Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,493 members • 38,466 posts

All posts for August 2018

Reducing Pred and possible side effects

I've had PMR for 10 years and GCA for 7 years. With fairly recent GCA episodes over these years I've fluctuated on pred between 5mg and 80mg. Vicious circle...

I've had PMR for 10 years and GCA for 7 years. With fairly recent GCA episodes o...

Rancho

•6 years ago

6 Replies

Diagnosed at 41

Was diagnosed last year with polymyalga at age 41. They think stress brought it on. Is that possible what is other people's experiences? My pain levels vary...

Was diagnosed last year with polymyalga at age 41. They think stress brought it...

TJ03

•6 years ago

74 Replies

Cautionary tale.....!

I was on 8mg pred, and not quite comfortable but OK. So concluded that the PMR was just about under control. However, the deathly fatigue was not! But...

I was on 8mg pred, and not quite comfortable but OK. So concluded that the PMR w...

stellafmdm

•6 years ago

4 Replies

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How can I avoid weight gain this time?

I’m back on the GGA roller coaster, having recovered from my first experience of it in 2014 after two and a half years on prednisolone. I was diagnosed again...

I’m back on the GGA roller coaster, having recovered from my first experience of...

LazyDazy

•6 years ago

11 Replies

The Lighter Side: An Existential Question - Can YOU Help..? ;-)

Greetings All Well, it's another Bank Holiday weekend in Brexit Gripped UK. Make the most of it, Autumn is around the corner. And then Christmas. And then...

Greetings All Well, it's another Bank Holiday weekend in Brexit Gripped UK. Ma...

markbenjamin57

•6 years ago

100 Replies

Well, that was a funny old do!

A quick update on my long running saga of trying to make some sense of just what the flipping eck is going on! Diagnosis of PMR Feb 2018 (Normal bloods) but...

A quick update on my long running saga of trying to make some sense of just what...

Mike1964

•6 years ago

24 Replies

My improved dexascan!!

Jan 2018 first dexascan was normal. Yet, my dear Rheumy wanted me to take Fosamax. I took him a copy of PMRpro’s link to the document showing that there may be...

Jan 2018 first dexascan was normal. Yet, my dear Rheumy wanted me to take Fosama...

DianeA1

•6 years ago

16 Replies

Help with leflunomide

After a week on 20mg leflunomide daily have temporarily stopped because of terrible runs! Only slightly offset by the codeine I take for the spinal fractures....

After a week on 20mg leflunomide daily have temporarily stopped because of terri...

Cally55

•6 years ago

7 Replies

A Day in the Life

Yesterday, started off like every other day... Yogurt & blueberries, read the news, HealthUnlocked, email, FaceBook, eBay, yadda yadda, yadda... It wasn't...

Yesterday, started off like every other day... Yogurt & blueberries, read the ne...

Hidden

•6 years ago

74 Replies

Rheumy appointment

Had an appointment with my Rhuemy yesterday, he's very keen to get me off the preds asap so I had lots to discuss with him about tapering, I was pleased that I...

Had an appointment with my Rhuemy yesterday, he's very keen to get me off the pr...

Hidden

•6 years ago

32 Replies

COATED PREDNISOLONE

Am I right in thinking that with the coated variety of steroids, no yoghurt is required prior to taking them ?

Am I right in thinking that with the coated variety of steroids, no yoghurt is r...

Polylinc

•6 years ago

16 Replies

Giant Cell concerns

Was diagnosed with PMR August 2017, Giant Cell Dec. 2017...started Actemra injections twice monthly in May 2018. All has been good but now I am on a...

Was diagnosed with PMR August 2017, Giant Cell Dec. 2017...started Actemra injec...

golfnut67

•6 years ago

2 Replies

Calcium supplements

Hi, Before being diagnosed with PMR last year I was diagnosed with vitamin d deficiency and given d3 which I take daily for life. I have been wondering lately...

Hi, Before being diagnosed with PMR last year I was diagnosed with vitamin d def...

Koalajane

•6 years ago

17 Replies

Unable to take prednisone

Hi, I was recently diagnosed with PMR. I was prescribed prednisone 15 mg and then 20 mg. I had a bad reaction (feeling drugged and high anxiety) to the...

Hi, I was recently diagnosed with PMR. I was prescribed prednisone 15 mg and the...

naturalchoice

•6 years ago

32 Replies

Adrenal insufficiency or what?

I've just had my 16th weekly shot of Actemra and I am tapering 0.5 mg of pred every 2 weeks, now on 5/5.5. My PMR symptoms seem to be under control, I'm in...

I've just had my 16th weekly shot of Actemra and I am tapering 0.5 mg of pred e...

Gaijin

•6 years ago

20 Replies

TAPERING - CAUGHT BETWEEN THE 'DEVIL' AND THE 'DEEP BLUE SEA'

Greetings Everyone I realise I am raising again possibly 'THE' (most) perennial' question we tackle here on the forum - that of the speed at which to taper. My...

Greetings Everyone I realise I am raising again possibly 'THE' (most) perennial'...

Rimmy

•6 years ago

45 Replies

I'm new here and very apprehensive

Three weeks ago I thought my aches were gym related and experienced a sense of satisfaction in working out. This morning I'm recognising the likelihood that...

Three weeks ago I thought my aches were gym related and experienced a sense of s...

KinnearD

•6 years ago

33 Replies

Vitamin D

Here's an article saying we can get too much Vitamin D: http://courses.washington.edu/bonephys/opvitD.html

Here's an article saying we can get too much Vitamin D: http://courses.washingto...

HeronNS

•6 years ago

5 Replies

My brain!!!!!

It is gone! I cannot remember anything for more than a few minutes. It seems to be getting worse now that I am dropping from 7.5 to 7 ! I thought it would be...

It is gone! I cannot remember anything for more than a few minutes. It seems to ...

yogabonnie

•6 years ago

18 Replies

The Lighter Side: Enough of This Silliness Please. Haven't You Lot got Better things to do on a Friday Night? ;-)

Ohh, Words fail me (ok: unusual, I know). Now, as they say: 'Listen-up and Listen Good' You Lot: This is meant to be a SERIOUS Community Health forum where we...

Ohh, Words fail me (ok: unusual, I know). Now, as they say: 'Listen-up and Liste...

markbenjamin57

•6 years ago

145 Replies

Sjogren’s ?

I have had PMR for nearly four years and via DSNS I am now just about down to half a mg. I went to the doctor fairly recently over a number of issues and had...

I have had PMR for nearly four years and via DSNS I am now just about down to ha...

MaryWR

•6 years ago

31 Replies

Re: what’s it all about?

Just an update on yesterday’s symptoms... glad to say that headache etc eased off last night. Doses of paracetamol are taking effect. Thanks for all your...

Just an update on yesterday’s symptoms... glad to say that headache etc eased of...

Cyclegirl54

•6 years ago

6 Replies

Am I turning into a werewolf?

One of the crazy things I have been experiencing on this journey is my teeth feel so sharp! Crazy, right. but they feel like the tops have been sharpened into...

One of the crazy things I have been experiencing on this journey is my teeth fee...

Celebrant

•6 years ago

6 Replies

Tight burning calves

Sorry if this sounds a stupid question, but does anyone suffer from really tight burning calves,and could it be related to PMR I’d be grateful for any advice...

Sorry if this sounds a stupid question, but does anyone suffer from really tight...

Jeannie29

•6 years ago

20 Replies

Sooooo tired...sleeplessness...adrenals?...add-ons...

Since May I have been breathless. Waiting for appt with respiratory consiltant. 18 week wait list. Some days feels like last breath.Bloods showed sugar up and...

Since May I have been breathless. Waiting for appt with respiratory consiltant. ...

karools16

•6 years ago

20 Replies

water infections

I have had a spate of water infections {6} Plus necessary anti biotics which has all left me absolutely drained of any energy I don't know what to do about it...

I have had a spate of water infections {6} Plus necessary anti biotics which has...

kingharold11

•6 years ago

29 Replies

The Lighter Side: Good News. MB's PMR / Pred Paradox no. 86 Resolved - with thanks to You Lot ;-)

Greetings All Good News: thanks to the many of you responded to my recent Post about transient Dizziness and offered various thoughts about the cause,...

Greetings All Good News: thanks to the many of you responded to my recent Post a...

markbenjamin57

•6 years ago

47 Replies

Hypothyroidism

I have noticed on several posts recently the mention of thyroxine. Out of curiosity can we do a check to see how many of us with poly also suffer with...

I have noticed on several posts recently the mention of thyroxine. Out of curio...

Xanthe12345

•6 years ago

25 Replies

Help please;Pred tapering plan

I know the answer to this has been posted, but I just can't find the post I read a few weeks back. Sorry to ask for it to be repeated. Started 15mg pred in...

I know the answer to this has been posted, but I just can't find the post I read...

Hidden

•6 years ago

19 Replies

Anyone got snowy vision

I was finished reading in bed last night - I had a low bedside light on both side of the bed and switched off the light on my side. Then it looked to me as if...

I was finished reading in bed last night - I had a low bedside light on both sid...

Theziggy

•6 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2018

Reducing Pred and possible side effects

Diagnosed at 41

Cautionary tale.....!

How can I avoid weight gain this time?

The Lighter Side: An Existential Question - Can YOU Help..? ;-)

Well, that was a funny old do!

My improved dexascan!!

Help with leflunomide

A Day in the Life

Rheumy appointment

COATED PREDNISOLONE

Giant Cell concerns

Calcium supplements

Unable to take prednisone

Adrenal insufficiency or what?

TAPERING - CAUGHT BETWEEN THE 'DEVIL' AND THE 'DEEP BLUE SEA'

I'm new here and very apprehensive

Vitamin D

My brain!!!!!

The Lighter Side: Enough of This Silliness Please. Haven't You Lot got Better things to do on a Friday Night? ;-)

Sjogren’s ?

Re: what’s it all about?

Am I turning into a werewolf?

Tight burning calves

Sooooo tired...sleeplessness...adrenals?...add-ons...

water infections

The Lighter Side: Good News. MB's PMR / Pred Paradox no. 86 Resolved - with thanks to You Lot ;-)

Hypothyroidism

Help please;Pred tapering plan

Anyone got snowy vision

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