All are awesome : Good morning everyone. I woke up... - PMRGCAuk

PMRGCAuk

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Hali12 profile image
6 Replies

Good morning everyone. I woke up again with severe headache and sharp pain in my head and shoulder now. My doctor yesterday put me on a 6 day prednisone tapering. It’s a 4mg tab. I took it this morning. Still in a lot of excruciating 😖 pain. Having my MRI this afternoon. I’ll keep you guys posted.

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Hali12 profile image
Hali12
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6 Replies
SheffieldJane profile image
SheffieldJane

I feel puzzled by your doctor’s treatment of you. Even if the biopsy was clear he can’t be sure that you don’t have Temporal Arteritis in another part of your artery. It would be more usual to treat you as if you had it because your symptoms seem to fit. Prednisalone safeguards your eyesight. It is essential that the doctor gets to the bottom of this. Have you been referred to a Rheumatologist ? Do keep us posted.

enan-illuc profile image
enan-illuc

Hi Hali12,

I agree with Sheffieldjane that the biopsy may not show the GCA especially if you had been taking Prednisone. Prednisone helped me but it does have it's own problems and side effects and it does protect your eyesight. Sheffieldjane's advice to see a Rheumy is also very good advice, I would do it as soon as possible. I hope the MRI goes well.

teesher profile image
teesher

Dear Hali, take note of all the wise words on here, especially from PMR Pro. We have all felt desperate and been in that dark corner where you find yourself. Take the pred, let it do its work. Most of us have been on it for years and we're still here, fighting, holding each other up. You will get there, promise. xx

Hey Hali12, Any news for us???????? Did you have the MRI? Any results?

Hali12 profile image
Hali12

Hello everyone

Unfortunately I have not gotten any news. But headache is still there. Pain in shoulder is still there. I did however got a call from the neurologist office for an appointment though in July prednisone not helping on Day2. I’m going to wait over weekend and call my doc on Monday. It is closed now. I am however still getting sharp pains between my shoulder blade. I’m very tired and exhausted even if I doing anything around the house. Please let me know is it normal to still have numbness on the side where the biopsy was done. I have no feeling sensation above the incision.

PMRpro profile image
PMRproAmbassador in reply toHali12

When the biopsy is done the nerves in the surrounding skin are damaged, sometimes even cut. It is the same with any surgery - and I have numb areas around scars from 30 years ago! The numbness around your biopsy scar is quite normal.

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