Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for April 2018

Orchid for Mimici

See my earlier message to Mimici. Thanks to Rugger for letting me know how to send a photo. This is my Orchid today. It still has buds on it. So if you're...

See my earlier message to Mimici. Thanks to Rugger for letting me know how to se...

Footfairy-1

•6 years ago

21 Replies

Arm ache and some neck discomfort

Now 2 years after diagnosis I am on 3mg Pred daily for the last several months. I always feel that 'this is not the best time to reduce'. As I explained before...

Now 2 years after diagnosis I am on 3mg Pred daily for the last several months. ...

Nanor

•6 years ago

15 Replies

Throat and breathing

I am on 30mg of pred. Is it normal to have a sore throat and breathing is so shallow? Dizziness I expected but I am now wondering if that is to do with the...

I am on 30mg of pred. Is it normal to have a sore throat and breathing is so sha...

sharonnorfolk

•6 years ago

10 Replies

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Why am I so tired at 7.5 mg of pred?

Hi everyone. I read your posts every day but haven't written one in quite a while. I started this PMR journey November 2016 (starting at 20 mg of prednisone)....

Hi everyone. I read your posts every day but haven't written one in quite a whil...

judyb100

•6 years ago

38 Replies

Showing articles to your rheumy

I have my appointment with a new rheumy tomorrow, after being let go with my old one, hoping for the best and going in with a positive attitude. Thanks to...

I have my appointment with a new rheumy tomorrow, after being let go with my ...

Mstiles

•6 years ago

41 Replies

Tapering prednisone

I am using the slow method.I started with 20 mg per day last April and am at 9mg to 8 mg this month.When should you start looking at doing a 1/2 mg instead of...

I am using the slow method.I started with 20 mg per day last April and am at 9mg...

Baileyw06

•6 years ago

23 Replies

Feeling tired in days after reducing pred dosage

Do any of you experience feelings of tiredness in the days after reducing pred dose. I've just dropped .5 from 4mg on Saturday and was feeling really wiped...

Do any of you experience feelings of tiredness in the days after reducing pred d...

sennetta

•6 years ago

14 Replies

Scare over

Results from ultrasound show that there is no sign of cancer. So relieved.

Horizon12

•6 years ago

17 Replies

Other Actemera users

My wife's PMR started after she thinks she past a kidney stone ( blood in urine and pain she took an antibiotic and this cleared up. Prior to that she...

My wife's PMR started after she thinks she past a kidney stone ( blood in urine...

mpl615

•6 years ago

6 Replies

Update from Mark??

Just wondering how Mark is getting on - having stopped his pred at 4 mg? Did I miss an update? Thanks.

Just wondering how Mark is getting on - having stopped his pred at 4 mg? Did I ...

powerwalk

•6 years ago

7 Replies

What is normal ? 6.5mgs different pains every day

PMR since Nov. 2014. Three/four relapses when reducing to 8mgs. Using DSNS & 1/2 megs. 9 Months ago I started taking Pred. early morning 5.30am with Yogurt....

PMR since Nov. 2014. Three/four relapses when reducing to 8mgs. Using DSNS & 1/2...

DavidMF

•6 years ago

17 Replies

The $64,000 Question!

So... many of you know I went to see my Rheumy last Wednesday. It was a routine appointment that ended up with her draining, what appeared to be, a...

So... many of you know I went to see my Rheumy last Wednesday. It was a routin...

Hidden

•6 years ago

46 Replies

Nighttime waking

Hi I have only recently been diagnosed with PMR and have been on 15mg of Prednisolone for 11 days, I seem to wake up about 2to 3 am every morning and have...

Hi I have only recently been diagnosed with PMR and have been on 15mg of Prednis...

JanetT58

•6 years ago

37 Replies

Sunshine & Streaming eyes

Lovely sunshine the last couple of days but my eyes stream constantly even with sun glasses on. Is this to be expected after nearly a year on the roids? Not...

Lovely sunshine the last couple of days but my eyes stream constantly even with ...

Hidden

•6 years ago

22 Replies

Reducing Pred symptoms Also taking hydroxychloroquine

Reducing predisone. I just reduced from 4 to 3 mg of pred. I have am experiencing bouts of high frustration. I will be doing something an I just get...

Reducing predisone. I just reduced from 4 to 3 mg of pred. I have am experie...

RNRN

•6 years ago

8 Replies

Steroid injection v pain killers

I would appreciate some advice or opinions on treatment I've been offered. I'm 3 years into PMR and down to 3.5mg prednisolone. I've recently been diagnosed...

I would appreciate some advice or opinions on treatment I've been offered. I'm 3...

margiebell4

•6 years ago

17 Replies

Candida in nose and sinuses

I recently read a post from someone on this site about being treated for a Candida fungal infection that not only affected their mouth but also affected their...

I recently read a post from someone on this site about being treated for a Candi...

Amkoffee

•6 years ago

23 Replies

Curious about new TMJ symptoms with PMR new diagnosis 10 weeks

This TMJ is annoying. It is loud a click with each bite and is painful the next day due to inflammation I’m sure. I must be careful now how chewy my food is....

This TMJ is annoying. It is loud a click with each bite and is painful the next ...

Leilagirl

•6 years ago

5 Replies

Any advice please?

Diagnosed PMR August 2015 and started on 15 mg Pred. After approx 8/9 months developed pain in right buttock. Have always been told this is not due to the...

Diagnosed PMR August 2015 and started on 15 mg Pred. After approx 8/9 months de...

Wenben

•6 years ago

33 Replies

Further to my post on poss vascular connection with Fibromyalgia...

If you found my initial post to this article interesting, then check out this link to a follow up 'critique' article, initially sent to me by Poopadoop &...

If you found my initial post to this article interesting, then check out this li...

Hidden

•6 years ago

1 Reply

Anyone having NO side effects from Alendronate?

Hi, my Dr wants me on it tho my Dexa was normal. Please advise if you have had no side effects from it. Thank you!

Hi, my Dr wants me on it tho my Dexa was normal. Please advise if you have had n...

DianeA1

•6 years ago

27 Replies

Just signed up and fed up with PMR

Hello All I'm in my sixties and diagnosed with PMR at the end of May 2017. I have seen so many different stories and experiences here which have increased my...

Hello All I'm in my sixties and diagnosed with PMR at the end of May 2017. I hav...

Hidden

•6 years ago

17 Replies

Pmr and brownies

So I decide to make brownies for the church potluck tomorrow. I haven't made them for several years since I am trying to cut back on sugar and don't have much...

So I decide to make brownies for the church potluck tomorrow. I haven't made the...

bunnymom

•6 years ago

41 Replies

Newly diagnosed with PMR

This is my first time on here. I’m 63 years old and was recently diagnosed with pmr. Rheumatologist immediately started me on 40mg prednisone. I seem to be...

This is my first time on here. I’m 63 years old and was recently diagnosed with ...

Dejon73

•6 years ago

17 Replies

Could the vascular changes that cause pain in Fibromyalgia also be responsible for PMR pain?

Following my last post, have Just started on the depressing task of reading through all the articles linked to PMR pain in hands & feet & also on Fibromyalgia....

Following my last post, have Just started on the depressing task of reading thro...

Hidden

•6 years ago

3 Replies

PMR/GCA and COPD

For many years I have felt slight wheezy during the autumn months but not enough to affect my normal activities so just put it down to a seasonal allergy....

For many years I have felt slight wheezy during the autumn months but not enough...

Janann25

•6 years ago

16 Replies

GCA

I just watched Trust me i am a Doctor. They covered GCA, but no mention of PMR. Should be on catch up.

I just watched Trust me i am a Doctor. They covered GCA, but no mention of PMR....

Carriacou1937

•6 years ago

7 Replies

Blue Badge and benefits?

I seem to be on a writing roll today ✍️ I’ve read some of posts about getting a blue badge for parking, and so I am wondering, now or in the future, what the...

I seem to be on a writing roll today ✍️ I’ve read some of posts about getting ...

billinSurbiton

•6 years ago

7 Replies

PMR diagnosing protocols?

My NHS GP is a very fine Dr. I have faith in him, even if he got the Steroid tapering routine wrong ( see the drama from .LAST week 🙄) He is the one to...

My NHS GP is a very fine Dr. I have faith in him, even if he got the Steroid tap...

billinSurbiton

•6 years ago

13 Replies

People who have a really hard time dealing with side effects and pain

I wonder. Are there people who have altared their eating habits to non inflammatoric, Paleo or whole 30 who still have big problems with pain and severe side...

I wonder. Are there people who have altared their eating habits to non inflammat...

Pirnilla

•6 years ago

93 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2018

Orchid for Mimici

Arm ache and some neck discomfort

Throat and breathing

Why am I so tired at 7.5 mg of pred?

Showing articles to your rheumy

Tapering prednisone

Feeling tired in days after reducing pred dosage

Scare over

Other Actemera users

Update from Mark??

What is normal ? 6.5mgs different pains every day

The $64,000 Question!

Nighttime waking

Sunshine & Streaming eyes

Reducing Pred symptoms Also taking hydroxychloroquine

Steroid injection v pain killers

Candida in nose and sinuses

Curious about new TMJ symptoms with PMR new diagnosis 10 weeks

Any advice please?

Further to my post on poss vascular connection with Fibromyalgia...

Anyone having NO side effects from Alendronate?

Just signed up and fed up with PMR

Pmr and brownies

Newly diagnosed with PMR

Could the vascular changes that cause pain in Fibromyalgia also be responsible for PMR pain?

PMR/GCA and COPD

GCA

Blue Badge and benefits?

PMR diagnosing protocols?

People who have a really hard time dealing with side effects and pain

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