Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2019

Blood tests and tapering

Is it usual and advisable to get a blood test for CRP after every taper? At the moment I'm attempting to taper every 5-6 weeks, and my rheumy wants a blood...

Is it usual and advisable to get a blood test for CRP after every taper? At the...

pinks33

•5 years ago

55 Replies

Fatigue at 4.5mg Prednisolone Adrenal advice please

Hi I cannot find the earlier posts about the adrenals kicking in at under 5mg I’ve been at 4.5 for the past week and am feeling more fatigued and sleeping VERY...

Hi I cannot find the earlier posts about the adrenals kicking in at under 5mg I’...

Bamber99

•5 years ago

6 Replies

High white blood cell count

My GP sent me for blood tests, yet again, last week. He rang me 2 days later to ask if I felt ok as my white blood cell count was through the roof and I am now...

My GP sent me for blood tests, yet again, last week. He rang me 2 days later to ...

JanboC

•5 years ago

13 Replies

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Which tests?

Which blood tests diagnose PMR?

VeeWat

•5 years ago

6 Replies

Sulfasalazine or azathioprine

Male, 71 in my 5th year of PMR, mostly at around 10mg Pred. (We men don’t all have an easy time!) Having a bad flare at 6mg after DSNS reduction since last...

Male, 71 in my 5th year of PMR, mostly at around 10mg Pred. (We men don’t all ha...

Roltuba

•5 years ago

13 Replies

T2305

I am new here, been diagnosed with PMR and Osteoarthritis in my hands and wrists, on 10mg tried to down to 9 but had withdrawal symptoms and had to back up to...

I am new here, been diagnosed with PMR and Osteoarthritis in my hands and wrists...

T2305

•5 years ago

20 Replies

Feeling weak.

Anyone any ideas of a good "pick me up". Still rather weak after my sojourn in hospital. The fever and shakes have gone, but CRP still quite high (for me) -...

Anyone any ideas of a good "pick me up". Still rather weak after my sojourn in ...

Constance13

•5 years ago

50 Replies

PMR, prednisone and Acterma

Dan Patrick is an American sportscaster. The following is a clip from his show yesterday: https://www.youtube.com/watch?v=DJOWLqbcwgo

Dan Patrick is an American sportscaster. The following is a clip from his show y...

Reader7

•5 years ago

12 Replies

PMR and Zostavax vaccine for Shingles

Hi, I know that this topic has been covered before but I thought I would add my own experience of a GP who flatly refuses to believe that there could be any...

Hi, I know that this topic has been covered before but I thought I would add my ...

Cross-stitcher

•5 years ago

31 Replies

Famous American Sports Personality Reveals His Battle With PMR!

He did this yesterday on his national tv show. Please google "Dan Patrick". You can watch it. It is big news here as he is very well known in the tv sports...

He did this yesterday on his national tv show. Please google "Dan Patrick". You ...

JakeSearcher

•5 years ago

81 Replies

Revitive equipment

is the use of this equipment ant good for reducing stiffness and muscle pain from PMR

is the use of this equipment ant good for reducing stiffness and muscle pain fro...

astley123

•5 years ago

8 Replies

Differences in corticosteriods?

I am new to this group and to my PMR diagnosis. I am only 48 and it has been quite a stunning diagnosis to deal with. I am feeling quite well - no pain now,...

I am new to this group and to my PMR diagnosis. I am only 48 and it has been qu...

SanRaphaela

•5 years ago

9 Replies

New test new rummy.

Hi due to some new back pain up and down my spine (only sleeping ) I went to a new rummy. I went in with no records. I was sent for all new blood test. He...

Hi due to some new back pain up and down my spine (only sleeping ) I went to a ...

Mjhollywood1

•5 years ago

2 Replies

Tooth out!

Hello everyone. I took the plunge and went ahead with having my root canal tooth extracted yesterday. So far, no dry socket!! Interesting to discover, there...

Hello everyone. I took the plunge and went ahead with having my root canal tooth...

Lonsdalelass

•5 years ago

33 Replies

Newbie update

Have just seen my GP for review after three weeks on 15 mg Prednisolone. She has decided to keep me on 15 mg for the next month then more bloods and review...

Have just seen my GP for review after three weeks on 15 mg Prednisolone. She has...

jaycee444

•5 years ago

17 Replies

Could this be TA?

My first headache started about 2 yrs ago. It was right sided temple area. There was alsp a vein that popped out on my right side temple area. No otc meds...

My first headache started about 2 yrs ago. It was right sided temple area. There...

Lena76

•5 years ago

3 Replies

New Rheumie Switching Me to Rayos

Today I saw a highly recommended Rheumatologist because I wanted to address my morning pain/stiffness in my fingers, hands, wrists, arms, and shoulders. I had...

Today I saw a highly recommended Rheumatologist because I wanted to address my m...

JakeSearcher

•5 years ago

30 Replies

GCA is vision damage permanent?

Hi. 75 yr old male from WI USA. Early last fall I had a sudden attack of GCA which resulted in 75% loss of vision in one eye followed by the second eye a...

Hi. 75 yr old male from WI USA. Early last fall I had a sudden attack of GCA w...

Dknutson1944

•5 years ago

4 Replies

Moving up temporarily in dosage

My rheumatologist started me at 5 mg. 10 days ago. It helped a lot except for the stiffness in my neck and the pain between my shoulder blades. I went up to...

My rheumatologist started me at 5 mg. 10 days ago. It helped a lot except for th...

Navion

•5 years ago

11 Replies

Diclofenac gel pain relief

Has anyone else tried Diclofenac gel. I was shocked that it eased my SI joint inflammation enough that I slept all night without pain. PMR still receiving its...

Has anyone else tried Diclofenac gel. I was shocked that it eased my SI joint i...

Purplecrow

•5 years ago

25 Replies

Increase pred or give more time?

Hi everyone My PMR journey has been pretty good up until now. Did 6 weeks on 9mg and felt great and then reduced to 8mg. Within a week I started to get hip...

Hi everyone My PMR journey has been pretty good up until now. Did 6 weeks on 9mg...

EscapedtoWales

•5 years ago

12 Replies

Intermittent poster

I don’t often post because I don’t have much to contribute. What I have found useful is that desperate tiredness is a symptom of pmr. I have stopped trying to...

I don’t often post because I don’t have much to contribute. What I have found us...

Mipsie

•5 years ago

18 Replies

Flare at 5 mg press 20 mg mtx

Hi, this my first post. I'm 3 years into PMR, have struggled to get below 8 mg press , so 5 months ago was given methotrexate. I've done quite well getting...

Hi, this my first post. I'm 3 years into PMR, have struggled to get below 8 mg p...

Jancorb

•5 years ago

30 Replies

Side effects

Can new side effects develop the longer we are on pred?

aladymo

•5 years ago

15 Replies

Looking For?

Could anyone recommend good rheumatologist in Glasgow Area?

Seagu11

•5 years ago

7 Replies

SPINAL STENOSIS

Hi everyone, just wondering if anyone has been on long term steroids like me, and is now suffering from spinal stenosis. Started 3 years ago with numbness in...

Hi everyone, just wondering if anyone has been on long term steroids like me, an...

Reethebeat

•5 years ago

12 Replies

To vax or not to vax?

Would appreciate the collective wisdom of the forum on the this one, please. My surgery has written to offer me a shingles vaccination. I'm not anti-...

Would appreciate the collective wisdom of the forum on the this one, please. My ...

GrannyB10

•5 years ago

8 Replies

I want off of prednisone

I have been on prednisone going on 8 years. I was diagnosed with GCA in July 2011, which, has been s in remission since 2017. I am happy about that but I...

I have been on prednisone going on 8 years. I was diagnosed with GCA in July 20...

Sally001

•5 years ago

14 Replies

List of blood tests I should be getting?

Hi new friends! So I am returning to Canada today and have some doctors appointments tomorrow to follow up on my PMR diagnosis. I am wondering if there is a...

Hi new friends! So I am returning to Canada today and have some doctors appoint...

BoaterAnnie

•5 years ago

8 Replies

I could sleep on a clothes line!

Hello all, I have reduced my pred down to 9mg and my last blood test reading were good. However, I seem to have been struck with the worst tiredness ever. I...

Hello all, I have reduced my pred down to 9mg and my last blood test reading wer...

sandrathecat

•5 years ago

68 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Blood tests and tapering

Fatigue at 4.5mg Prednisolone Adrenal advice please

High white blood cell count

Which tests?

Sulfasalazine or azathioprine

T2305

Feeling weak.

PMR, prednisone and Acterma

PMR and Zostavax vaccine for Shingles

Famous American Sports Personality Reveals His Battle With PMR!

Revitive equipment

Differences in corticosteriods?

New test new rummy.

Tooth out!

Newbie update

Could this be TA?

New Rheumie Switching Me to Rayos

GCA is vision damage permanent?

Moving up temporarily in dosage

Diclofenac gel pain relief

Increase pred or give more time?

Intermittent poster

Flare at 5 mg press 20 mg mtx

Side effects

Looking For?

SPINAL STENOSIS

To vax or not to vax?

I want off of prednisone

List of blood tests I should be getting?

I could sleep on a clothes line!

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