GCA-PMR, Talking & flinging arms while sleeping!

[Lucy2013]

Wife & dog are becoming frightened of me after bedtime.

I have been taking prednisone for GCA-PMR since December 2018.

However some of the "wildness" started 6 months before taking any prednisone.

Could this tied to the development of GCA or the prednisone dose that I am at now, 17 mg.?

I was not having this issue when the prednisone dose was greater than 30 mg.

FYI, I don't have, at least for the present, other symptoms that could be associated with Parkinson's disease.

I welcome anyone else's experience.

[Hidden]

Hi....that's so weird. I do it when I am really, really fatigued. I wake up with my arms in the air and talk back to radio or TV. I started doing it pre pred but prob while I had PMR symptoms.💪😆

I put it down to Amitriptyline though at the time. Thought the mix of drugs was causing it as I have vivid dreams.

[Soraya_PMR in reply to Hidden]

Could it be an upper body version of restless legs? I get RL when overtired, I can be quite dangerous.

Amitryptylline caused me very vivid dreams/nightmares, sufficient to stop me taking it.

[Hidden in reply to Soraya_PMR]

It could well be. I have rls too. How the hell am I still here. 😂😂😂 If you think amitryptiline causes vivid dreams. If I sleep Duloxetine has increased number of and length of rem sleep periods according to my fitness band. The dream are really vivid, lucid dreams. It has helped rls a bit though. The arms do happen when I have overdone it but there seems no rhyme or reason to legs.

Do you have restless legs too Lucy's 'dad'? Cute photo.

[PMRpro Ambassador]

Have you told your rheumy/GP about this? Seems strange it was better at higher pred.

[Yellowbluebell]

My OH does the flinging his arms thing. He broke his back some time back and years after major neuro surgery he started this arm flinging. His neuro surgeon has said it is a damaged nerve issue. You need to speak to your gp or rheumy and if need be get a referral.

[Hellyowl]

My OH is very healthy and has no medication. He had vivid dreams, calls out and flings his arms. Always has. He is a very relaxed person who never worries. I have always presumed he gets it all out in his sleep. I hardly move and wake up stiff as a board.