Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for September 2018

Confused and distraught

I had recently flared at 45mg, or at least what I perceived to be flare, headache, tender scalp, even to lay head on pillow. Went to 65mg which controlled all...

I had recently flared at 45mg, or at least what I perceived to be flare, headach...

gtate1914

•6 years ago

15 Replies

Plymouth uk

Hi I wonder if there is anyone out there from Plymouth with spinal stenosis spine fractures etc who can’t now not walk would like to have a chin wag I feel a...

Hi I wonder if there is anyone out there from Plymouth with spinal stenosis spin...

Rusty8

•6 years ago

13 Replies

Once upon a time....

This post outlines how my diagnosis came about and why I’m feeling a little more positive. I’d been ‘unwell’ for a while, backwards and forwards to the GP...

This post outlines how my diagnosis came about and why I’m feeling a little more...

Paula-kent

•6 years ago

16 Replies

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ARAVA... Help!

Started Arava. 3 weeks in. Went off prednisone. I am shuffling and have poor cognitive functioning!!!! Did not have this. I have had episodes in the past that...

Started Arava. 3 weeks in. Went off prednisone. I am shuffling and have poor cog...

Kk22

•6 years ago

13 Replies

Should I have the shingles vaccination

I know this has been discussed before, I have recently reached that significant age and I reckon I will be offered the shingles vaccine when I go for my flu...

I know this has been discussed before, I have recently reached that significant ...

Mama48

•6 years ago

40 Replies

contradictory information!

New and confused 85 yr old retired female. Very fit until sudden onset of PMR 3 years ago. immediate relief from pain distress and tiredness with moderate...

New and confused 85 yr old retired female. Very fit until sudden onset of PMR 3 ...

charlie444

•6 years ago

5 Replies

About me...

Hi everyone. Went along to my first PMR meeting today (3/9/18) and found it really useful. Was a bit tearful on the way home. It was so nice to talk to people...

Hi everyone. Went along to my first PMR meeting today (3/9/18) and found it real...

Paula-kent

•6 years ago

9 Replies

A sight for sore eyes!

Try not picture this, before breakfast stark naked weighed myself.... just off 10 stone put on over a stone. Enough is enough, no more cake no more wine but...

Try not picture this, before breakfast stark naked weighed myself.... just off 1...

Hidden

•6 years ago

44 Replies

So now I know...

So at about 6am this morning I wake up and take my 9mg of Pred with a glass of milk, which I keep in an insulated cup by the bedside, and go back to sleep. A...

So at about 6am this morning I wake up and take my 9mg of Pred with a glass of m...

peace_lover

•6 years ago

27 Replies

PMR/GCA v GCA/PMR

On the NHS web site is says that half of all people with GCA will develop PMR. I have read on other sites that people with PMR should be aware that they can...

On the NHS web site is says that half of all people with GCA will develop PMR. ...

Primarose

•6 years ago

56 Replies

Cancer anyone?

I've been diagnosed with colon cancer - CT today of check, abdo and pelvis. Trying to reduce pred seriously now as I want my immune system to really go into...

I've been diagnosed with colon cancer - CT today of check, abdo and pelvis. Tryi...

Peggles

•6 years ago

22 Replies

How?

This is not a whine and I personally don't feel I ' need to get a life ' tho, you may do. I have my home, my family, my garden, an active mind, I'm sourounded...

This is not a whine and I personally don't feel I ' need to get a life ' tho, yo...

scats

•6 years ago

79 Replies

PMRGCAuk Members' Day & AGM - Coffee Anyone?

Good Morning! I am sure most of you received Kathryn Busby's email regarding Saturday's event. She mentioned that registration will open at 11:00 and the...

Good Morning! I am sure most of you received Kathryn Busby's email regarding Sa...

Hidden

•6 years ago

48 Replies

Difficulty getting to and staying asleep

I only managed 2 hrs sleep last night. Is this all part of the joy of PMR or the Prednisolone

I only managed 2 hrs sleep last night. Is this all part of the joy of PMR or the...

Wraysbury

•6 years ago

30 Replies

Ruby aged just 5.

Thought I’d share a picture of my little Australian granddaughter who has just had her 5th birthday! In her garden in Boambee Valley NSW.

Thought I’d share a picture of my little Australian granddaughter who has just h...

SheffieldJane

•6 years ago

29 Replies

PMRGCAuk Members' Day and AGM

Hi I’m going to this next Saturday, in London. Is anyone else going?

Bamber99

•6 years ago

11 Replies

Need some travel advice

Some of you may know that my lovely GP has retired so I am seeking some advice on this forum. Next week I head off to Canada for 3 weeks and will be doing a...

Some of you may know that my lovely GP has retired so I am seeking some advice o...

allykat

•6 years ago

35 Replies

Actemra Is Now In My Life

Hi everyone, Kentishgirl Girl Here, we I am now on actemra, I'm not happy about it! the possible side effects scare me to death!!, the data sheet indicates you...

Hi everyone, Kentishgirl Girl Here, we I am now on actemra, I'm not happy about ...

Kentishgirl

•6 years ago

17 Replies

LONG TERM EAR ACHE

Hi everybody. Is it possible to have almost long term ear ache (6 weeks) while coming down on Pred. Esr low (5) been on Pred for nearly 5 years. Got down to...

Hi everybody. Is it possible to have almost long term ear ache (6 weeks) while ...

Reethebeat

•6 years ago

18 Replies

My new PMR toys

Used to be that I would buy a new pair of shoes or earrings. Now, it's a fancy-dancy pill splitter and pill box case. I figure that if I'm gonna be cutting...

Used to be that I would buy a new pair of shoes or earrings. Now, it's a fancy...

MartiFL

•6 years ago

12 Replies

I am going the wrong way but know it's right!(I think)

Hello again.I had got down to 5.5mgs of Prednisolone but after an extremely stressful summer...1) I am in the middle of a welcome divorce but the nitty -gritty...

Hello again.I had got down to 5.5mgs of Prednisolone but after an extremely stre...

Dewdrop456

•6 years ago

18 Replies

The dreaded face fuzz

Morning all. Just thought I’d let you ladies know that I have found a wonderful gadget called ‘Flawless’ which I purchased on line. It gets rid of the facial...

Morning all. Just thought I’d let you ladies know that I have found a wonderful ...

Suet3942

•6 years ago

19 Replies

Pain over Greater Trochanters

I am a 74-year-old male clinical psychologist working four days a week. This is the first time I have posted on this website, but I'm already grateful for how...

I am a 74-year-old male clinical psychologist working four days a week. This is ...

lew49

•6 years ago

24 Replies

Is it a Headache or GCA?

Hi everybody. I am currently on 12.5. The last time I was here I was getting a lot of pain in the temple region. I saw my opthamologist and he increased...

Hi everybody. I am currently on 12.5. The last time I was here I was getting a...

shazstep

•6 years ago

8 Replies

Am I on the right track!

On Thursday I had my monthly appointment with my Rheumie. At the time I had mild aches in my legs, hips, and neck. We both suspected it was due to my long...

On Thursday I had my monthly appointment with my Rheumie. At the time I had mild...

AltonBay

•6 years ago

23 Replies

So another quick update. Started on 15mg Pred for 2 days ..

So another quick update. Started on 15mg Pred for 2 days taken around 7am with little change to pain and morning stiffness, upper and to 20mg for the past 5...

So another quick update. Started on 15mg Pred for 2 days taken around 7am with ...

KinnearD

•6 years ago

7 Replies

Update

This is a update ref damage to leg Yes it looks horrible but I’m only showing you all to let you know you must take care when you are getting older and on...

This is a update ref damage to leg Yes it looks horrible but I’m only showing y...

Rusty8

•6 years ago

37 Replies

If I had only known…

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/01/if-i-had-only-known/ Warning; This blog post may contain some strong language. If...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/01/if-i...

Hidden

•6 years ago

92 Replies

Wow-amazed that so little stress can cause such flare-ups

I did not consider stress as a component of my PMR--after all I'm in my seventies and I didn't get my gray hair and wrinkles from living the highly protected...

I did not consider stress as a component of my PMR--after all I'm in my seventie...

Celebrant

•6 years ago

25 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Confused and distraught

Plymouth uk

Once upon a time....

ARAVA... Help!

Should I have the shingles vaccination

contradictory information!

About me...

A sight for sore eyes!

More questions about low dose of Pred and Adrenal Insufficiency

So now I know...

PMR/GCA v GCA/PMR

Cancer anyone?

How?

PMRGCAuk Members' Day & AGM - Coffee Anyone?

Difficulty getting to and staying asleep

Ruby aged just 5.

PMRGCAuk Members' Day and AGM

Need some travel advice

Actemra Is Now In My Life

LONG TERM EAR ACHE

My new PMR toys

I am going the wrong way but know it's right!(I think)

The dreaded face fuzz

Pain over Greater Trochanters

Is it a Headache or GCA?

Am I on the right track!

So another quick update. Started on 15mg Pred for 2 days ..

Update

If I had only known…

Wow-amazed that so little stress can cause such flare-ups

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