I've had PMR for 10 years and GCA for 7 years. With fairly recent GCA episodes over these years I've fluctuated on pred between 5mg and 80mg. Vicious circle familiar to many as you get low on pred then a GCA outbreak and up goes the pred and the slow journey down.
Early episodes of GCA responded to 60mg of pred in 4 days as one of my classic symptoms was double vision alongside some of the other indicators. The last 3 years when double vision comes on and I up the pred to 60mg and sometimes 80mg it doesn't stop the double vision and this just goes when it pleases sometimes 4 weeks later.
So the last 3 episodes I haven't upped the pred and the double vision goes when it wants mainly weeks later. I've not had major other symptoms like the jaw or tender scalp or headaches. The Orthoptist thinks its 4th nerve palsy as does my rheumi now. The eye Consultant thinks its GCA. A TAB when diagnosed was negative because I was on 60mg for a week before says my rheumi.
Any thoughts on this welcomed as it still worries me when double vision comes on and I don't increase the pred but then I really want to stay at a low dose as well.
Anyway I'm now down to 5mg the lowest for years and although I've got aching shoulders etc from pmr the main problem is a bruised heel and possibly Achilles making it very hard to put weight on and walk. I have not had an injury and this just came on. Sometimes I get a little bit in the left heel but all the time in the right.
Does anyone know if this could be related to reducing pred?