Giant Cell concerns: Was diagnosed with PMR August... - PMRGCAuk

PMRGCAuk

20,295 members38,022 posts

Giant Cell concerns

golfnut67 profile image
2 Replies

Was diagnosed with PMR August 2017, Giant Cell Dec. 2017...started Actemra injections twice monthly in May 2018. All has been good but now I am on a prednisone taper (5 mg for 10 days) along with the Actemra twice monthly injections. Headaches have begun again, along with jaw pain. Should I increase the Pred. Just concerned...Golfnut67.

Written by
golfnut67 profile image
golfnut67
To view profiles and participate in discussions please or .
Read more about...
2 Replies
PMRpro profile image
PMRproAmbassador

Speak to your doctor urgently. It is possible you need more pred - contrary to belief, Actemra does not automatically mean you can reduce to zero pred, some patients still need some pred and how much varies. The Actemra is only a steroid sparer for many and some pred is still required. But none of us is medically qualified and cannot advise on things like this.

golfnut67 profile image
golfnut67 in reply to PMRpro

Thank you.....

You may also like...

Advice and giant cell concerns

ideas to help would be appreciated. My concern is the giant cell problem.i can handle the...

Giant Cell Arteritis

Started with 60 mg Prednisone and slowly decreased after 2 months added Actemra injections once a...

Return of Giant Cell Arteritis

first had GCA and PMR. I was told sometime ago that you could not have GCA twice and in fact...

Giant Cell Arteritis and Prednisone

had Giant Cell Temporal Arteritis . Had a cat scan, was given a 5 mg initial dose of Prednisone and

\"Treating Giant Cell Arteritis\"

hospitalhealthcare.com/rheumatology/treating-giant-cell-arteritis