First Actemra infusion today

[CRW-68]

A bit nervous, today I will be having my first Actemra infusion. In January I started on 60 mg of prednisone, am down to 30 mg currently. My Rheumatologist wants me to start the Actemra so I can titrate off of the prednisone faster due to my experiencing so many negative side effects from prednisone.

I am just hoping that Medicare will pay for the infusions. The reason for the infusions is due to the very fast growing cataracts in both eyes make it almost impossible to give myself the injections. I have PMR/GCA with positive ANCA-MPO and positive ANA diagnosed in December.

If anyone would be interested I could keep everyone updated on my Actemra journey.

[PMRpro Ambassador]

Yes please - it would be both interesting and useful.

[enan-illuc]

Hi CRW-68,

I would be very interested in your experience with Actemra. I am on it, for almost a year, and have no problems. I am not sure but I think the infusions are covered by Medicare but the shots are not, your Doctor should be able to tell you. I hope the Actemra works for you as it did for me.

EI

[Hidden]

Wow! Big day... good luck! I hope it works for you and you experience minimal (if not zero) side effects. Yes, please let us know how you get on with it! I know there are some of us who are wondering if it might be right for us and it would be good to know what others think!

Best of luck!!!!!

[CRW-68 in reply to Hidden]

Thank you.

[SheffieldJane]

Yes please! Wishing you the very best of luck.

[shazstep]

Please share your experience with this group. I find the knowledge here the best I have come across. We all react differently and I find myself finding my own symptoms in many posts. Mentally I find it very helpful.

I do hope you have success with Actemra.

[carolpatriarco01]

Yes please keep us updated on how you are doing ... we are all interested and love hearing everyone's storiys🤗

[Telian]

Coming in late so ditto to all CRW

[CRW-68]

👍