Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for January 2019

Existential crisis

Hi. I am new here. There is a ton of info to be navigated through! Well done. After being diagnosed with the double devil of GCA/PMR and going on high dose...

Hi. I am new here. There is a ton of info to be navigated through! Well done....

PinkertonCat

•5 years ago

11 Replies

GCA PATIENT TO RHEUMY : "my head hurts and my head ache." Rheumy to gca patient : " have you seen anyone for your headaches?"

This happened to me last week. Gca Diagnosed a year ago. Tapered to quickly. On 15 mg prednisone. I the in an extra this evening. Every mg I add seems to...

This happened to me last week. Gca Diagnosed a year ago. Tapered to quickly. On...

Blurry62

•5 years ago

6 Replies

Is it jaw claudication ?

How do you tell if jaw discomfort is GCA, claudication ?

Blurry62

•5 years ago

14 Replies

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HbA1c Relevance re Pred.

OH had request from Health Centre to see GP on Monday as this last HbA1c came through as 69! Given that it's an average over 3months and Pred can fire off...

OH had request from Health Centre to see GP on Monday as this last HbA1c came th...

Nuff1

•5 years ago

6 Replies

Kidney update

Hi everyone Thanks for all your replies. I am away from home and my phone will not give me your complete replies, so forgive for not replying until Thursday...

Hi everyone Thanks for all your replies. I am away from home and my phone will n...

Cobnut

•5 years ago

1 Reply

A little bit fed up

I’ve migrated to this forum from the very helpful ‘other side’ (with it’s tech problems). 65 year old female diagnosed September 2018. I started off at 10mg,...

I’ve migrated to this forum from the very helpful ‘other side’ (with it’s tech p...

braininjurythepits

•5 years ago

22 Replies

Thanks to Pepperdoggies post. A tip on a PMR/GCA friendly ,Pain Free, Family Activity. Wildlife Spotting! From window, garden or bench.

Want to change the world while sitting at home with a cup of tea? I was so glad to see a post by Pepperdoggie today highlighting the great RSPB Big Garden Bird...

Want to change the world while sitting at home with a cup of tea? I was so glad ...

Blearyeyed

•5 years ago

100 Replies

What are you doing differently?.....

Is a question I ask the folk at work during January ....goals....Baby steps, SMART! Blah blah blah. I was pretty impressed with my own list! Here goes.... My...

Is a question I ask the folk at work during January ....goals....Baby steps, SMA...

Pongo13

•5 years ago

18 Replies

Renovation update

No, short answer, I'm not in my new home yet. Had I had an inkling what an ordeal this would become I would never ever have considered it. Something has gone...

No, short answer, I'm not in my new home yet. Had I had an inkling what an orde...

HeronNS

•5 years ago

79 Replies

Melatonin helps sleep

Any words of wisdom regarding Melatonin as sleep aid? I've always been a light sleeper, sensitive to sounds, light, etc. in the past (50 years now), I blamed...

Any words of wisdom regarding Melatonin as sleep aid? I've always been a light s...

Purplecrow

•5 years ago

42 Replies

Confused carer again

I wrote on here for first time in August as a carer for my 88 year old mum with PMR. I was off to NZ at the time and wanted advice about advice on reduction...

I wrote on here for first time in August as a carer for my 88 year old mum with ...

tyga60

•5 years ago

27 Replies

My temples!

Good morning all. Seeking some clarification regarding my temples! The GP and Rheumy felt the temple area during my initial diagnosis as one of the indicators...

Good morning all. Seeking some clarification regarding my temples! The GP and Rh...

Kael-gca

•5 years ago

5 Replies

Oh the frustration

I could weep. I went to the panto last night, amdrams in our local community centre, great show. A show I should have been a part of until I got struck down...

I could weep. I went to the panto last night, amdrams in our local community cen...

Trish21

•5 years ago

15 Replies

Joint instability

Does anyone else feel that their joints are unstable with PMR? My right hip particularly feels as if it might dislocate at any moment, especially when I......

Does anyone else feel that their joints are unstable with PMR? My right hip par...

Beccasmum

•5 years ago

7 Replies

Is anyone else atypical ?

Are there many others like me who had to start on high doses of prednisone and stay on a relatively high dose ? I got diagnosed in October 2018 ( although I...

Are there many others like me who had to start on high doses of prednisone and ...

katiemills

•5 years ago

25 Replies

off the morphine for 8 days

the gp wanted me to go back on the oxi 3xs a day while I work through this. My skin can not get warm it hurts unless I cover all up. I have been sleeping...

the gp wanted me to go back on the oxi 3xs a day while I work through this. My ...

ejvb

•5 years ago

10 Replies

The Lighter Side: Friday's News From the Mansions - and a few Concerns about Tedski... ;-)

Greetings All First, PLEASE NOTE: This is an overtly and intentionally SILLY Post. If you want to read Serious and Important Stuff about PMR and GCA, read-on...

Greetings All First, PLEASE NOTE: This is an overtly and intentionally SILLY Pos...

markbenjamin57

•5 years ago

71 Replies

What is feeling normal

This is my first post, so I hope not to chapter and verse .. After a stressful year followed by a trip to the UK where I caught what I thought was a cold the...

This is my first post, so I hope not to chapter and verse .. After a stressful ...

mad-country-lover

•5 years ago

34 Replies

The kidney connection update

Hello again Thought you might like to hear how I got on when I went to see the kidney consultant this week. When I asked why I had never been told that the GCA...

Hello again Thought you might like to hear how I got on when I went to see the k...

Cobnut

•5 years ago

26 Replies

Can pharmacists give prednisolone in an emergency?

I was out earlier this afternoon when I started to feel very strange and shaky. I then suddenly realised I had forgotten to take my pred this morning. I...

I was out earlier this afternoon when I started to feel very strange and shaky. ...

Marijo1951

•5 years ago

67 Replies

" Big Garden Bird Watch" Matey's! It's Good for Us! Always

In the UK this is good information on how the birdies are doing! Easy site access! Have a go if you can. Ta.

In the UK this is good information on how the birdies are doing! Easy site acce...

Hidden

•5 years ago

54 Replies

inflammation at 3:am or so

Hi Everyone If the inflammation tends to begin around 3:30am, then how does it help to take pred. at around that time? Isn't it needed earlier to start...

Hi Everyone If the inflammation tends to begin around 3:30am, then how does it h...

Linny3

•5 years ago

10 Replies

Fatigue

Hi. I’m new here having being diagnosed three weeks ago following pain early in the morning and then blood tests. I’m on 20mg of Pred and I’m virtually pain...

Hi. I’m new here having being diagnosed three weeks ago following pain early in ...

Rosina1871

•5 years ago

37 Replies

Doctors please read

Out of interest are there any doctors on here who are diagnosed with PMR?? I don’t want you to identify yourselves, I simply wish you would step forward and...

Out of interest are there any doctors on here who are diagnosed with PMR?? I don...

Wraysbury

•5 years ago

7 Replies

Alendronic acid

Firstly I want to say I don’t know what I would have done if I hadn’t found this forum, I am learning more and more every day about PMR, thank you to all that...

Firstly I want to say I don’t know what I would have done if I hadn’t found this...

Iloveholidays

•5 years ago

21 Replies

Job interview - dealing with embarrassing sweats

Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and...

Hi everyone My tapering journey has been going well and the side effects of the ...

EscapedtoWales

•5 years ago

31 Replies

I never want...

I never want to hear these things again... "If the pain is actually real" "Your depressed and have anxiety and it's exaggerating your symptoms" "Prednisone...

I never want to hear these things again... "If the pain is actually real" "Your ...

Boozsa

•5 years ago

40 Replies

How Long Did You Stay On Your Max Dose?

I began having symptoms in November of 2017, was diagnosed as having PMR when I finally broke down and agreed to try prednisone, which my GP gave me in 10mg...

I began having symptoms in November of 2017, was diagnosed as having PMR when I ...

schmuppy

•5 years ago

10 Replies

Reduction of prednisone intake

Hi... I had been taking prednisone for low cotisol 5mg for 5 years then reduced to 2.5 and last six months 2 . The reduction to 2 was done as a personal choice...

Hi... I had been taking prednisone for low cotisol 5mg for 5 years then reduced ...

Meadow6

•5 years ago

9 Replies

Confused about blood pressure reading

Had to see my doc this morning because of side effects of methotrexate. I rang at 8am and joined the queue at no 13. Imagine my surprise when the answer to my...

Had to see my doc this morning because of side effects of methotrexate. I rang a...

granny-b

•5 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

Existential crisis

GCA PATIENT TO RHEUMY : "my head hurts and my head ache." Rheumy to gca patient : " have you seen anyone for your headaches?"

Is it jaw claudication ?

HbA1c Relevance re Pred.

Kidney update

A little bit fed up

Thanks to Pepperdoggies post. A tip on a PMR/GCA friendly ,Pain Free, Family Activity. Wildlife Spotting! From window, garden or bench.

What are you doing differently?.....

Renovation update

Melatonin helps sleep

Confused carer again

My temples!

Oh the frustration

Joint instability

Is anyone else atypical ?

off the morphine for 8 days

The Lighter Side: Friday's News From the Mansions - and a few Concerns about Tedski... ;-)

What is feeling normal

The kidney connection update

Can pharmacists give prednisolone in an emergency?

" Big Garden Bird Watch" Matey's! It's Good for Us! Always

inflammation at 3:am or so

Fatigue

Doctors please read

Alendronic acid

Job interview - dealing with embarrassing sweats

I never want...

How Long Did You Stay On Your Max Dose?

Reduction of prednisone intake

Confused about blood pressure reading

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