By the way, are the coffee drinkers still drinkin... - PMRGCAuk

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By the way, are the coffee drinkers still drinking coffee with PMR/Pred?

3daysinjuly profile image
78 Replies

Just wondering if those who were coffee drinkers prior to diagnosis drew the line at giving up their daily “cup of Joe.”

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3daysinjuly profile image
3daysinjuly
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78 Replies
Twopies profile image
Twopies

I've been drinking coffee since I was 7. 2 1/2 cups every morning, small cups, not mugs. I won't give it up. Rheumy said it was fine--said he had some patients who drank 2 pots!

3daysinjuly profile image
3daysinjuly in reply to Twopies

Good to know Rheum approves.

1964-karina profile image
1964-karina in reply to Twopies

It would be my worst nightmare! Work in a school need my coffee ☕️!

Thelmarina profile image
Thelmarina in reply to Twopies

With you sister!

Pongo13 profile image
Pongo13

Saddo here,.. no caffeine, no alcohol, no drugs and no smoking (called ‘straight edge’ these days by younger folk with matching ‘black cross’ tattoo, I learned this week), no processed meat or sugar (ok occasionally I lapse and have a gluten free cake!). I could go on but I’m boring myself...

Patience47 profile image
Patience47 in reply to Pongo13

Same here. No more coffee, etc. 😔

powerwalk profile image
powerwalk in reply to Pongo13

Do you feel the better for this? Is it helping you?

Pongo13 profile image
Pongo13 in reply to powerwalk

It helps my sleep (which has been dismal) - I am on amitriptylene too but don’t take regularly as I don’t want to become addicted. Yes, I do feel better for making these changes. No sugar has been a revelation in terms of no more hunger pangs. X

BeansHB profile image
BeansHB in reply to Pongo13

You're not boring ME, Pongo13! I have a similar diet and it feels good to know somebody else has gone this far to try to manage their health!

Pongo13 profile image
Pongo13 in reply to BeansHB

Thanks! (Just bought some broad beans - with a name like that I’m thinking you like all beans too!) x

BeansHB profile image
BeansHB in reply to Pongo13

I love beans! However, they are one of the things I've given up while on this journey. I hope to be able to add them back into my diet as my autoimmunity subsides. I was able to add them back into my diet when I had active Lupus, and still have it go into remission. So, fingers crossed, the same with happen with PMR. Enjoy your broad beans!! Yummm.

PMRpro profile image
PMRproAmbassador in reply to Pongo13

We only get broad beans for a few weeks here - just when they are in season. No frozen ones - which I don't understand.

Sandradsn profile image
Sandradsn

I never drank coffee before pmr,I have two mugs of latte a day now and too many teas!

Thelmarina profile image
Thelmarina in reply to Sandradsn

Love defiance!

Mary63 profile image
Mary63

I love my two mugs of coffee daily. Is there something I have missed? Should PMR’s not drink coffee? Or is it just part of the ‘clean’ eating kind of craze, where everything ‘nice’ is bad?

3daysinjuly profile image
3daysinjuly

Lol. I’m sure it is harmless. I thought I read somewhere about caffeine and adrenals. Pmrpro....am I dreaming or did I see this?

GerriMc profile image
GerriMc in reply to 3daysinjuly

Caffeine relaxes smooth muscle. It’s added to a lot of pain meds.

PMRpro profile image
PMRproAmbassador in reply to 3daysinjuly

I'm sure I remember someone claiming it is bad for our adrenal function. I have my doubts that the odd cup of coffee as drunk in most English-speaking countries is going to to much harm! As they drink it here now - that's another matter!

Thelmarina profile image
Thelmarina in reply to PMRpro

I remember a Turkish cup of coffee - the spoon stood up in it!

Rokerman profile image
Rokerman in reply to Thelmarina

Ah yes - a bit like my Mum’s gravy.....!

PMRpro profile image
PMRproAmbassador in reply to Thelmarina

That's the sugar isn't it? We gave up drinking coffee at home when we lived in Germany - a colleague made the usual filter coffee by filling the filter paper with coffee, 3 or 4 times the usual amount!! Gave you wings...

GerriMc profile image
GerriMc

Still have two cups of good coffee per day! One of the last little pleasures left! 😩

3daysinjuly profile image
3daysinjuly in reply to GerriMc

So true. Maybe add a walnut scone or a blueberry muffin to go along with the coffee? One bite?

Thelmarina profile image
Thelmarina in reply to 3daysinjuly

And don’t forget chocolate....😀

Slowdown profile image
Slowdown

I'd never get out of bed without my morning coffee - sip, check into forum, look at birds on feeders, bellow at marauding squirrel, sip sip sip and up...

Oxford8 profile image
Oxford8 in reply to Slowdown

Love that description! 😀

Rox2112 profile image
Rox2112 in reply to Slowdown

I, too, yell at the squirrels in our bird feeder!

Slowdown profile image
Slowdown in reply to Rox2112

He's at it again - just banged on the window and he performed a triple somersault around the thin bamboo pole from which feeders are suspended. Entertaining!

Rox2112 profile image
Rox2112 in reply to Slowdown

Hilarious! My hubby greased the feeder pole with vaseline once...that was pretty funny watching the squirrel try to climb faster than he was sliding down!

MhairiP profile image
MhairiP

I enjoy one cup of good fresh coffee each morning. It wouldn't be the end of the world if I had to give it up, but I'm not aware of any reason to do that... is there a connection between PMR/pred/coffee that I don't know of?! I'd find it harder to give up my glass of wine in the evening than my cup of coffee in the morning! 🍷☕️

Nuff1 profile image
Nuff1

OH still drinking 3 mugsful daily

alvertta profile image
alvertta

2 cups a day. Sometimes flat white. Sometimes just with cream.

3daysinjuly profile image
3daysinjuly in reply to alvertta

Flat white?

alvertta profile image
alvertta in reply to 3daysinjuly

It is a cappuccino with less froth.

teesher profile image
teesher

Oh god no. I'm not giving up my Americano with hot frothy milk for anyone or anything, especially pmr.

Sleep is important to the body and to healing, so timing of our coffee-drinking could be an issue. Some people say no caffeine after 2pm if you want the best chance of a good night's sleep but I find that difficult - I do like my coffee.

HeronNS profile image
HeronNS

Italian researchers have determined that coffee is good for the liver. The equivalent of five espressos (and they can be decaf) is enough to help a fatty liver return to normal. I'm a tea drinker myself and I would never give it up. One must have a few pleasures, after all!

maria40 profile image
maria40 in reply to HeronNS

I was devastated as a coffee addict to be told recently that I should give up caffeine not because of PMR but because of an arrhythmic condition. I switched to decaff and for the first few days I was tired and miserable but now I'm alright but hate passing cafes with the aroma of coffee drifting out. I do know that decaff contains traces of caffeine still, so maybe I'm just getting enough to get by.

PMRpro profile image
PMRproAmbassador in reply to HeronNS

The thought of 5 espressi here makes me quake!!!

HeronNS profile image
HeronNS in reply to PMRpro

hence the claim it's not the caffeine which is working.... ;)

fmkkm profile image
fmkkm

It does contain a few nutrients, is supposed to lower your risk of type 2 diabetes, may protect you from Alzheimer’s and Parkinson’s helps your liver, contains antioxidants and makes you happier?

On the downside it can mess with high blood pressure .

Who knows where they get this info, all I know is I have given up so much already I really need my morning “cup of joe”, my birds, meditations, and morning journal writing to start my day.💗

lesley2015 profile image
lesley2015

I would be impossible to live with if I didnt have my tea and coffee, ad lib

GOOD_GRIEF profile image
GOOD_GRIEF

I can't drink coffee anymore, sadly. My stomach just doesn't like it.

3daysinjuly profile image
3daysinjuly

Aww, sorry.

squashie profile image
squashie

My morning double ristretto is a reward for getting up early and exercising. The afternoon one is because I like it. To give up would be a step too far.

3daysinjuly profile image
3daysinjuly

Absolutely.

Rimmy profile image
Rimmy

Are you kidding !!!?? - I can't imagine a world without coffee - especially a PMR/GCA 'world'. I drink a strong stove top coffee every morning and another 1 or 2 during the day (not quite as strong though). I find when the DF is really bad it helps me get through the day and feel a little 'brighter' - Plus I just LOVE the stuff. My GP is also a huge fan and is always talking about his next cup - we are a good 'match' in that dept.

sondya profile image
sondya in reply to Rimmy

Hi Rimmy - I've got an espresso machine - makes fab coffee. Never buy coffee when I go out; a brick of espresso grind costs the same as one cup at a café!!

And just how I like it - half milk, half two-shot coffee sweetened with a tsp of condensed milk.

To die for!!!!

Hope you are well.

Rimmy profile image
Rimmy in reply to sondya

Sounds divine sondya !! - what would life be without some small 'treats'- and many thanks I am doing OK -hope you are too !

sondya profile image
sondya in reply to Rimmy

GCA gone. Over. Finished. Lovely feeling.

Rimmy profile image
Rimmy in reply to sondya

Fantastic - so pleased for you !!!

sondya profile image
sondya in reply to Rimmy

Thanks Rimmy.

MamaBeagle profile image
MamaBeagle in reply to sondya

And if you add a dash of brandy to that it's called a Belmonte in Spain, and delicious, occasionally of course!

sondya profile image
sondya in reply to MamaBeagle

Yum! Uncapping the bottle as we speak! Haha

MamaBeagle profile image
MamaBeagle in reply to sondya

Medicinal purposes only of course! 😄

3daysinjuly profile image
3daysinjuly

Absolutely. Long before PMR, when my daughter was probably 18 we were relaxing on the couch, and I had my usual mug in my hand. She said, “Dad why do you like to drink coffee so much?” And the thing I still remember saying to her was.....”It makes me hopeful.” And I still believe that now, more than ever.

sondya profile image
sondya

GCA and Prednisone - was told to reduce caffeine, not cut it out. Nothing will stop me from having my morning cup of espresso! GCA and preddie are in distant past and still enjoying coffee.

Oxford8 profile image
Oxford8 in reply to sondya

Love that they are in distant past! Now that's really cheering! 👍😀

stellafmdm profile image
stellafmdm in reply to sondya

Unless I need a boost I drink it decaff!

fmkkm profile image
fmkkm in reply to sondya

Cheers☕️

whitefishbay profile image
whitefishbay

I still drink two strong cups of coffee w no problem.

Kaaswinkel profile image
Kaaswinkel

Why would you EVER give up coffee....coffee has been y addiction of choice for years, and together with tow paracetamol before a 3/4 hr sleep it makes me feel much better. Who ever tells you coffee is not good for you...tell them to go you know where!!🌞😉alida

Bamber99 profile image
Bamber99

I didn’t realise that coffee was particularly bad for PMR. I’d really struggle to give it up. I have one super strong high caffeine mug of black coffee every morning. I cannot function without it, to such an extent that whenever I go away I take my own coffee and caffitere. So no I’ve not given up coffee.

Jackoh profile image
Jackoh

I believe tea has a lot of caffeine in it too. I love my tea and coffee- couldn’t give that up . I do though drink red bush tea after 6 pm so I don’t have any trouble sleeping. Don’t know really if it makes any difference but feel that” I’m doing my bit!” Xx

ClarkB profile image
ClarkB

Drinking my coffee as I read your post! Mainly have decaf but not always. I always meet friends for coffee, and wouldn’t have the willpower to sit there and look at their flat whites, cappuccinos etc. I can’t be tempted by the fruit teas, which look so nice on the packet, but....

I might try and be like one friend and have a homemade nettle tea when I visit and listen to her good advice, but she is strong minded and I’m not!

As for dark chocolate- yum yum

lizg0017 profile image
lizg0017

I'd be even more of a mess if I gave up coffee. Will never give it up until I'm too old or sick to make it.

fmkkm profile image
fmkkm in reply to lizg0017

Has to be good coffee though or I could say no!

PMRpro profile image
PMRproAmbassador in reply to fmkkm

I do!

Scarter770 profile image
Scarter770

Two 12 ounce mugs a day

yogabonnie profile image
yogabonnie

I have given up sugar (failed and given up again) and alcohol and I will NOT give up the coffee!!! I have 2 cups of caffeinated in the morning and maybe 2 cups of decaf at night. I know it is bad for my already bad bones but I make up for that with exercise and calcium...and my attitude with NO coffee would be worse for the world at large!

Noosat profile image
Noosat in reply to yogabonnie

Try some organic stevia instead of sugar

3daysinjuly profile image
3daysinjuly in reply to yogabonnie

Well, the verdict and answer to my question is in, and, overwhelmingly, we are NOT giving up our beloved coffee!!

Noosat profile image
Noosat

I continue to have my daily "mug" of black coffee with toast in the early morning. Does not seem to affect me adversely. Later in the day, I sometimes have a cup of green tea.

daworm profile image
daworm

Never stopped, cut back a bit maybe but I usually have a morning cup shortly after the morning dose of pred...my stomach is fine, so far..I’m not giving up the things that give me a little pleasure..same goes for an occasional beer...

kathleen18 profile image
kathleen18

Definitely not! Nor wine or anything else that makes life worth living!!

Telian profile image
Telian

The answer is no, I can't drink tea for some reason? Drink de-caff coffee, on advice of Urologist for bladder problem, not sure if it helps but drink coffee all day.

artfingers profile image
artfingers

I drink two mugs a day to handle facing the children I teach (500 of them! but not all at once). I gave it up only when pregnant. I am currently sitting on the lanai in the Florida sunshine (recuperating from yet another surgery) listening to the lovely song of a mockingbird sipping a cup with whipped cream on top. Heaven!

3daysinjuly profile image
3daysinjuly

Rub it in.

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