Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,578 members • 38,655 posts

All posts for May 2018

The Lighter Side: The Pain / Pleasure Paradox with PMR / GCA? A Quick-ish Report from the South Wing at Benjamin Mansions... ;-)

Greetings to all Polymylingerers and Giant Cell Heroes, wherever you are in this great and trusted Community. First, my apologies for not actively...

Greetings to all Polymylingerers and Giant Cell Heroes, wherever you are in this...

markbenjamin57

•6 years ago

28 Replies

hypnotherapy?

has anyone tried hypnotherapy or acupuncture to help with the pain of PMR?

caterpillar

•6 years ago

10 Replies

First Actemra infusion update

I made it! From beginning to end I was at the infusion center for 3 1/2 hours. All went very smoothly and without any reactions. I am now thankfully on track...

I made it! From beginning to end I was at the infusion center for 3 1/2 hours. ...

CRW-68

•6 years ago

3 Replies

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No news

Hello everyone Unfortunately I have not gotten any news. But headache is still there. Pain in shoulder is still there. I did however got a call from the...

Hello everyone Unfortunately I have not gotten any news. But headache is still t...

Hali12

•6 years ago

10 Replies

Now what?

I have all the PMR and GCA symptoms, have been on Prednisone 60mg for 10 days and I had a biopsy on Wens. I just got a call that the biopsy was negative......

I have all the PMR and GCA symptoms, have been on Prednisone 60mg for 10 days an...

kay7954

•6 years ago

14 Replies

First Actemra infusion today

A bit nervous, today I will be having my first Actemra infusion. In January I started on 60 mg of prednisone, am down to 30 mg currently. My Rheumatologist...

A bit nervous, today I will be having my first Actemra infusion. In January I s...

CRW-68

•6 years ago

9 Replies

High inflammation level

Hi I was diagnosed with pmr in oct 2017 and started on 15 mgs of pred at the moment I am on 12.5 one day and 10 the next my dr does not want me to lower any...

Hi I was diagnosed with pmr in oct 2017 and started on 15 mgs of pred at the mom...

Kathb1

•6 years ago

10 Replies

Knee replacement

Has anyone with PMR had a partial or total knee replacement? I had an arthroscopy (washout) of my knee in December, but looks like some form of replacement...

Has anyone with PMR had a partial or total knee replacement? I had an arthrosco...

Maryan-Fred

•6 years ago

6 Replies

beginnings of a flare vs reduction in Pred ?

I've had a good experience with Pred after being diagnosed with PMR Nov 17. Initial does of 20mg removed *all pain* within a day, even stiffness in the knee...

I've had a good experience with Pred after being diagnosed with PMR Nov 17. Init...

diplodocus

•6 years ago

12 Replies

Forty, Quaranta, Vierzig, Cuarenta, Quarante, Σαράντα...

As I was feeling like crap a couple of weeks ago, I did not reduce from 45mg to 40mg, as planned. It was disappointing, but it was for the best. And then,...

As I was feeling like crap a couple of weeks ago, I did not reduce from 45mg to ...

Hidden

•6 years ago

56 Replies

Alternatives

Well I thought I asked this days ago. Either I got interrupted or decided sleep was first. Lol So here goes. Has anyone successfully treated PMR with...

Well I thought I asked this days ago. Either I got interrupted or decided sleep ...

CrazyTrucker

•6 years ago

34 Replies

what to take besides prednisone

taking 10mg prednisone now, been on prednisone for 2yrs, doctor wants to get me off prednisone ask me what i thought about cell cept or rituximab, has anyone...

taking 10mg prednisone now, been on prednisone for 2yrs, doctor wants to get me ...

Uzziah7

•6 years ago

15 Replies

Steroid withdrawal or what?

I dropped from 15mg to 14mg 8 days ago. I’m still getting some aching but my biggest concern is sometimes my eyelids feel so heavy, like they just want to...

I dropped from 15mg to 14mg 8 days ago. I’m still getting some aching but my big...

Nikkigabi

•6 years ago

15 Replies

Back home again

I am home and no worse for wear. I’m maybe a little more achey after the long car trip but all unpacked with everything put away. I want to thank everyone for...

I am home and no worse for wear. I’m maybe a little more achey after the long ca...

Lanakay

•6 years ago

5 Replies

Big thanks to you all

I had my sigmoidoscopy today and am very pleased to say - all is well - I'm surprised how well I feel, we really don't appreciate how bad stress can make us...

I had my sigmoidoscopy today and am very pleased to say - all is well - I'm sur...

Dee1jay2rac3

•6 years ago

8 Replies

Gca

Just wondering does anyone know why some people get pmr and others get gca or both. Does the gca come on later as we reduce the steroids? 🙂

Just wondering does anyone know why some people get pmr and others get gca or bo...

Xanthe12345

•6 years ago

24 Replies

Morning (and all day) stiffness

You'd think, after all this time, that I'd be an expert on this disease. However I think I've learned a new thing. It seems from what Dr Google says that...

You'd think, after all this time, that I'd be an expert on this disease. Howeve...

HeronNS

•6 years ago

48 Replies

Cushing's syndrome due to prednisone

Wondering if any of you have been diagnosed with Cushing's syndrome after being on prednisone. I've been on 20 mg.s prednisone since 7/17 for PMR until 3 weeks...

Wondering if any of you have been diagnosed with Cushing's syndrome after being ...

carolpatriarco01

•6 years ago

2 Replies

Weight gain or loss?

Since being diagnosed with gca and pmr and on prednisone, has anyone lost weight instead of gaining weight? I keep hearing it's common to gain, but in my case...

Since being diagnosed with gca and pmr and on prednisone, has anyone lost weight...

gtate1914

•6 years ago

30 Replies

All are awesome

Good morning everyone. I woke up again with severe headache and sharp pain in my head and shoulder now. My doctor yesterday put me on a 6 day prednisone...

Good morning everyone. I woke up again with severe headache and sharp pain in my...

Hali12

•6 years ago

6 Replies

Boasting!

Just been shopping by myself for the first time in almost 3 years. Celebrating with coffee and carb-free brownie. Anyone else fancy boasting, we must recognise...

Just been shopping by myself for the first time in almost 3 years. Celebrating w...

scats

•6 years ago

68 Replies

Reduction after a flare

I recently had to double my dose from 5mg to 10mg. psychologically a biggie as I felt I’d gone back 2 years! But boy did it knock the pain into touch!...

I recently had to double my dose from 5mg to 10mg. psychologically a biggie as I...

Jennykk

•6 years ago

28 Replies

The Budgified Look!

How I looked 10 months after diagnosis......the term is what Professor Dasgupta used .....I was covered with psoriasis too. Did you look like this?

How I looked 10 months after diagnosis......the term is what Professor Dasgupta ...

Telian

•6 years ago

78 Replies

Is it ok to use metronidazole cream for rosacea when on prednisone?

My GP has just diagnosed my very red cheeks as rosacea and has prescribed metronidazole topical cream 1% (it is an antibiotic). He said it was ok to use with...

My GP has just diagnosed my very red cheeks as rosacea and has prescribed metron...

Mrs-CJ

•6 years ago

25 Replies

The 2:00 am “inflammatory cascade” and new rheumy

Hello everybody, I’m PGR/GCA since beginning of Jan 2018. On 40mg pred until 6weeks ago, was fired by my rheumy, then tapered to 37.5, to presently on 25....

Hello everybody, I’m PGR/GCA since beginning of Jan 2018. On 40mg pred until...

Mstiles

•6 years ago

22 Replies

update scan past monday..............

Today, I have received an email from PALS, stating that the Manager of the Radiology Dept is to investigate my complaint, and will then reply. At least it's a...

Today, I have received an email from PALS, stating that the Manager of the Radio...

karools16

•6 years ago

7 Replies

Prolia side effects

Hi Haven't posted in a while but been keeping up. Would like some feedback on my latest experience. Fell in Feb. and fractured my spine. Recovered well and...

Hi Haven't posted in a while but been keeping up. Would like some feedback on ...

peanuckle

•6 years ago

29 Replies

Wish I could post the wonderful aroma.

I feel like this photo of my wisteria. Blooming good today. Thank you all for your kind replies. I am great to help with others but get really cross with...

I feel like this photo of my wisteria. Blooming good today. Thank you all for yo...

morrison

•6 years ago

34 Replies

Can Prednisone affect Thyroid tests?

For years I suspected my thyroid was underactive. My mother developed this after having children My Dr. said thyroid test is normal and I was surprised because...

For years I suspected my thyroid was underactive. My mother developed this after...

KarenHal

•6 years ago

2 Replies

WISH THEY WOULD MAKE THEIR MINDS UP!.

Take it, don't take it?. I had a response from the Department of Rheumatology and it was short and to the point. Your referral has been rejected and we refer...

Take it, don't take it?. I had a response from the Department of Rheumatology a...

Ta1ch1

•6 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

The Lighter Side: The Pain / Pleasure Paradox with PMR / GCA? A Quick-ish Report from the South Wing at Benjamin Mansions... ;-)

hypnotherapy?

First Actemra infusion update

No news

Now what?

First Actemra infusion today

High inflammation level

Knee replacement

beginnings of a flare vs reduction in Pred ?

Forty, Quaranta, Vierzig, Cuarenta, Quarante, Σαράντα...

Alternatives

what to take besides prednisone

Steroid withdrawal or what?

Back home again

Big thanks to you all

Gca

Morning (and all day) stiffness

Cushing's syndrome due to prednisone

Weight gain or loss?

All are awesome

Boasting!

Reduction after a flare

The Budgified Look!

Is it ok to use metronidazole cream for rosacea when on prednisone?

The 2:00 am “inflammatory cascade” and new rheumy

update scan past monday..............

Prolia side effects

Wish I could post the wonderful aroma.

Can Prednisone affect Thyroid tests?

WISH THEY WOULD MAKE THEIR MINDS UP!.

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