PMR Sudden nose bleed: Sudden severe nose bleeds... - PMRGCAuk

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PMR Sudden nose bleed

ayoung profile image
15 Replies

Sudden severe nose bleeds. Just for no reason, I feel a drop of blood trickle down my face. It drenched a hand full of Kleenex and kept on coming. Pinched my nose tightly and stopped after 5 mins. It happened twice that day and twice the next. Today was okay. Has anyone had this problem?

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ayoung profile image
ayoung
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15 Replies
Rose54 profile image
Rose54

Hi

Is your blood pressure OK ?

Don't know if its a old wife's tell but have heard high blood pressure can cause nose bleeds.

Also preds can cause thinning of the skin so can cause thinning of the nasal passage,

SnazzyD profile image
SnazzyD

Pred makes the small vessels prone to bleeding. If one of these in the nose ruptures it can be a weak spot for a few days so if you blow your nose, bend over (increases pressure), suddenly laugh, cough, it can reopen the clot that has formed. If it is persistent or very heavy it can be cauterised or packed to provide prolonged pressure on it. Worth getting your blood pressure checked too.

ayoung profile image
ayoung in reply toSnazzyD

Thank you for your reply.

piglette profile image
piglette

It happened to me twice last year for no apparent reason, both times I was in bed. I have had no problems since.

ayoung profile image
ayoung

Hoping it does not happen again as I have never had a nose bleed in my lifetime.

PMRpro profile image
PMRproAmbassador

Corticosteroids do make capillary walls more fragile so that could account for the nosebleed. Pred also tends to make some people bleed more. Once a blood vessel is damaged it really doesn't take much to dislodge the clot so repeated nose bleeds are not unusual.

ayoung profile image
ayoung in reply toPMRpro

Thank you for the great info. Sure made me aware of this. Never had a nose bleed in my 74 years.

Telian profile image
Telian in reply toPMRpro

Very interesting...

I had a nose hemorrhage year before last but was on Acitretin, prescribed by dermatology. I was asleep at the time. Rushed to A&E and admitted, plugged nose for 24 hours then cortorised.

It took 12 months for the scab to stop bleeding and heal and used Naseptin and Bactroban even now that scab is constant but hardly bleeds. You and I had a conversation some time back re nasal dryness - I told you I used vaseline on a cotton bud to moisturise the nasal passages - it was two fold really as it was for the scab also.

Needless to say Acitretin was stopped as I was told it was the cause, and not the steroids. What do you think or could it be a mixture of the two? The scab still grows and bleeds slightly if I don't soften it with the vaseline, but thinking steroids has something to do with it now?

PMRpro profile image
PMRproAmbassador in reply toTelian

There are also other things that cause such scabs in the nose - have you seen an ENT specialist?

Telian profile image
Telian in reply toPMRpro

Yes, after the cortorisation GP referred me to ENT twice as was discharged each visit with creams so back to GP and he says its because I'm slow in healing!

Purplecrow profile image
Purplecrow

No nosebleeds, but several ruptured vessles in eyes. No known reason, just bloody eye. Doc said not to worry...but it looks pretty gruesome.

in reply toPurplecrow

I get those "red devil" eyes too. They seem to clear ok though in a day.

piglette profile image
piglette in reply toPurplecrow

I had the red eye look recently, great for Halloween. It took at least a week to go away. It was just in one eye though.

SheffieldJane profile image
SheffieldJane

No but my friend did and it turned out to be related to her blood pressure. My son also had unexplained copious nosebleeds that we put down to being hit in the face with a basket ball at school, causing damage.

Robert17 profile image
Robert17

A bit late getting round to this post. I had a severe nose bleed 6 years ago just before I was diagnosed with PMR. I can't help feeling that what caused the nose bleed might have been one of the original triggers together with the sinus infection I had only just recovered from. Spent 2 days in hospital with a sausage up my nose. It was too high up for cauterization. Bleeding all over the floor at A&E was a very effective way of getting dealt with quickly but I wouldn't recommend it. I still have PMR (or is it Large Vessel Vasculitis?) but down to 2mgs with no adverse physical effects apart from fatigue. I don't know what damage the long term use of Prednisolone may have had though.

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