Hi everyone. Went along to my first PMR meeting today (3/9/18) and found it really useful. Was a bit tearful on the way home. It was so nice to talk to people who understand but depressing to hear how long some have been suffering ☹️
I’ve just bought a book on Amazon which will be arriving tomorrow and hopefully by joining this site I’ll learn more about this unfortunate condition.
Hi - and welcome. Having PMR for a long time isn't as bad as you might think. Because whatever else, you learn how to manage it and you just do things differently. I promise.
It was good to meet you today. Im glad you have joined this site as you will learn so much to help you on this journey.
You too Suzy. I bought the book you were talking about (should arrive tomorrow) and certainly feel ‘better’ knowing there are people who will listen.......and understand. 😊
It will get better, over the two and a half years I have taken my PMR/GCA to Australia, USA, Iceland and Ireland but, and it is a big but, pacing yourself and having lots of rest is essential. We maybe didn’t see so many places but we did do some really lazy trips which we enjoyed just as much. It has also taught my OH how to walk slowly. Bonus!😁
Hi Paula
Welcome to Our Group 🌺
Probably a little daunting at your first meeting, there’s lots of us on here so you’ll have all the support & guidance you’ll need.
I went to a couple of Meetings but it wasn’t for me, but on here I’ve made so many friends & buddy’s. People who you get on well with, those who can help when your confused or don’t know what to do, those you make you laugh (Uncle MB 😂) those who’ll comfort you.
We come in all shapes n sizes, youngish & more mature, from all over the globe, so invariably there’s someone around if you have a question in the middle of the night!
Hope you feel a bit better now & my tip is rest as much as you can at the beginning especially if you don’t feel well but if you’re up for it, a nice walk on a sunny day does you good.
Don’t think about the future, make it about the here & now.
Best Wishes 🌺
Mrs N 💅🏼
Yay Angela xxx
Have you bought Kate Gilbert’s book? That’s the one we recommend. Available on Amazon. Don’t be downhearted. We are all unique and you won’t necessarily have it for a long, long time. It changes and becomes easier but each phase is a new challenge I find. Part of feeling tearful might just be relief that others understand completely. I have had it for 30 months and have adapted quite a rich life around it. I also, hardly dare say it, feel as if something is lifting and I’m becoming more me. Although there really is more of me. This definitely needs to be addressed, I’ve been lazy for a few months, pining for my motivating grandson whom I used to take care of and has now gone to Australia.
Jane darling I feel for you so much. I will always be here if you need a cyber hug. I am struggling with masses of lard ( ok slight exaggeration) so we can try to get that sorted together. You are right in what you say to Paula. The group is just beyond wonderful. Love. Linda xxxx
Greetings from one of the long-timers you met yesterday at the Maidstone meet-up.
I could see how much you rightly needed understanding from your family. To your parents you will always be young - therefore capable, to your children you will always be Mum - therefore capable!. PMR has removed their prop and they are having difficulty accepting this.
From time to time there are some really helpful contributions on this forum from people explaining how PMR affects their lives. If you can show the family someone else's description of how it affects them it may help to convince them that you are not 'making it up'.
Meanwhile, be kind to yourself and know that there are plenty of us here who do know how you feel and will always listen.
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