Hypothyroidism: I have noticed on several posts... - PMRGCAuk

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Hypothyroidism

Xanthe12345 profile image
25 Replies

I have noticed on several posts recently the mention of thyroxine. Out of curiosity can we do a check to see how many of us with poly also suffer with hypothyroidism. My thyroid has been underactive for Forty years.

2nd anniversary of steroids this month and trying to get down to 6mgs this month. Starting to feel wobbly and a bit down and still taking Mirtzapine for panic attacks and depression that set in earlier in the year!

Does anyone ever feel like chucking all their pills in the bin!

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Xanthe12345 profile image
Xanthe12345
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25 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi,

Yes to throwing pills in bin!

I was on statins and tablets for high BP years before GCA came along, and ever since I finished Pred almost 2 years ago have been reducing the number of tabs for BP (back in the day it was decided a cocktail of tablets was better than just one - all changed now!) and questioning statin but GP insisted I stay on them.

Ironically following my knee replacement op my BP has been very low, so no tablets. Saw him yesterday to discuss, “well as BP good, come off them, don’t need Omeprazole either if not taking aspirin”. “How’s cholesterol?, oh that’s good so come off the statins as well!”

Could have knocked me down with a feather! He must be in demob mood (due to retire soon)!

So all I’m on now is Adcal & paracetamol (for arthritis).

As for number with PMR/GCA and Thyroid problems, you could as the question!

Xanthe12345 profile image
Xanthe12345 in reply toDorsetLady

I can’t wait to get off the pred and Mirtzapine.... then I remember the pain and anxiety and feel thankful for having wonderful meds!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toXanthe12345

Hi again. Just thought I had slight over active thyroid when I was 17-18yrs old. My mum recognised the early symptoms as both elder brothers had same problem.

Because it was caught early it was treated with radiation therapy- one session only if I recall - no problem since! No medication.

Xanthe12345 profile image
Xanthe12345 in reply toDorsetLady

Strange how you forget earlier illnesses. Glad you are ok

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toXanthe12345

Well it was so long ago! 🤔 and as I say didn’t really impact on life that much, and at that age was just a minor blip in life!

LexiDavis profile image
LexiDavis

I was diagnosed with PMR a year ago. I was diagnosed with an under active thyroid over 40 years ago.

Xanthe12345 profile image
Xanthe12345 in reply toLexiDavis

Does seem strange that so many of us with hypo also get polymalgia.

Daisychain12 profile image
Daisychain12

Several years of thyroid playing up then got thyroid cancer. X

Xanthe12345 profile image
Xanthe12345 in reply toDaisychain12

Sorry you got thyroid cancer ....how are you feeling now?

CT-5012 profile image
CT-5012

Hyper thyroid 15 years ago radiation pill so now under active, PMR diagnosed early March 2016 GCA two months later. Interesting.

PMRpro profile image
PMRproAmbassador

It will depend on the underlying cause - if it is autoimmune then that probably left you at higher risk of developing another a/i condition at some later point. And being hypothyroid can be a cause of similar symptoms to PMR.

Rose54 profile image
Rose54

PMR 3 years 8 Preds

Underactive thyroid Hashimoto's for 14 years 125 mg Levothyroxine a day

Omanain profile image
Omanain

Hi, My thyroid has been under active for about 30 years. How will you check the numbers?

Sorry to hear you are depressed it makes everything difficult to cope with.

But hang in there.

Grants148 profile image
Grants148

Hi Xanthe,l have an under active thyroid,just’bordeline’ apparently and have been taking 50 micrograms of levothyroxine for about eight years,six years prior to PMR. I do not like having to take pills but could not have functioned without the steroids.

Ciar profile image
Ciar

Became hypothyroid about 3 years ago, one year before PMR (possibly less, as PMR symptoms in hips and pelvis area started about the same time as hypothyroid). Doc suspected Hashimoto’s, though no confirmation by blood test. PMRpro once told me that autoimmune disease can be a collection of symptoms that gets diagnosed by which disease(s) your set of symptoms most conform to. I think I’m still collecting them.

suzy1959 profile image
suzy1959

Hypothyroid for the last 26 years. On 125mgs Thyroxine. PMR for 6.5 years.

Linda369 profile image
Linda369

Hashimoto’s for 15 or so years. Thyroxin 100 = too much, 75 = not enough! So alternate. PMR since May this year, was on 15mg, now down to 11mg. Pain all good, just the dreaded fatigue! But can’t sleep through the night anymore!

Xanthe12345 profile image
Xanthe12345 in reply toLinda369

I know it sounds strange but I know when my thyroid is not right when the hairs on my arms vanish.... besides the fatigue! always had hairy arms! Lucky I am very fair skinned.🙈

SusanEleven profile image
SusanEleven

Hashimoto’s for decades. PMR for 2.5 years so far. Recent positive P-ANCA test with MPO antibodies, no active vasculitis for now. Just expanding my collection of AI diseases!

Xanthe12345 profile image
Xanthe12345 in reply toSusanEleven

I had an anca test but not sure why.

SusanEleven profile image
SusanEleven in reply toXanthe12345

Just a hunch my rheum doc acted on. She knows I’ve had lifelong sinus issues but they got worse.

May10 profile image
May10

I have had an underactive thyroid for over 30 years and am in my 3rd year of PMR. My readings for my thyroid go up and down hence I have to keep adjusting the meds. I can really tell when I am not taking enough. My exhaustion gets worse.

Xanthe12345 profile image
Xanthe12345 in reply toMay10

I know the thyroid and poly fatigue is the worst.

Valnvaughan profile image
Valnvaughan in reply toXanthe12345

I have been hypothyroidic since my 20s 50 years about! My mother, brother and sister are too! My daughter age 39 developed hyperthyroidism.

I have been 3+ years PMR.....now at 3.5mg per day.

With other conditions high BP, osteoarthritis and preventative stomach protection and statins.....now take 14 different pill types a day! Have a chart to remind me what to take when as some are contraindicated. Yes, yes I wish Icould bin them all! But could I exist with the consequences.

Hopefully, my 2nd hip replacement in October ( first in May) will sort out osteo pain and greatly reduce tablet consumption.

Valerie

Celebrant profile image
Celebrant

interesting to me that the docs say you have an underactive thyroid--take a pill-BP is up- take 3 pills-Pre-diabetic-take a pill. I think they don't know that the leg bone is connected to the knee bone!

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