ACTEMRA: Is it true new drug for GCA available on... - PMRGCAuk

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ACTEMRA

Seagu11 profile image
3 Replies

Is it true new drug for GCA available on NHS available in England not Scotland?

If not why not ? Scots Wahae!

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Seagu11 profile image
Seagu11
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3 Replies
SnazzyD profile image
SnazzyD

It is it not for first line treatment though in England, but “refractory” GCA. I’m still a bit wary of getting excited about a drug that’s not without its problems just because it’s not Pred. It is great though, that for those whose GCA is really hard to shift, there is another option to try. It is jolly expensive too.

This says it is accepted in Scotland but not instead of Pred but as well as

scottishmedicines.org.uk/me...

Again, it’s not going to be given to everybody

PMRpro profile image
PMRproAmbassador

It is approved in Scotland:

pmrandgca.org.uk/news

The approval came through about the same time as the London AGM in the autumn and I'm told that in some ways it is better than what was achieved in England - not sure of the details though. Possibly that it can be used for longer than a year if a physician thinks it should be.

YuliK profile image
YuliK

empr.com/actemra/drug/3561/

Doesn't look like its without serious side effects. Pretty expensive too 🤑

YuliK

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