First off I am sorry for not answering my personal messages and not sure if I will have enough energy to even comment on posts.
My son had his teeth deep cleaned and got an infection in his blood. He now has endocarditis and is awaiting open heart surgery to replace his aortic valve. His wbc was over 500 and is now getting closer to normal. He is only 47. His right leg is really hurting him and the say he might have an abscess. He was going to have surgery on his leg first but they cancelled it.
I am utterly exhausted and my hips are killing me. I went back up to 12.5 mgs as the ten just wasn’t holding me. My anxiety level is thru the roof. When I am not at the hospital I am vegging out at home. I have not gone every day as it is too much but have made it every other day.
Again sorry if I don’t respond right away. I will update as he gets better. They say his age is really on his side.
All the best to you both Lin - virtual hugs winging your way. xxxx
What on earth did they do? On the basis of that, I shall maintain my distrust of dental hygienists - all present and correct after 65 years of fairly rudimentary dental care!!
I forgot he has had 3 strokes that were not damaging. He was told if you have an autoimmune illness you need to take antibiotics prior to deep cleaning. One stroke made him mean and goofy but that passed.
I didn't know that you had to take antibiotics ,I have had mine done and no one said anything ,This is why I say this site is so informative . Snippets here and there all the time are so useful .
Yeap, the older dentists still give you antibiotics, the younger ones don't really believe in that practice. Being allergic to most antibiotics and ending up in the ER from the side effects, I'm not sure which is better.
This is terrible for Lin and her son and I really agree with you. I've never had specialist hygiene treatment but have just registered with a new dentist who insists I make an appointment, although she conceded that my hygiene was very good. What is the difference between deep cleaning of teeth and the old fashioned scale and polish?
Only the name has been changed to confuse the innocent...
I had a ceramic inlay done a few years ago, shortly after OH had had one done. Nothing was said to either of us at the time about having hygienist appointments to make an insurance valid. He never did get told that - but I got a call saying I had to have one, or rather, 2 per year to give me a 5 year guarantee on the inlay. It meant an exam and possibly deep clean. For a mere 80 euros a time. In 5 years that came to the price of a new inlay. I felt it didn't say much for his confidence in his own work but OHs has been fine. I wriggled out by saying I was on anticoagulant therapy - oh, I must ask my doctor. Since I knew the GP woldn't have a clue and I wasn't likely to see the cardiologist soon I left it. Haven't heard back from the dentist...
Darling Lin you poor girl you must be frantic. I am so sorry. OF course you are both in my heart and thoughts. He is young and strong and they are doing all the right things. Don't worry about replying. Much love to you sweetheart. Linda xxxxx
All the best. Hospital visiting trips are exhausting at the best of times, so it sounds like a good plan to go alternate days. Don’t worry about being antisocial not keeping up on here; you have bigger concerns. If he was previously well, I hope they are looking for why he succumbed as well as getting an abscess.
So sorry ,Don't forget too look after yourself as well .I hope your son is ok ,What a worrying time for you .Prayers for you both and if you need the steroids .Then you NEED the steroids . Let us know how things are .
Wishing your son a full recovery and best wishes to you both, take care of yourself, you are right to pace yourself with the visiting. We're all thinking of you. Love and hugs x
Hi Lin, first can I say, I have a now adult son who has been in a similar situation sometime ago and has survived. How open minded are you regarding wanting him to pull through ?
"IF" you are open minded enough to want real assistance, you should seek the help of a Reiki Practitioner or group of them. It`s a form of energy healing which works very well, but only if you are open to wanting it. It can be done without attending the patient. Where to find such a person/s, search on the web for a local member.
So sorry to hear about your son, I had something similar (Viral Myocarditis) at age 44 and narrowly escaped a meeting with my mortality after 2 heart attacks out of the blue and in close succession. A subsequent Angiogram showed no damage to my heart and, amazingly, 100% cardiac health despite the battering from the virus. I was incredibly fortunate. A pal of mine (similar age to your son) had Endocarditis too, he needed a replacement heart valve but got back to life as usual afterwards.
Let's hope your Ron sails through the op and, as you say, age should be on his side. Hopefully he's in safe hands at the hospital, take care of yourself and keep your fingers crossed. Although I know, easier said than done.
Dear Linda, my heart aches for you and your son. I have walked these steps also, and understand your agony.
When my son was on life support, I ,also, needed to raise my pred dose. I held it steady while he recovered from his illness, (nearly 3 months) .
No discussing prednisone tapering or messing around with the pred....i needed all help I could get, to deal with the stress and anxiety. (I also experienced panic attacks, for which my GP prescribed escitalopram, and it helped.)
I am sending you unconditional mother love, from one grieving mother to another, And prayers for you and Ron.
Thank you so much I am being left in the dark on some of his tests and am told to save my energy until he gets home and needs me there. The walk to get to the hospital and then to his room is over half a mile. My hips are killing me but two days of rest they are much better. He is in a great hospital and apparently they are not taking any chances. Thanks for your prayers.
I, too, knew the hosp ICU was the regions best, and leaving him in hands of caring experts made it easier for me to take some time to STOP. Just stop. And Breathe.
I found the swimming pool and the library, and spent time in both places. It was difficult because I was living in a tiny r.v. On hosp property 500 miles from home and friends.
But... all is past, and his recovery went well, as I pray Ron's will.
So sorry to hear your news, my thoughts are very much with you and your son. Do take care of yourself and be generous with the Pred. It is your friend in times of great stress.
Really sorry this is happening to your son Lin. Hope he makes a quick and excellent recovery, and don't forget to look after yourself too. xx
Wow, I wasn’t expecting such a response please forgive me for not responding to each note. Thank you so much. As of right now he has had the test where they go up the arm to check arteries. Then the one that goes up the groin to the heart. Not sure which one he is having today. They drained the internal access in his leg. He is mostly upset that he has been npo without food or water and now has to wait till 3:30 for next test. I shall be taking him his favorite meal when he gets to eat.
This has been exhausting and I have only gone every other day.
We are all very confident with his doctors and surgeons.
So sorry to hear about your son...please stay positive that his age, the expertise of the surgeons and above all your love for him will carry you both through this time, with love
Linda I’m so sorry to hear this news. Sending prayers that Ron makes a full recovery and that you have love and support to help you through this traumatic time. Love and hugs Linda xx
Sending good thoughts to you and Ron from Florida. We’re hoping for the best possible outcome.
xxoxox
Again I feel bad that I am not answering all your well wishes but I am feeling a bit overwhelmed.
Yesterday my son had surgery on his leg to clear up any infection before doing open heart on him. He now has an open wound with a drain in his leg. It just seems like we get one thing sorted out and he is hit with another. BUT we are all sure he will do fine.
So again thanks for all the well wishes it does make me feel loved.
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