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PMRGCAuk
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At Twenty Five and Still Alive!

Twenty five! I never thought I'd make it! It has taken me 315 days (which is equivalent to 10 months, or 45 weeks, or 7,560 hours) to get from 80mg of Prednisolone to 25 mg! I guess in the big scheme of things (and compared to others) that's not such a terribly long time... And it's not a "race," right? So today, I embrace 25! I celebrate it! I own it!

1. 25 is the atomic number of manganese.

2. In Islam, there are 25 prophets mentioned in the Quran.

3. In jewellery, 6 carats is equal to 25 percent of gold mass.

4. Number 25 helps us get into our own mind and self, because it is a symbol of introspection.

5. The M25 is the name of the London Orbital motorway.

6. 25 is the sum of the single-digit odd natural numbers 1, 3, 5, 7 and 9, the first five odd natural numbers.

7. Pachisi, the Hindu word for 25, is one of the national games of India.

8. In the UK a "pony" is slang for 25 pounds.

9. The part of the name of LSD-25 molecule.

10. 25 is the number of years of marriage marked in a silver wedding anniversary.

11. The minimum age of candidates for election to the United States House of Representatives.

12. The number of cents in a quarter.

13. The name of an Irish card game

14. 25 is the per-second frame rate of the PAL video standard.

15. The name of Adele's 2015 album, named for her age in that year.

16. The number of the French department Doubs.

17. The temperature, in Celsius, at which some characteristics of semiconductors are specifically given in a data sheet.

18. The number of panels on the TV Asahi quiz show Panel Quiz Attack 25.

19. In Ezekiel's vision of a new temple: The number twenty-five is of cardinal importance in Ezekiel's Temple Vision

20. In baseball, the number 25 is typically reserved for the best slugger on the team.

21. 'World Pasta Day' is held on the 25th October every year.

22. The number of Florida electoral votes that won the 2000 U.S. presidential election was 25.

23. An average week worth of coffee cost an American $25

24. In Roman Numeral the number 25 is XXV

25. The exact number of Prednisolone milligrams I am taking as of TODAY!

Wooooo Hoooooo

76 Replies
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Super wonderful mamic1, I am so pleased for you. 25 seems to be the magic number, I didn't know about # 21 but # 25 is the best!

I'll raise a glass of sparkly water to you later, can't wait to have a real glass of something stronger.;-) Cheers!:-)

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Cheers Primarose! It does indeed seem like a "magic" number!!!! I'm so looking forward to 20 too, as Rheumy said I might actually start feeling like "myself" at 20!!!!

Wooo Hoooo!!!! ๐Ÿ‘๐Ÿป

Hope you are well!!!!

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I do hope so, you are heading in the right direction.

I feeling OK thanks, hoping to get of the preds by December and have a nice G & T!:-)

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"Off," the Pred by December??? Wow! That will be a day to CELEBRATE, huh? My fingers are crossed! ๐Ÿคž๐Ÿผ

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So does that mean you will be a twenty year old ๐Ÿ˜ป cool cat?๐Ÿคทโ€โ™€๏ธ

๐Ÿ‘ฉโ€๐ŸŽค ๐Ÿ™…๐Ÿปโ€โ™€๏ธ๐Ÿ™…๐Ÿปโ€โ™€๏ธ

Brighton is the place for it.

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Hahahahahaha! Brighton is the place for ANYTHING!

xxx

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I have my memories ๐Ÿ˜‰๐Ÿ˜‰๐Ÿ˜‡

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If you have memories, you were doing it right!!!! ๐Ÿคฃ

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Mmmmh!!!

Seemed so at the time.

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That is all that matters!!!!!

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Well done, hope you do soon start feeling like yourself soon...

I often wonder if I ever will at 9mg....my blurred vision is now so bad and balance it`s making me housebound....but it`s also making me bloody determined on 10th Oct when seeing Endo to get answers, or asked to be referred to another dept....or go private.....anyway, hope you had a lovely holiday, and did wonder about you under that roof!....

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Bummer Longtimer! I do see that people have issues at the lower mg too... which scares the crap out me! I always thought the problems were at the 50's, 60, and 70 mg's! YES, give em hell and demand answers! ; ) The holiday was just what the doctor ordered... thank you! ๐Ÿท ๐Ÿฅ“๐Ÿท๐Ÿง€๐Ÿท

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Congrats! Well done.

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๐Ÿ‘๐Ÿป Thanks Sandy1947, not sure I had a lot to do with it, but I didn't give up I guess....

How are you feeling? Good I hope!

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Just started tapering from 4.5 to 4. PMR pains lurk but I ignore them. Iโ€™m craving sugar lately and went from 107 lbs. to 110...emotional eating reins at this time...ice cream called my name last night!

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4.0! Way cool!!!!!! Good on you, ignore the pain as long as you can!!!! I am at the heaviest weight I have even been, in my life!!!! We arrived home from France on Saturday and since then, no wine, no bread, no ice cream, no cheese, no lovely milky coffee... NOPE! It is time to get serious! ๐Ÿ˜ 

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Serious is no fun! Let me know how it goes! I exercise about an hour day so I let myself slide. Maybe Iโ€™ll start today...you inspire me!

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Just went for a walk (or with this knee, should I say a "hobble?") 1.9 miles. Had a nice coffee, no sugar. Watched hubby eat a lovely pastry thingy, filled with feta cheese and spinach! Mmmmmmm. I had nothing. I am determined!!!! Will be on the stationary bike after dinner!

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Very proud of you! I was good so far with only 2 squares of 90% dark chocolate! Iโ€™ll try to continue. You motivate me. Thanks!

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I motivate YOU? Look at your photo... you are stunning! And wicked thin! I look like I am 9 months pregnant! I did cheat last night and had a juice glass of red wine... after being in France, drinking GREAT wine... it's hard to go COLD TURKEY! You keep up the good work... ๐Ÿ‘๐Ÿป

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A little wine is good for you and doesnโ€™t count as a cheat! I stopped drinking immediately after diagnosis, eliminated sugar, night shades, took Tumeric tablets and was the ideal patient. 15 months later I realized I wouldnโ€™t fall off the earth if I had sugar! When I tell dates I donโ€™t drink some think Iโ€™m a recovering alcoholic! I say I prefer dessert.๐Ÿฆ๐Ÿฅง๐Ÿฐ๐Ÿฉ. Sunday I had a date with a short, egomaniac dermatologist after which I took myself out for ice cream!

So sorry about the bowel situation. G-d is hysterical from you! Thanks for the compliments. This age thing is kicking my butt!

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You gotta live life... otherwise why are we sticking around, right? A little sugar here... a little wine there. It's all good! Good on you, after a date with short, egomaniac dermatologist... I would have had the Banana Split!!!! ...with extra chocolate sauce!

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No banana split here...todayโ€™s lunch date is with a builder who volunteers at an animal shelter. Salad is my plan.

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Down to 25, wow. I love all the number facts. You've done so well Melissa and travelled a long road. x

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THANKS teesher!!!!! In one way it seems like I've been fighting the battle for years, but in another, it seems like the last 10 months have flown by! Funny how our mind warps time, huh? Hoping you are feeling A-OK!

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Keep it going M. Well done. Another one for the list:- Zager & Evans........1969...." In the year 2525" ......

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Ahhhhhhh, GOOD ONE! Thanks! Hope you are well and that you get that BS straightened out at the GPs and "Myhealthcare!"

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Lovely sunny day here & feeling ok ta. Just back from an amble up the cut. A few fishermen there today sitting in silence staring into the water. Had to limbo under their extended fishing poles!!!! (must be joking). Another one for the list:- "25 hours (minus 1) from Tulsa"..... Gene Pitney. Must be the endorphins!! I'll pack in now!

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Congratulations Melissa, it has been quiet the last few days so welcome back.

PS: ...and the 25th is Christmas Day! xxx

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Thank you!!! In a weird way it is good to be back, I guess it's the normalcy I missed...

YES! of course!!!! Christmas Day!

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Wow Melissa, what an amount of knowledge! my pred head could not cope with all that!

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Hehehehehehehe. And that is why God invented "Google" my friend!

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๐Ÿ’ƒ๐Ÿ’ƒ well done Melissa. Great news

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Cheers Hollyseden!!!! Hope you are well!

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Yes thank you I'm plodding along nicely. Tapering dead slow n successfully ๐Ÿคž This week going for 5.5 taking the advice of the learned on here and going .5 at a time. Onwards and downwards for us all ๐Ÿ˜‹

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Best of luck! I will keep my fingers and toes crossed for you!

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Well done Melissa keep it going. ๐Ÿท๐Ÿฅ‚๐ŸŒน

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Thanks CT-5012, I'll try!!!! ๐Ÿท๐Ÿฅ‚๐ŸŒน <<< Back at ya!

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Congratulations! Your journey has been one step forward and two steps back but look at you now! So pleased for you!

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Many thanks Insight329. ...but wait, could it be one step forward three steps back? Watch this space. ๐Ÿ˜ฒ

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If watching, an uninformed viewer might think youโ€™d been playing hopscotch. But yet, you persisted!

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๐Ÿคฃ Hopscotch? With this knee????

I did indeed persist and yet I continue to be tested... ๐Ÿค”

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Yep! Ainโ€™t it a b*tch?

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It is indeed!

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Just remember that life stops testing you, it means you've passed...on.

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Melissa that is a fantastic achievement. Bloody well done. Super star. I really get how hard itโ€™s been for you and I applaud you. Xx

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Cheers Daisychain12!!!! Not sure what I did much, but go along for the ride... and do my best to stay on this bucking bronco, but it does feel like an accomplishment for some reason. I hope you are feeling better! xx

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Iโ€™m hanging in there. Iโ€™ve got from 75 and even a couple of days over 100, to 13. I have many side effects from reducing. I am agitated and have a bike temper and huge appetite. But I have a clearer head at times and the pain is not back so thatโ€™s good. Whatโ€™s this about you making some masks? Xxx

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Ahhh, I did read about your nasty temper... Hahahahahahaha! That's me normally! ; ) Hang in there.

I'll message you about the mask project... ๐Ÿ‘น

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So happy for you Melissa - such a journey - and I'm pleased you took a break from here when in France - and clearly had some OTHER fun. I am now on 16 mg after a rather faster taper than I would have preferred - but had to consider the myopathy side effect - which is now fading thank heavens. This is not my lowest in my approx 20 months since diagnosis but getting back there. You WILL feel more like your 'old self' soon - I am - it REALLY DOES happen !!!

XX

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GREAT NEWS Rimmy! I am thrilled to hear the myopathy is fading!!!! ๐Ÿ‘๐Ÿป ๐Ÿ‘๐Ÿป ๐Ÿ‘๐Ÿป Yes, France was a good distractor... although I have managed to conjure up some new, "fun" and interesting tests of my tolerance and perseverance! Watch this space.

Love to Ruth! She must be THRILLED about myopathy fading too... no more cranky Rimmy! ๐Ÿ˜‰

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Good for you! 25! Much better number x

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Well Done Melisa 2๏ธโƒฃ5๏ธโƒฃ

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Cheers Mrs Nails! ๐Ÿ’…๐Ÿผ xx

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And isn't it "almost" fun to set up your weekly pills and see progress being made?

I keep a monthly calendar taped to my bathroom mirror so I can see what's ahead.

So happy for you at 25!

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Good idea MartiFL! Thanks for the tip!

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Good for you!! You have much cause to celebrate given the long and sometimes difficult journey youโ€™ve travelled over the past 10 months. Iโ€™m hoping your pred reduction journey goes smoothly (and likely slowly) moving forward.

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Thank you PMR Canada! However, watch this space... I'm afraid it's one step forward and three steps back! *laughing* ..but it is what it is! ; )

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OMG how knowledgable you are, but I wish you well , and how many things do you know about 20 when you get there lol

xx

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Ahhhhh Jeannie29... Google is my best friend! ; )

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Wow,you certainly know your 25โ€™s mamici,l wish you a successful taper ,l hope you are feeling well ,you have been through so much to get this far and l am so pleased for you xx

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Thanks Grant148!!!! I am Queen ๐Ÿ‘‘ of Google!

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Well done your getting thier

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Cheers Rose54! Perseverance and a whole lot of swearing! ; )

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Congratulations to you! Itโ€™s a long and winding road and youโ€™re a brave traveler! โค๏ธ

How are you feeling?

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Could we meet for World Pasta Day on the 25th of October? You break your diet, I do the same. Congratulations are definitely due you, but are we going to begin to miss those rants, fulminations, 'roid rages and other effusions? Brava!

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Ooooooooo sounds like a plan!!!!!! Nah, no worries. I will always have something to rant about... roids or no roids! xxx

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This is really good news. These are manageable numbers. Thereโ€™s that song in the year 2525 too, if man is still alive............

Itโ€™s red and yellow ( my synthesia or whatever it is).. who would have thought this day would come when you were delirious on 80 was it?

I want to say well done but I was told off because it was a subjective judgement. ๐Ÿคซ well done sshh! Xxx

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Hi SJ

I think it was Zager and Evans who sang that eerie song first - but maybe Bowie did a version - it would have suited him - it is rather 'creepy' and depressing but sadly apt as well know ... And why can't you say 'well done' !!? - everybody else here is 'subjective' even if it is in their reference to some 'chosen' scientific data - in the end we are all always 'subjective aren't we - and anyway I thought this forum is about the integration of the experiential and the 'scientific' so nobody should be 'telling you off' !

Rimmy

X

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Oh yes! It wasnโ€™t Bowie at all.

I think someone got upset because if you canโ€™t get down from your Pred dose, it is not through lack of effort, so why cheer on those that do?

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Well we can't begrudge the 'lucky' ones as after all it isn't really about 'effort' just the course of the disease in each individual - and that IS always 'individual'. I am sometimes myself amazed at what some people have done or seem to be doing and wonder why I couldn't be doing that myself - but let's face it we all know our limitations when the 'hit' us and in the end nobody should be telling anyone off - especially not someone as empathic as YOU SJ !

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Seriously! I think we all need to take a "chill pill," and RELAX! Nobody should be telling anyone off, especially SJ!!!! ...and you are right Rimmy, she is one of the most empathic people I know!

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Who "told you off," I want a name!!!!!!! ๐Ÿ˜ก

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Sheโ€™s perfectly nice and had a good point. Will power gets us nowhere with tapering. You do sound fierce, 25 suits you. Where is my mask? Get the paper mache out. ๐Ÿ˜

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I am fierce! ๐Ÿ‘น will be there by the new year! Fingers crossed!

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'Fierce' ๐Ÿ‘น can be good ..... in a creative context - but be careful as 'they' put some very brilliant women especially artists 'away' like Camille Claudel - 30 years in an asylum !! - I hope I don't end up there myself - but I'm not 'fierce' or brilliant enough to be too threatening .... whereas you ....

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