Hi everyone, Kentishgirl Girl Here, we I am now on actemra, I'm not happy about it! the possible side effects scare me to death!!, the data sheet indicates you can suffer horrific side effects, having the desese in itself is a pathway to horrible side effects! and to add this lot to the mix, just adds more uncertainty.
On Wednesday, my doctor now wants to add Addreolate? he says to protect my bones? My husband did a great deal of research on this drug, and what he found was shocking!!
Mercy the developer and maker of this stuff, lied, and cheated their way into the market, they were challenged by the food and drug administration numerous times, for their inappropriate business practices.
They spent millions of dollars lobbying congrest to get this product approved and on to the market, and of course our money/power hungry senators, and congressmen gave them what they wanted.
I have arbitrarily decided to not take it!! I feel that it puts me at another level of risk, actemera is bad enough!, what do you guys think, are any of you on alendronate? if so, what has your experience be?
One last thing, the doc, reduced my pred down to 17.5 mg's from 20, tapering to 10, at 2.5 a week, my markers were all negative!😊 for those of you in the States, happy labour day, hope where you are living, mother nature is going to be kind to you?
To the rest of this great band of brothers, and sisters, be well, be safe, Love one another.