Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,072 members • 39,818 posts

All posts for May 2018

Prednisone, tapering, disease effects

Has anyone seen a list that shows what are side effects of prednisone, effects of tapering, and the disease itself? Would be helpful to try and differentiate...

Has anyone seen a list that shows what are side effects of prednisone, effects o...

gtate1914

•6 years ago

14 Replies

Where do I go next?

That's probably a rhetorical question because 'next' is a phone consultation with my GP next Tuesday, which seems a long time to wait right now. The story so...

That's probably a rhetorical question because 'next' is a phone consultation wit...

Louisepenygraig

•6 years ago

17 Replies

You all are awesome

Im so blessed to have such caring people. I will call my doc today. And I’m so glad to see that I’m not alone. Being on this group has me understanding. Please...

Im so blessed to have such caring people. I will call my doc today. And I’m so g...

Hali12

•6 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Nothing Means Something and you Need to Worry!

Hmmm? I guess even those that "can," rant anyway! https://rantingsofamadwomanblog.com/2018/05/16/nothing-means-something-and-you-need-to-worry/ Warning:...

Hmmm? I guess even those that "can," rant anyway! https://rantingsofamadwomanb...

Hidden

•6 years ago

57 Replies

Stopping cold turkey on prednisone I’m so sorry for not mentioning

Hello everyone I’m just wondering with all the problems that I have been having with this prednisone headache body ache. Is it at boils down to me maybe. I...

Hello everyone I’m just wondering with all the problems that I have been having...

Hali12

•6 years ago

11 Replies

Still here

Good morning everyone. I made it thru the night with the pain coming and going. I’m still home. I still have very bad headache and pain in shoulder pain I...

Good morning everyone. I made it thru the night with the pain coming and going. ...

Hali12

•6 years ago

2 Replies

Mobility scooter

Have any of you tried a mobility scooter? I’ve had my new ‘toy’ 4 weeks now and am able to go shopping - alone - for the first time in months. I wizz round...

Have any of you tried a mobility scooter? I’ve had my new ‘toy’ 4 weeks now and...

Constance13

•6 years ago

10 Replies

Tapering Pred

Apologies for re-asking a common question but I’m struggling to find old posts! A classic case of a stupid user I’m afraid. I’m 47 and was diagnosed with PMR...

Apologies for re-asking a common question but I’m struggling to find old posts! ...

GingerK

•6 years ago

15 Replies

Flare at 3 mg

Had a flare a while ago .increased fron 4mg to 6mg...and esr came back down ...to19... Back down to 3mg and ear gone up again. To 26..but felt ok for 3 weeks....

Had a flare a while ago .increased fron 4mg to 6mg...and esr came back down ...t...

Katrinaroper

•6 years ago

6 Replies

Just down.

Don't know why? Maybe everthing. Came down to 8mgs today. And so tired and fed up and exhausted . Sorry for my rant x

Don't know why? Maybe everthing. Came down to 8mgs today. And so tired and fe...

morrison

•6 years ago

21 Replies

Sharp pain in shoulder and back

Hello everyone I was hoping if anyone could help me. Decide what I should do. Headache is still there. Now for the last couple of days I have been having...

Hello everyone I was hoping if anyone could help me. Decide what I should do. H...

Hali12

•6 years ago

13 Replies

Sideswiped .... again!

Early April found me discussing raised CRP, mild Anaemia and newly discovered degenerated lumbar disks with my GP. He expressed his concern that in the light...

Early April found me discussing raised CRP, mild Anaemia and newly discovered de...

fren

•6 years ago

13 Replies

supplementals and swelling in knuckle

I've heard that it is best not to take calcium the same time you take your prednisone, and was wondering if anyone has heard the same about omega? It all gets...

I've heard that it is best not to take calcium the same time you take your predn...

pwalker801

•6 years ago

4 Replies

Methotrexate

Hi I was wondering if anyone could advise me. I’ve had PMR for a year and am struggling to reduce much beyond 11mg and am currently going through a flare. The...

Hi I was wondering if anyone could advise me. I’ve had PMR for a year and am str...

marsh63

•6 years ago

6 Replies

ALENDRONIC ACID - To take or not to take, that is the question! M

My GP is not very happy that I have not taken it! How many of you have taken it? Has it caused problems with your oesophagus?? I am worried about taking it...

My GP is not very happy that I have not taken it! How many of you have taken ...

Lee1945

•6 years ago

59 Replies

Flare has subsided--now what?

Thanks to all your good advice, I went up to 12.5 mg of pred after a flare at 7.5. I've been on 12.5 for almost a week, and I feel good and have hardly any...

Thanks to all your good advice, I went up to 12.5 mg of pred after a flare at 7....

judyb100

•6 years ago

21 Replies

Doctors ignoring female complaints

Hello everyone Hope this link copied about the disparity in treating women with symptoms as “all in your head” and the difficulty in getting doctors to...

Hello everyone Hope this link copied about the disparity in treating women ...

Mstiles

•6 years ago

18 Replies

Diabetic Eye Screening,Cataracts,Tears & Sunglasses. (advice/experience please)

Bear with me! The results are in for my annual screening. Diabetic Retinopathy. OK. Cataracts starting to form! Runny eyes caused by "Dry Eye". ( need tear...

Bear with me! The results are in for my annual screening. Diabetic Retinopathy. ...

Hidden

•6 years ago

38 Replies

Job Interviews (yech) How Much to Tell?

This is (almost) off topic, but you all are the best source of knowledge for even something like this: Along with all this medical stuff, I was made...

This is (almost) off topic, but you all are the best source of knowledge for ev...

billinSurbiton

•6 years ago

8 Replies

The Steroid Taper - Advice, if you please?

Sorry for not checking in for a while... I struggle to keep everything ticking along... WHEN I LAST sought sage advice here, I was reeling from the effects of...

Sorry for not checking in for a while... I struggle to keep everything ticking a...

billinSurbiton

•6 years ago

4 Replies

Foot query

Guys - anybody got fierce foot pain - probably not to do with thePMR but the pain is shocking. I can't come down with the pred - because of the unbearable...

Guys - anybody got fierce foot pain - probably not to do with thePMR but the pai...

powerwalk

•6 years ago

15 Replies

Emotional and getting muscle spasms

Hi I was just wondering if when tapering down (came from 60mg now at 8mg, also am on 162 Actemra weekly) came down to 8mg last Friday. I am finding I am...

Hi I was just wondering if when tapering down (came from 60mg now at 8mg, also a...

Lucylooloo

•6 years ago

13 Replies

Bra gets tight

Thanks for replies. Never thought to check weight throughout the day. Will do and see what happens. My Doctor prescribed vitamin d3 without calcium. Anyone...

Thanks for replies. Never thought to check weight throughout the day. Will do ...

Xanthe12345

•6 years ago

15 Replies

I am not amused....you may be............

Today was my abdominal abdomen appt at the hospital. I have had previous ultrasound scans, usually by a female. My letter said I would probably be given a...

Today was my abdominal abdomen appt at the hospital. I have had previous ultraso...

karools16

•6 years ago

69 Replies

Headache and right side shoulder pain. And incision might be infected

Hello everyone I’m going to doc today. But woke up with a very bad headache pain on the right side down. And my incision was all oozing. Sorry I had no better...

Hello everyone I’m going to doc today. But woke up with a very bad headache pai...

Hali12

•6 years ago

8 Replies

Stuck at 10mg

After a flare a couple of months ago when I'd reached 8.5 I went back up to 10mg for eight weeks and started again with a dead slow reduction - O.5 at a time...

After a flare a couple of months ago when I'd reached 8.5 I went back up to 10m...

maria40

•6 years ago

7 Replies

Happy Birthday PMR!

HAPPY BIRTHDAY PMR! I was diagnosed with PMR by my GP on 16 May 2017 after three weeks of increasing pain etc. so have lived with it for just over a year....

HAPPY BIRTHDAY PMR! I was diagnosed with PMR by my GP on 16 May 2017 after thre...

Maryis80

•6 years ago

14 Replies

Bliss Balls

For when you just have to have a little treat. Ingredients: 1. 1 cup of cashew nuts. 2. 2 tablespoons of raw Manuka honey. 3. 1 teaspoon of vanilla extract. 4...

For when you just have to have a little treat. Ingredients: 1. 1 cup of cashew n...

SheffieldJane

•6 years ago

72 Replies

Ptednisolone

Hi quite new to this, diagnosed in February. I am now on 10 mg of pred and have been for 4 weeks. I feel I am just about holding my own and am very reluctant...

Hi quite new to this, diagnosed in February. I am now on 10 mg of pred and have ...

Horizon12

•6 years ago

4 Replies

Just a question

Has anyone when upping steroids by 3mgs had the terrible hunger pangs again. Came from 10mgs to 9mgs. Alternating from 1 day to the other. Next week will be...

Has anyone when upping steroids by 3mgs had the terrible hunger pangs again. Ca...

morrison

•6 years ago

33 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

Prednisone, tapering, disease effects

Where do I go next?

You all are awesome

Nothing Means Something and you Need to Worry!

Stopping cold turkey on prednisone I’m so sorry for not mentioning

Still here

Mobility scooter

Tapering Pred

Flare at 3 mg

Just down.

Sharp pain in shoulder and back

Sideswiped .... again!

supplementals and swelling in knuckle

Methotrexate

ALENDRONIC ACID - To take or not to take, that is the question! M

Flare has subsided--now what?

Doctors ignoring female complaints

Diabetic Eye Screening,Cataracts,Tears & Sunglasses. (advice/experience please)

Job Interviews (yech) How Much to Tell?

The Steroid Taper - Advice, if you please?

Foot query

Emotional and getting muscle spasms

Bra gets tight

I am not amused....you may be............

Headache and right side shoulder pain. And incision might be infected

Stuck at 10mg

Happy Birthday PMR!

Bliss Balls

Ptednisolone

Just a question

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive