Niggles

[gtate1914]

Just to be sure I understand this word as it is used in this forum.... it means just very slightly, or a sensation of, and not lasting more than a few seconds?? It's a new word for me.

[GOOD_GRIEF]

I take it as "I can stand it but I'd rather not, especially since it might be a sign of worse to come".

[HeronNS]

I use it to mean a slight, nagging sensation that all is not well. A ghost, so to speak, of PMR, enough to remind me it's there, lurking in the shadows, but not enough to really affect my life. It isn't necessarily fleeting, although one's awareness of it may be.

[DorsetLady PMRGCAuk volunteer]

Discomfort. Not strong enough to be called a pain, but something that make you go “oh what’s that?”

[SnazzyD]

Either it comes and goes infrequently (a few times in a day) or it is vague background that can be forgotten with distraction. A ghost is a good description.

[Hidden]

The Oxford Dictionary defines it as: A verb - to cause slight but persistent annoyance, discomfort, or anxiety.

[ConventCassie in reply to Hidden]

I thot you guys made this word up LOL

[gtate1914]

During the last 4 days I have been experiencing the most horrible muscle weakness, fatigue, staying in bed, barely able to move. I feel my dose of pred is not enough, 55 mg.

Here's what happen the previous days. I was on day 11 of 50mg, started having symptoms of more than niggles, head, jaw, then low grade fever. Tried getting in touch with rheumy. Left messages. No word from her. Next day I increased to 60, then later in day to 65. No change. Next day no change in symptoms, still with low grade fever, went to 70 for 2 days. Still trying to reach rheumy, she not responding to any messages even though she insists I call her before increasing. But there has never been a way to get ahold of her on weekends. Starting to panic. Next day symptoms little better, took 60 mg, no low grade fever. Finally after 5 days rheumy calls me and tells me to take 55. I do. But ever since I have had this horrible muscle weakness and fatigue and yesterday I am beginning to have a little more than niggles. Not too bad, though. Have appointment with rheumy in 2 days. I think the 55 is too low. Any opinions from anyone? I do appreciate it.

[PMRpro Ambassador in reply to gtate1914]

It could be the pred - you are on a high dose and it doesn't come with no strings attached I'm afraid! But your rheumy needs to be more proactive at present - and not unavailable when you need advice.

[gtate1914 in reply to PMRpro]

I wish she was more interested. I feel so alone, not knowing what to do. I find this forum more helpful. I guess staying at 60 until I feel symptoms are only niggles and then try to reduce to 55 and stay there until I feel ok. Tapering by her schedule of every week or 2 weeks is not long enough for me and then cannot get in touch with her when having problems.

[PMRpro Ambassador in reply to gtate1914]

No chance of another?

[PMRpro Ambassador]

Duration has little do with it really. Things that are minor and don't really cause a major problem but are there at the back of your mind. If they are there at a low level and you can cope that's fine. But if they get worse - that may be a sign you are at too low a dose or are doing something that isn't helping.

niggle

verb

1.

cause slight but persistent annoyance, discomfort, or anxiety.

"Doreen wanted to discuss matters that niggled at her mind"

synonyms:irritate, annoy, worry, trouble, bother, provoke, exasperate, upset, gall, irk, rankle with;

noun

1.

a trivial criticism, discomfort, or annoyance.

"it is an excellent book except for my few niggles"

synonyms:minor criticism, quibble, trivial objection, trivial complaint, adverse comment, moan, grumble, grouse, cavil;

[Telian in reply to PMRpro]

Nothing to do with the current discussion albeit good.

Do you know why I get my emails from HU seemingly so late compared to everyone else? I go to bed at night and there is no usual email from HU, the next morning it is there and I can see replies going back 16 hours, what's happened in between? Always been a niggle!

[karools16 in reply to Telian]

Snap! Same here.

[PMRpro Ambassador in reply to Telian]

Honestly have no idea - ask HU admin maybe?

[Telian]

That's what I know I should have done but as I was talking to you at the time...thanks