello everyone!! Still on 30 mg - temple pain and eye pain has returned. Saw the optometrist yesterday - she said everything is fine - just like everyone else....

Hello everyone!! Still on 30 mg - temple pain and eye pain has returned. Saw the...

Kern1410

•5 years ago

19 Replies

wondering about extreme fatigue, wobbly legs, with PMR

I have just found this site and haven't explored it fully yet, but in particular I'm wondering if others with PMR diagnosis, on prednisone, are experiencing...

I have just found this site and haven't explored it fully yet, but in particular...

Tiredcat

•5 years ago

28 Replies

Harlow Me-Up Group

PMR and/or GCA? Come and join our small friendly Group next Monday at 1230 for a chat. We learn from each other on how to cope. Endless tea and coffee and home...

PMR and/or GCA? Come and join our small friendly Group next Monday at 1230 for a...

Roy46

•5 years ago

3 Replies

Update on sore hip

Saw the doctor this week who thinks my sore hip may be bursitis. Was sent for X-ray so awaiting results now.

Saw the doctor this week who thinks my sore hip may be bursitis. Was sent for X-...

Cyclegirl54

•5 years ago

23 Replies

Shortage of Prednisone in France

I have just read on another site that there is a shortage of supply in France and doctors are being told to limit the supply. Is this Europewide anyone know.

I have just read on another site that there is a shortage of supply in France an...

GlynisE

•5 years ago

6 Replies

Pred and Calcium thanks!

Thanks everyone. Heaven preserve us from unspecific information. Heard about the Thyroxine suggestion before but nothing on that leaflet either except “before...

Thanks everyone. Heaven preserve us from unspecific information. Heard about the...

Roltuba

•5 years ago

18 Replies

Feeling Grateful

I don't like having PMR..but there you go. No one wants to be ill. But, I'm feeling grateful that I could call my GP and see her the next day and get a blood...

I don't like having PMR..but there you go. No one wants to be ill. But, I'm fee...

Daisyfield

•5 years ago

80 Replies

PMR facial twitch ?

Hi I was diagnosed after 3 month of being crippled I was misdiagnosed I’m 53 female and started at 15mg prednisolone went up to 20mg Then tapered to 17.5 then...

Hi I was diagnosed after 3 month of being crippled I was misdiagnosed I’m 53 fem...

CSMM

•5 years ago

14 Replies

Pred and calcium tablets timing

I’ve recently changed the time of my Pred evening split dose to help with mornings. Have now been seeing remarks about separating time of Adcal from the Pred....

I’ve recently changed the time of my Pred evening split dose to help with mornin...

Roltuba

•5 years ago

18 Replies

4 First Cousins Diagnosed in a Year!

I was diagnosed with PMR in June 2018. Since then, 2 first cousins (women), one a retired doctor, and now my sister who is 7 years younger than me aged 65,...

I was diagnosed with PMR in June 2018. Since then, 2 first cousins (women), on...

Pmrmolly2018

•5 years ago

22 Replies

Going off prednisolone

After nearly five years on prednisolone for GCA I have been on 1mg for about 3 months plus Methotrexate. I saw the young registrar yesterday who said that, if...

After nearly five years on prednisolone for GCA I have been on 1mg for about 3 m...

PenelopeVita-Finzi

•5 years ago

13 Replies

Not sure if I’m connecting!

Have PMR. Weaned off Prednisone.

Heinrich7

•5 years ago

23 Replies

Doctor has dropped my pred 15mg to 2.5mg !

As above and he refuses to take note of the instructions given to me by my rheumatologist who dose not ever mention 2.5 and the lowest she states is 5mg but...

As above and he refuses to take note of the instructions given to me by my rheum...

iveco

•5 years ago

24 Replies

Scared

I'm too tired and upset at the moment. But its good to know I have somewhere I can talk about this.

I'm too tired and upset at the moment. But its good to know I have somewhere I c...

Quayside1

•5 years ago

27 Replies

surgery and actemra

I had a knee replacement 6 weeks ago. I discontinued my actemra for total of 5 weeks. Three weeks prior and 2 weeks after surgery. I had been on 6mg of...

I had a knee replacement 6 weeks ago. I discontinued my actemra for total of 5 ...

mngirl

•5 years ago

20 Replies

Really bad hunger attack...

I was getting these really bad hunger attacks since being on prednisone. I assume it is an insulin problem. Have had glucose checked and everything is fine....

I was getting these really bad hunger attacks since being on prednisone. I assum...

Linny3

•5 years ago

30 Replies

Osteoporosis

I have been taking pred since January and currently on 8mg. I have now had a dexa scan. I had to pay for it gp wouldn't send me for one. I have received the...

I have been taking pred since January and currently on 8mg. I have now had a dex...

Healthworrier

•5 years ago

15 Replies

More GCA treatment

High dose pred but still right eye socket pain & worsened blurriness in right eye. Dr ordered new labs. Labs were normal range just last week. Also. DR said to...

High dose pred but still right eye socket pain & worsened blurriness in right ey...

Spanky2019

•5 years ago

5 Replies

Dry eye syndrome

Hi everyone, my first post, I have been reading all your posts,replies ,avidly since I was diagnosed with PMR some 4 weeks ago.I think I had it for quite a...

Hi everyone, my first post, I have been reading all your posts,replies ,avidly s...

Croft9232

•5 years ago

27 Replies

Another D-Day commemoration - a story of hope

One date that we do know in this house is the commemeration of D-Day, June 6th. Twenty five years ago to day we had OUR personal D-Day when David was diagnosed...

One date that we do know in this house is the commemeration of D-Day, June 6th. ...

PMRpro

Ambassador•5 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2019

igA vasculitis and PMR

Could burning shoulders be something other than GCA PMR?

GCA - I am not going to apologise for this long post.

Adcal-C and pill absorption

GCA- saga

DXA scans

Not so. Happy anymore: sacral fractures

Back heat

GCA treatment

Flu Shot or Not?

Saga..... keep chugging along........🚂

wondering about extreme fatigue, wobbly legs, with PMR

Harlow Me-Up Group

Update on sore hip

Shortage of Prednisone in France

Pred and Calcium thanks!

Feeling Grateful

PMR facial twitch ?

Pred and calcium tablets timing

4 First Cousins Diagnosed in a Year!

Going off prednisolone

Not sure if I’m connecting!

Doctor has dropped my pred 15mg to 2.5mg !

Scared

surgery and actemra

Really bad hunger attack...

Osteoporosis

More GCA treatment

Dry eye syndrome

Another D-Day commemoration - a story of hope

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