Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2019

Coffee addict

Doesn’t the water in coffee count towards the daily liquid we are supposed to drink? I know the Austrians always serve a glass of water with coffee but surely...

Doesn’t the water in coffee count towards the daily liquid we are supposed to dr...

Constance13

•5 years ago

43 Replies

Extreme fatigue

I have very cautiously and slowly reduced the pred dose to 1 mg after 4 1/2 years of taking it for GCA. I remain on 15mg of Methatrexate per week....

I have very cautiously and slowly reduced the pred dose to 1 mg after 4 1...

PenelopeVita-Finzi

•5 years ago

9 Replies

Can I get enough calcium from my diet to treat osteopenia?

Advice and input please. I have issues with supplements so, I've been drinking four glasses of almond milk each day. Prednisone has been hard on my bones.

Advice and input please. I have issues with supplements so, I've been drinking...

Blurry62

•5 years ago

11 Replies

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Possible Metformin side effects

I have PMR and been on Prednisolone for almost 5 years, currently reducing to 2mg. I was diagnosed with Tyoe 2 Diabetes and started in Metformin about 3...

I have PMR and been on Prednisolone for almost 5 years, currently reducing to 2m...

Sheilamac

•5 years ago

12 Replies

ACTEMRA

Is it true new drug for GCA available on NHS available in England not Scotland? If not why not ? Scots Wahae!

Is it true new drug for GCA available on NHS available in England not Scotland? ...

Seagu11

•5 years ago

3 Replies

Same journey, different track?

My journey so far. 78 yo male diagnosed with PMR October 2018. 15mg pred worked its usual miracle. Steady slow taper (despite mild bout of shingles ) and...

My journey so far. 78 yo male diagnosed with PMR October 2018. 15mg pred worked...

squashie

•5 years ago

15 Replies

Getting dressed to go out.

I had a gp appt today. Nothing special just routine followup. After appt I went to the attached chemist for a repeat prescription and caught my normally...

I had a gp appt today. Nothing special just routine followup. After appt I wen...

Yellowbluebell

•5 years ago

224 Replies

Is it GCA or not that is the question

Hi All , well I can safely say today has been a traumatic one , thank you PMR Pro for helping me through it . I’ll keep the details as short as I can i’ve Had...

Hi All , well I can safely say today has been a traumatic one , thank you PMR Pr...

Gaz227

•5 years ago

43 Replies

Brrrrrrrr...

Hope it warms up soon...snow and really cold for a week now! Hibernating!🥶🥶

daworm

•5 years ago

15 Replies

1mg Gastro resistant Prednisolone tablets on NHS

Has anyone in the UK managed to be prescribed the 1 mg Prednisolone gastro resistant (coated) tablets on the NHS. My doctor says she’s not sure if they do...

Has anyone in the UK managed to be prescribed the 1 mg Prednisolone gastro resis...

Floridafan

•5 years ago

27 Replies

13.5 and still alive!

It's been 441 days since I was diagnosed with GCA/PMR and started taking prednisolone! And what a rollercoaster ride it has been! I started at 40mg of Pred,...

It's been 441 days since I was diagnosed with GCA/PMR and started taking prednis...

Hidden

•5 years ago

130 Replies

Dehydration - side-effect of pills or just me?

Hello again. Thank you to everybody who ever posts on here - I've learned so much from this forum. I thank my lucky stars that I found you all quite soon...

Hello again. Thank you to everybody who ever posts on here - I've learned so mu...

Hildalew

•5 years ago

24 Replies

Checking your own medications - lesson reinforcement!

I have written about our wonderful xmas with OH in hospital before. Today we have a new instalment to add: Another detail to add to David's "perfect storm"...

I have written about our wonderful xmas with OH in hospital before. Today we hav...

PMRpro

Ambassador•5 years ago

114 Replies

Lighter side Great British Bird watch

Well, I settled myself down on a nice comfy bean bag overlooking the area of garden where my bird feeders are. Had a lovely relaxing hour watching the birds,...

Well, I settled myself down on a nice comfy bean bag overlooking the area of gar...

Dontwannabesick

•5 years ago

22 Replies

Complaining about a pharmacist (UK)

Further to my other posts about the unhelpful pharmacist, I have found out that the body to contact is the General Pharmaceutical Council. There is a...

Further to my other posts about the unhelpful pharmacist, I have found out that ...

Marijo1951

•5 years ago

6 Replies

Update from Confused carer again

Doc on call said stiffness and pain probably wasn't PMR but could be from a fractured hip and only way to confirm would be to have an x ray( I wasn't...

Doc on call said stiffness and pain probably wasn't PMR but could be from a frac...

tyga60

•5 years ago

23 Replies

Hi all

Just been with my younger friend today who has been diagnosed with leukemia. So upset as I don't think as yet there is a cure for that cancer. I just wanted...

Just been with my younger friend today who has been diagnosed with leukemia. So...

morrison

•5 years ago

14 Replies

Bagpipes and A&E

On my last post I left you wondering if I had my personal bagpipes on my birthday and how my blood pressure / GCA was resolved. Well my birthday bagpipes...

On my last post I left you wondering if I had my personal bagpipes on my birthda...

granny-b

•5 years ago

12 Replies

Root canal link to PMR?

Hi everyone. Just wondering if anyone out there has ever read or heard about a possible link with root canal treatments and PMR? My son has messaged me to say...

Hi everyone. Just wondering if anyone out there has ever read or heard about a p...

Lonsdalelass

•5 years ago

82 Replies

Coated v uncoated absorbtion time

Wondering the difference in times of absorbtion for coated v uncoated prednisolone? I have both and was wondering if I took say the uncoated two hours after...

Wondering the difference in times of absorbtion for coated v uncoated prednisolo...

Harbel

•5 years ago

25 Replies

Recent diagnosis of PMR & likely GCA: Looking for supplement guidelines to mitigate future issues.

Developed PMR symptoms in Early December 2018. Severe headaches developed on Dec 24th (I seldom get headaches) above the temples. No way to get a biopsy...

Developed PMR symptoms in Early December 2018. Severe headaches developed on De...

Lucy2013

•5 years ago

4 Replies

Spoons?

Please explain this theory of wise energy usage for a GCA sufferer. Won't I ever have a normal life again? I know I have too many questions it seems.....

Please explain this theory of wise energy usage for a GCA sufferer. Won't I ever...

Blurry62

•5 years ago

11 Replies

New here

Miss print in my last post I was diagnosed with poly myalgia rhumatica

Emerlad_70

•5 years ago

Be the first to reply

New here

Hi there I am new here. I was diagnosed with mr in December though I had the symptoms since about June. Had blood tests done scan to find out what was wrong...

Hi there I am new here. I was diagnosed with mr in December though I had the sym...

Emerlad_70

•5 years ago

46 Replies

Dry, flaky skin

Have been on Pred for 4.5 years for PMR. In the last few months my skin has become very dry and flaky. If I wear black underwear it looks horrible as...

Have been on Pred for 4.5 years for PMR. In the last few months my skin has be...

NursePeggy

•5 years ago

44 Replies

Decreasing prednisilone

Just diagnosed with pmr last month, doctor started me off on 20mg prednisilone for a month. My doctor has cut me down to 17.05 this month but l am feeling the...

Just diagnosed with pmr last month, doctor started me off on 20mg prednisilone f...

Fifelassieo

•5 years ago

8 Replies

Bland response from Boot's

Thank you to everybody who commented on my post about my experience in Boot's, St Pancras on Friday. I received a bland and useless response from Boot's and...

Thank you to everybody who commented on my post about my experience in Boot's, S...

Marijo1951

•5 years ago

12 Replies

Bought a wry smile!

This bought a wry smile today as it appeared in my memories pre-PMR when I was strong enough to pull myself together! One day, hey?!

This bought a wry smile today as it appeared in my memories pre-PMR when I was s...

Wraysbury

•5 years ago

9 Replies

This made me giggle!

Wraysbury

•5 years ago

21 Replies

Beginnings of PMR or rotator cuff?

I’m GCA since March 2017 and I’ve fared pretty well considering...no fatigue so I’ve kept up the exercising without overdoing i too much. Im now down at 3mg...

I’m GCA since March 2017 and I’ve fared pretty well considering...no fatigue so ...

Judy211

•5 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

Coffee addict

Extreme fatigue

Can I get enough calcium from my diet to treat osteopenia?

Possible Metformin side effects

ACTEMRA

Same journey, different track?

Getting dressed to go out.

Is it GCA or not that is the question

Brrrrrrrr...

1mg Gastro resistant Prednisolone tablets on NHS

13.5 and still alive!

Dehydration - side-effect of pills or just me?

Checking your own medications - lesson reinforcement!

Lighter side Great British Bird watch

Complaining about a pharmacist (UK)

Update from Confused carer again

Hi all

Bagpipes and A&E

Root canal link to PMR?

Coated v uncoated absorbtion time

Recent diagnosis of PMR & likely GCA: Looking for supplement guidelines to mitigate future issues.

Spoons?

New here

New here

Dry, flaky skin

Decreasing prednisilone

Bland response from Boot's

Bought a wry smile!

This made me giggle!

Beginnings of PMR or rotator cuff?

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