Giant Cell concerns: Was diagnosed with PMR August... - PMRGCAuk

PMRGCAuk

20,883 members39,328 posts

Giant Cell concerns

golfnut67 profile image
2 Replies

Was diagnosed with PMR August 2017, Giant Cell Dec. 2017...started Actemra injections twice monthly in May 2018. All has been good but now I am on a prednisone taper (5 mg for 10 days) along with the Actemra twice monthly injections. Headaches have begun again, along with jaw pain. Should I increase the Pred. Just concerned...Golfnut67.

Written by
golfnut67 profile image
golfnut67
To view profiles and participate in discussions please or .
Read more about...
2 Replies
PMRpro profile image
PMRproAmbassador

Speak to your doctor urgently. It is possible you need more pred - contrary to belief, Actemra does not automatically mean you can reduce to zero pred, some patients still need some pred and how much varies. The Actemra is only a steroid sparer for many and some pred is still required. But none of us is medically qualified and cannot advise on things like this.

golfnut67 profile image
golfnut67 in reply to PMRpro

Thank you.....

Not what you're looking for?

You may also like...

Dose increase

I have always been on a split dose of methylprednisolone and my latest was 4mcg at breakfast and...

Possible Giant Cell Arteritis

Hello, about 8 years ago I had a bypass surgery of my intestinal arteries at the Cleveland Clinic....

Looking for typical Prednisone reduction schedule new on Actemra

Haven't been around much lately. This has probably been the worst, six months of my seven years...

Covid and a hive type rash

I’m Day 3 of having Covid (got it from hubby who’s today thankfully tested negative 😃) I’m not...

Symptoms recurring on 3.5 pred.

I have had PMR for two years now and struggled with flares but felt OK and more active again at...