People who have a really hard time dealing with s... - PMRGCAuk

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People who have a really hard time dealing with side effects and pain

Pirnilla profile image
93 Replies

I wonder. Are there people who have altared their eating habits to non inflammatoric, Paleo or whole 30 who still have big problems with pain and severe side effects?

I do respect that not everybody has the possibility, strength or motivation to do it, but I have done it and do not have either pain, bad side effects or tapering problems. I guess maybe these things would be worse if I ate in a different way. Or not....?

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Pirnilla profile image
Pirnilla
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93 Replies
Longtimer profile image
Longtimer

That`s interesting to know....what have you cut out if you don`t mind me asking....

I have recently been diagnosed (PMR 6 years) with pre-diabetes, have obviously cut out sugar, and about 80% carbs, all I have noticed is 9lb weight loss....no less side affects I`m afraid. I am lowering very slowly.....down to 9.5mg.....

I do believe diet has a lot to do with many things......(what is whole 30?)

Lovely to hear someone finding something that is helping them especially pain.....has it helped with fatigue?........

Pirnilla profile image
Pirnilla in reply toLongtimer

Well, as I started my new eating habits the day I started my medication I don't know, actually, of it helps me with the pain. I have just not had any pain and I don't know if it is because of my eating habits...

I have cut out sugar, processed carbs, grains, most of the red meat. Eats loads of vegetables, fatty fish, green smoothies with turmeric, ginger and coconut oil.

yogabonnie profile image
yogabonnie in reply toPirnilla

Thanks. I am determined. I must get on track here. I wish my doctor would say Bonnie YOU MUST! but he doesnt. I respond so much better to a bit of authority than to my own demand!

Slowdown profile image
Slowdown in reply toyogabonnie

Bonnie, you know you want to so YOU MUST :-) Let's get the low-carbers on the forum behind you and cheer you on, regular updates please!! It does work, and believe it or not you end up craving those gorgeous dark green leafy vegetables .. it's also a very valuable way of taking control which makes you feel much better for a start.

Sitting in bed with morning coffee (with cream) and my Sunday sourdough toast treat :-)

yogabonnie profile image
yogabonnie in reply toSlowdown

okay. today is the day... I will not say I will start tomorrow! thanks.

Slowdown profile image
Slowdown in reply toyogabonnie

Forgive the bossy tone! Good for you. Keep us posted x

ConventCassie profile image
ConventCassie in reply toSlowdown

Easy for you to say with that (to die for) sourdough toast!

Slowdown profile image
Slowdown in reply toConventCassie

One slice, once a week! I'm not a martyr to low carbs...got to have treats.

in reply toyogabonnie

Bonnie YOU MUST ! 😊

Insight329 profile image
Insight329 in reply toPirnilla

Did you cut out dairy?

Insight329 profile image
Insight329 in reply toLongtimer

whole30.com/whole30-program...

For 30 days eat only real food. No processed food. Eliminate some foods.

Longtimer profile image
Longtimer in reply toInsight329

Thanks for that, just had quick browse, would have to see how to get round no grains/legumes......Not eating carbs, they are some of what I eat. I cook all meals fresh from scratch......so would have to rethink my menu!😕

Insight329 profile image
Insight329 in reply toLongtimer

I know! Wouldn’t it be nice if there was a guidebook eat this, not that? One could go crazy trying to follow all the advice out there. But I do know that the low carb/sugar role is important. And I know that I could do a lot better in cleaning up my diet. Which maybe instead of giving Bonnie a gentle nudge, I should give that nudge to me: ditch those store bought salad dressings and condiments, self.

Pirnilla profile image
Pirnilla in reply toInsight329

There is a quite new bok in Sweden, really popular, translated into english, called Food farmacy. It is really a joy to read it, it is Fanny and inspiring with very few no-nos and more of an instruction to add good things. I really recommend it!

Insight329 profile image
Insight329 in reply toLongtimer

Remember, it’s 30 days.

Longtimer profile image
Longtimer in reply toInsight329

Yes, but what is the point if it`s not a permanent thing.....it`s adjusting carbs/sugar forever really I think. I have now got used to salads more for lunch....I just miss 1 round of bread (which OH makes) because I love eggs and things on toast, but what do you soak them up with??

I`m use to it now....I have Dr Michael Mosely`s book very good....

cdenoncourt profile image
cdenoncourt in reply toLongtimer

With Whole 30 the point is you are running your own experiment as you re-introduce certain foods. You need to wait 48 hrs. after a re-introduction to recognize any subtle effects that may not occur immediately. And yes, it's supposed to be permanent that you avoid the things you discovered are aggravating to your body in some way. But you don't have to avoid the re-introduced foods that caused you no problem.

Longtimer profile image
Longtimer in reply tocdenoncourt

Got it now...thank you.....makes sense!

Rose54 profile image
Rose54

Hi

i cut bread out as it makes me feel physically unwell.

lower carbs drastically and limit sugary foods .

yogabonnie profile image
yogabonnie

I am interested in this one. Still have not cut out the sugar and carbs. Weak willed. I was so used to taking care of most things with LOTS of exercise.. triathlons.. long bike rides and 6 mile walks a day.... but now alas I have NOT been doing so much exercise and the weight has piled on!!! However. I am not in pain..just so tired when I do too much. am at 10mg. going to go to 9.5 in a week or two. Wish I could get going on the no sugar no carbs thing. I keep INTENDING to. It seems insurmountable. I am so HUNGRY. !!! or maybe just ALLOWing myself to eat anything I want. Sometimes I cannot tell what is laziness, PMR, being 71, or prednisone. !!

Longtimer profile image
Longtimer in reply toyogabonnie

Probably a bit of each!....

I have surprised myself how easy it is to cut out sugar....I will try at all costs if possible to not become diabetic........My doctor rang me and said cut out sugar, but to be honest I didn't have a very sweet tooth, so after reading up on things and google, decided carbs needed lowering or changing.....I miss bread the most........if and when I am no longer prediabetic I will then have a little carbs each day..........

It's being in the right mindset when deciding to do something....👍

Good luck

Hollyseden profile image
Hollyseden in reply toyogabonnie

Yogabonnie I know exactly what you mean.

"The road to hell is paved with good intentions" 🙄 so I guess I'm on that road. I do try to cut carbs etc but willpower is required and I can't find any in the biscuit tin. 😏

Insight329 profile image
Insight329 in reply toyogabonnie

Bonnie, when i was on steroids a couple of years ago, i could not eat enough. I was always starving. Would eat a ton of food and never feel satisfied and always hungry. When I was told long term steroids, I panicked! Googled how to not gain weight on steroids, low carb came up. Found this site and right away discussion came up on diet and it was stressed that you must go low carb, drop the sugar. I believe Pred procceses carbs differently. I have notgained any weight, in fact lost more, was taken off diabetes list, and I have none, i repeat none, of those wild food cravings. Please trust me, it will be hard the first few weeks, 3 maybe less, but then it's like the carb addition is lifted. I once posted here that the front side of each tooth had been tatoo’d sugar and backside pasr, bread, cake, cookies. So I get not wanting to give those foods up. But you can do it and i guarantee you’ll feel better and I bet that weight you gained will come right off.

Longtimer profile image
Longtimer in reply toInsight329

Yes, I fully agree with all that....

DianeA1 profile image
DianeA1 in reply toInsight329

Here here!!

Rosbud profile image
Rosbud in reply toyogabonnie

You sound so much like me , always exercised to keep weight down and keep fit , now struggling because I love bread and potatoes and am not much of A meat and fish eater and we are almost the same age and on the same dosage of pred , I'm dreading going from 10-9.5 in two weeks as I've struggled this month !

BonnyQuine profile image
BonnyQuine in reply toyogabonnie

I'm 71 too, Yogabonnie. . JUST DO IT!

Cyclegirl54 profile image
Cyclegirl54 in reply toyogabonnie

How about tackling one thing at a time. Like no cakes, crackers, biscuits, confectionery, puddings, ice cream and all other processed treats!

yogabonnie profile image
yogabonnie in reply toCyclegirl54

that sounds like a good idea!!!!

leslielouise profile image
leslielouise in reply toCyclegirl54

Working on it! Great deal of pain! I also used exercise.

SnazzyD profile image
SnazzyD

Hello, from the start in March last year I vowed not to put on weight or become diabetic. I Cut out all carbs other than a few root veg. The hunger was awful with high dose Pred but I could stuff myself to my heart’s content and it wasn’t a problem. No blood sugar swings and after a week or two, no sugar cravings. As I’ve got lower, I’ve dropped my guard a little but still no pasta or rice and one slice of bread (am gluten free) a week. I had plenty of protein, didn’t worry about fat but was dairy free (was before GCA). Also low salt to avoid horrible fluid retention from Pred.

Mstiles profile image
Mstiles in reply toSnazzyD

I need to read more about low carb and no sugar. I’ve cut out bread, pasta, cookies, rice, but hiw about other grains? what root vegetables are OK? Not white potatoes, but how about sweet potatoes? Are a few punches of salt a day OK? So far I haven’t gained weight, it’s just shifted around on my body to more unattractive locations! How about a small square of dark chocolate? Off limits too? My blood sugar was right below the pre-diabetic level last time. Currently on 35mg pred.

Pirnilla profile image
Pirnilla in reply toMstiles

There is only one person who can say what is ok and that is you. According to my book about anti-inflam diet, sweet potatoes are better than white and cold potatoes are better than warm, recently cooked or baked.

Everything with lots of fibres is better than things without. Greeny leafs are perfect.

Raw food is better than fried.

Many of our common spices are anti-inflam aswell, garlic, cayenne, oregano, ginger, turmeric, cinnamon, cardamon.

Sometimes you need a treat. Dark chocolate is better than other candy. Red wine is better than white or beer.

Good luck and remember to practice self compassion!

BonnyQuine profile image
BonnyQuine in reply toPirnilla

I agree with most of this, but not about raw food being better than fried. That is sometimes true, but definitely not always. We need more healthy fats, when cutting out carbs. Just stick to healthy oil (such as extra virgin olive) or butter, avoid v high temperatures, and vary it - don't fry all the time.

Think I could do w a bit of self compassion too. And some dark chocolate! Cheers.

in reply toBonnyQuine

I was trying to remember where research about raw Vs cooked was. Knew I had read it somewhere.

The diabetes nurse told me to have a bit more self compassion when I was telling myself off in front of her. We all have to be reminded of that sometimes

SnazzyD profile image
SnazzyD in reply to

She’s spot on. I think the naughty person approach just makes things worse. I’ve noticed that people who have a good/bad, right/wrong approach just spend a lot of time feeling guilty after ‘transgressions ‘ of which there are plenty. Those who are trying to give themselves love and care and good nutrition seem to do better.

Mstiles profile image
Mstiles in reply toSnazzyD

Agree totally Snazzy D. ! I’ve found when i try to be too strict with myself it sometimes backfires and the rebel takes over resulting in eating a lot of what i wasn’t supposed to”.

PMRnewbie2017 profile image
PMRnewbie2017

Hi. Ditto from me too. I was a snacker and would graze between meals especially on crisps. One month prior to pmr/gca paying me a visit I was told I was prediabetic. This made me so stressed and angry with myself that from that day I cut out all my bad habits. Then the diagnosis so I upped oily fish and veg intake having learned about inflammation and diet etc. I eat three meals a day, cut out bread and pastries and eat minimal amounts of potatoes,pasta,rice etc. I've also stopped eating processed meats like ham, bacon,sausages.

I take omega 3 fish oil supplements trying to achieve 3gram of fish oil daily plus vit k2, coQ 10,Magnesium,Adcal and of course 10mg Pred.

I am retired so don't get up till 8 am but I feel fitter and more energetic(not the pred mania) than I have done for years. My journey with this rotten illness,compared to some, has been pretty easy. My tapering is going smoothly too. I've always been very physically active and fit and I don't have any other health issues so that might be why.

I certainly notice subtle differences in my body if I fall off the wagon and slip in a Danish pastry as a treat. I never really "got it" when people said they were going on a detox diet. I do now, and in a funny way am glad pmr has enabled me to make so many changes in my life. To my diet, how I respond to things which previously would have wound me up, the power of Now and yoga and meditation. We are all so different but what I'm doing works for me and this comes from someone who has zero willpower! It's because I feel the benefit that I keep going.

Pirnilla profile image
Pirnilla

Thank you for your replies, but still noone has replied that didn’t change the eating habits AND having a fair journey with the illness and Pred. Interesting!

Insight329 profile image
Insight329

Xdbx has been posting about her experience with the 6 week food elimination diet that she started. I can’t remember what food was eliminated in week 1 but week 2 is dairy and coffee, I think. I’m interested to see what, if any, changes she’ll have regarding pain.

PMRpro profile image
PMRproAmbassador

I had PMR for 5 years with no pred and not changing eating habits. It was constant pain. Then I had a couple of years of prednisolone and still eating a normal diet - and provided I took enough pred I was fine but couldn't reduce below 9mg without a flare. In about 8 months on Medrol I gained a lot of weight and still had pain, it didn't work except to cause side effects. For the last 6 years I have been on prednisone and also cut my carbs drastically - and I almost never have PMR pain BUT I also refuse to compromise on my pred dose though it is always under 10mg and I have been down to 7mg this time with no PMR pain - just other problems.

I do often wonder whether the lack of carbs really makes the major difference for me to say - no, no pain. Because it is true - I don't have pain or the waddle like so many describe.

Insight329 profile image
Insight329 in reply toPMRpro

I’d sure like to get rid of this waddle. I feel like John Wayne having just gotten off of a horse.

Longtimer profile image
Longtimer in reply toPMRpro

They say we are what we eat, well I won`t got back to sugar, only on rare family treats out.....carbs will be added, maybe 1 slice of bread.....when not prediabetic.

My energy levels have stayed constant now.....so will see if eating differently will allow me to drop to 9mg...without a flare/fatigue.....here`s hoping anyway.....

Good luck with reducing....and hope you are getting some of this wonderful spring weather!

PMRpro profile image
PMRproAmbassador in reply toLongtimer

Well I was yesterday - today is like midwinter here oop north!

in reply toPMRpro

I did a big long message on this thread yesterday about nutritional programmes etc. I believe I deleted as there seemed to be an implied criticism of pressure to adopt a programme that was unfeasibly strict. Basically I eat low carb high fat in the main. But I don't deprive myself. I have noticed better control of my diabetes and management of pred blood spikes but I don't think it impacts much on my PMR itself. I am just going down to 8ng using Dsns. It might stop me feeling worse but not sure it makes me feel any better. I also want to squeeze as much enjoyment as possible into my sad little life😂

in reply to

Oh and I was strict vegan for 8 years and have been strict veggie for 22years since. My health problems strated when vegan and under great stress. I have never found it hard to give up meat. The thing that makes pain worse for me than anything...stress. chivying myself day after day about everything I put in my mouth would create more stress and pain than an ice cream. All things in moderation.

RheaV profile image
RheaV

I'm down to 6 mg of pred. I have very little sugar--in my coffee two times a week, no processed foods, lots of veggies, very little bread. I experience no pain, but I have lost weight, and I can't afford that. I have tried to get the 12pounds back, but I just can't seem to do that.

Longtimer profile image
Longtimer in reply toRheaV

Oh dear, never had to put on weight, always hovered around 10 st mark, neared 11 st with pred but it`s coming off now...

Maybe if and when you get lower, the weight will be easier to gain....good luck...

DianeA1 profile image
DianeA1

Hi Pirnilla,

I used to say 'don't get between me and my chocolate!' Now I say 'don't get between me and my Pred!'

In Jan 2018 when I was dxd wi PMR and went on 15 mg Pred, I looked up 'anti-inflammation diet' and cut out sugar, gluten, processed food, and dairy. It made sense to cut out anything that would cause inflammation! I do not want that PAIN.

Down to 11 - 10 mgs now taken at 2am and have only a few niggles. Very low CRP and sed rate.

Have lost 25 lbs.Being tall, the bonus is that there is so much less pressure on my joints.

My meals sound like yours. I have added Half & Half cream in my one cup of coffee. Occasionally, I have butter on gluten-free bread. Cravings are non-existent. I graze a lot! Grab a fruit, hand full of walnuts, a hard-boiled egg, and drink lots and lots of quality water.

I do, however, take lots of supplements per a nutritionalist and have a goal of 10,000 steps a day.

Mornings are full of energy but I pace, pace, pace. My Dr is thrilled and said most people have cravings for sugar and carbs.

This is now and I will take each blessing with thanks and try to learn from each challenge.

Insight329 profile image
Insight329 in reply toDianeA1

If you don’t have that pain, does that mean that your body is producing less inflammation?

I tell myself when I want more of something, not because I still feel hungry, but because it tastes so good : ‘Don’t feed the Pred’. It’s like, don’t wake that monster up.

DianeA1 profile image
DianeA1 in reply toInsight329

Good question!! I don't know if my diet is helping reduce PMR! But like someone said, diet is 'something I have control over' after being blind-sided by 'that monster'. For some reason, that works for me, tho by nature I am very very easy-going.

I read somewhere that people will move away from pain faster than they move towards something that is good for them.

Insight329 profile image
Insight329 in reply toDianeA1

Wow- Interesting! That was certainly true for me. I changed my diet to avoid steroid cravings and weight gain, not because I wanted to improve my health - even though I had been diagnosed with diabetes just a couple of months before.

Cyclegirl54 profile image
Cyclegirl54 in reply toInsight329

I like that ‘don’t feed the Pred’!

Insight329 profile image
Insight329 in reply toCyclegirl54

I like it, too! I like it so much that I know I probably read it here. :)

ConventCassie profile image
ConventCassie

I’m so confused! I buy a book a week. I don’t know what to eat. Especially since I’m trying to be plant based. I don’t mind the fish - can go there - or the alcohol (only 30 days thank you), but the grains ALL OF THEM, legumes, dairy (no problem) and eggs. What do I eat or take to work? No grains is the issue. I need something with all those greens!

Thanks Longtimer just bought Dr Mosley’s book on the gut. $7 used, I’m getting better. I’ll check out that 30 thing.

Pirnilla profile image
Pirnilla in reply toConventCassie

My diet olika like this: loads of vegetables together with good protein. Good fat like nuts or seeds (pumpkin or sunflower). Fruit, but but too much.

Of course, ConventCassie, It's hard for you to find good proteins. Eggs? Beans? Feta and goat cheese?

ConventCassie profile image
ConventCassie in reply toPirnilla

Beans are legumes & cheese is “dairy” (never tried goat). Eggs are a no no, but maybe not on the 0 one. Looks interesting.

Longtimer profile image
Longtimer in reply toConventCassie

At the end of the day I think you need to know what works for you....our insides are all so different....

I have the book on eating to prevent diabetes.....he was diagnosed as diabetic, and reversed it.....he has several out....5.2diet...it suits me.....it's the Mediterranean way of eating....(not 5.2).....

Good luck...we all need it!☺

ConventCassie profile image
ConventCassie in reply toLongtimer

We sure do. I’m trying to not get “another” autoimmune thing so I need to try. But sometimes it’s like quality of life is a consideration too. And I like my coffee & wine. I was healthy on the Med. Diet. I just eat beans & rice & greens now so I need to make a change. I’m sure I have the gut issue. Baffled about the pro biotics & pre biotics. They all want you to buy their stuff. The dr. In Texas offers a consult just to ask one question with her dietitian and that’s like $350.

Longtimer profile image
Longtimer in reply toConventCassie

My sister has had "gut" problems for many years, but is such a coward and will not be tested, she is in pain, can`t eat many things, has tried every diet and pro/prebiotic there is....no difference.....she had done the "fodmap" diet...whatever that is....but one thing I do know...she doesn't stick long enough to anything, and I think (for what it`s worth) you have to give your body time to change and adjust......it`s my normal now, no sugar, low carbs.....just hope it`s working....

Personally, I wouldn`t pay to be told what you can probably find online. A scientist did an experiment recently on his son (quite willing) he had to eat for 6 weeks....rubbish, which was burgers/takeaways etc....he tested his gut before for good bacteria.....his son felt so ill eating only this....no veg etc, after couple of weeks wanted to stop....no, wouldn`t let him.....at the end of six weeks, even the scientist was surprised how little if none of good bacteria was left....he has been on good food for a while now, and still hasn`t replenished his gut!.......so.......what does that tell us....Sorry to run on so much!.

Good luck, keep us posted.....

ConventCassie profile image
ConventCassie in reply toLongtimer

Thanks. I guess it’s like tapering - much patience.

Longtimer profile image
Longtimer in reply toConventCassie

Dead right it is.....

BonnyQuine profile image
BonnyQuine

Well, I have GCA, diagnosed Nov 2016. A few days after starting prednisolone I had a sort of crisis, which turned out to be steroid-induced diabetes. That's a side effect. (Guess I must have been pre-diabetic before). Blood sugar levels went sky high, and the way to deal with that right away is to cut out sugar and carbs. I was determined to minimise the systemic effects of long-term high blood sugar (which can be nasty) so changed my diet overnight.

As far as I am concerned, changing to a no sugar, low carb diet was a life saver - so no messing about. It does take a bit of getting used to but, after the first few weeks, you adjust to it. I have a blood sugar meter, to check, and manage fine. With the meter, you can see that carbs do cause blood sugar levels to spike. All carbs, including 'healthy' oats and the like.

Breakfast is a banana (for the potassium) and blueberries, with plenty of plain Greek yoghurt. Usually sprinkle some flax seed etc on it too. I eat loads of veg - as much variety as possible, including lots of leafy greens, plus lots of fish, and also meat as I believe older people do need to keep their protein intake up. (To avoid blandness and boredom, I cook w lots of garlic and chilli.) I would NOT cut out dairy, as I want to include as much natural-source calcium as possible - plenty of milk and cheese, in addition to the yoghurt. I have lost no weight, but haven't gained much either. If it wasn't for other people constantly trying to tempt me with cakes, biscuits, scones etc, it would be no problem. But the average British person does eat absolute loads of carbs of all sorts - breakfast cereal, potatoes, pasta, rice, bread, pies, cakes, buns . . . and thinks this is normal - so that what is hard is to keep having to resist when having nose rubbed in it.

The thing is that carbs are cheap, and so form the bulk of many people's diet. And when everyone around you eats them all the time, it seems to become a habit. But, unless you're careful, not a healthy one.

Prednisolone removed all pain within hours, so diet had nothing to do with that. I had quite severe side effects on high-dose pred. Apart from the diabetes, the worst was severe muscle weakness. Don't think diet helped that, but it did and does sort the diabetes. Another pred side effect was bloating, and reducing carbs did help that. Also helped avoid pred weight gain. As I said, from my point of view a life-saver.

Longtimer profile image
Longtimer in reply toBonnyQuine

I agree with al! you have said, and do practically all that you do. I have not been tested for 2 months, so hope my blood test will show at least some improvement......everyone was shocked that I became predabetic because of eating fresh food etc, but the doctor said it's the pred, so not being able to stop th at, what choice is there.

I don't have a sweet tooth, and cut nearly all carbs....also eat dairy.......so fingers crossed.......we can only do our best........

BonnyQuine profile image
BonnyQuine in reply toLongtimer

You're right, we can only do our best. And we are all different, and may react in different ways to different substances. Obviously some of us react in quite an extreme way to pred. In me, its effect on blood sugar levels was shocking. Looks like you too. I am on diabetic medication too, but have been able to reduce that a bit as the pred reduces. Now on 7mg pred daily. Am waiting w interest to see what happens when I eventually get to zero. Fingers crossed.

Good luck,

Longtimer profile image
Longtimer in reply toBonnyQuine

Couldn`t believe that in August last year my habc1 (?) reading for diabetes was 37....then in November 41, then February.....44, have been on pred 6 years, eating nothing different in last 6 months so why?....What a puzzle......but can only do our bit......

in reply toBonnyQuine

After lengthy discussions with diabetes nurse about pred and diabetes I feel confident that I will be back to diet controlled diabetes with Metformin and a weekly injection. The pred meant I had to go on insulin. Because I had diabetes DX about 17years ago and prob had symptoms for 3 years leading up to that I think I am blasé sometimes. I had perfect control for 12 years through diet. I have never been a pastry or processed food person. If I get off pred I am sure I will get off insulin. At the end of the day we have to die if something. I am 57 and don't want to live another 30years I would rather have 10 years of enjoying my days. I might feel different at 67 but life is just a bowl of cherries. Mmmm. Cherries. Low glycemic index for a fruit. 🍒 My hba1c jumped from 47 to 114 in six months. My eyes were on stalks when I saw 114....through my blurry vision😂

Mstiles profile image
Mstiles in reply toBonnyQuine

So glad it’s worked for you! I haven’t cut out dairy, I would find that difficult and never seemed to have an intolerance for it, plus what would you eat for breakfast? I use 1/2 and 1/2 in my tea and coffee, plus yogurt and a little cheese. Any other ideas besides yogurt and fruit for breakfast? Does no sugar mean not even a little honey in the yogurt or oatmeal? Confused also about grains and legumes also. Oatmeal is out? I’ve cut out gluten and feel much better without it. Never was one much for breads and pastries, etc.

BonnyQuine profile image
BonnyQuine in reply toMstiles

Well, honey is sugar - but it's up to you. If you're not diabetic, you have much more leeway. I find if you never eat sugary stuff, your taste adapts, and things with added sugar, honey or whatever start to taste too sweet. My breakfast suits me fine, and I don't need to vary it much. But you could have fish (kippers are trad, but any would be fine), or egg (boiled, fried, frittata style w maybe tomatoes instead of potato . . . ). You can put all sorts of things in an omelette! Mushrooms? Aubergine is useful, as you can bulk up almost any mixture without affecting the flavour much. The trick is just to have meals - you can decide whether 2 or 3 in a day - try to balance protein & veg, work out roughly what quantity you need - and not be too rigid about what you eat at which meal. I use full fat milk because, if cutting carbs, you need some fat for the energy. And I include avocado almost every day.

With oats - I just saw the effect it had on my blood sugar levels. Applies to all grains. Other family members eat 'no sugar' muesli, w lots of nuts and less oats. Hard to get it without lots of dried fruit (also high sugar) though.

Lots of veggie things do contain some carbs - beans, carrots etc - but I just avoid larger quantities of those. I do also allow myself small amounts of things like rice, but not all the time - like a treat. Must admit I do have an occasional dark chocolate - more than once a week! And I never count calories!

Onwards with hope.

Mstiles profile image
Mstiles in reply toBonnyQuine

Thanks Bonnie for your practical knowledge, I appreciate it. I’m not diabetic, but had the 3-month average test and was at the edge of the range for blood sugar.

Longtimer profile image
Longtimer in reply toMstiles

You have to find what you like and suits you....I haven`t eaten Shredded wheat since a child....well, how much have they shrunk!...but they are no sugar, I have 1 of those, then I add a tbsp. of Liz`s low sugar granola.....then a clementine, then smother in yogurt (natural) with almond milk.....I snack on almonds, ..........Tonight it`s stirfry, but I will only have very little amount of noodles......lots of veg.......I`m getting hungry thinking about it, must be lunchtime!

Mstiles profile image
Mstiles in reply toLongtimer

Thanks Longtimer. It is a quest, isn’t it, to find what works for each one of us. I’m a bacon lover, but so much salt and additives!

in reply toLongtimer

I have replaced pasta and noodle with edamame/soya bean noodles. Lower carbs. Textures weird at first but as a veggie it gives me something to chew on.

Fat and fibre actually alters the way the body processes sugars..whether that's fructose lactose or any other 'tose. I try not to have milk too often and like almond milk. I buy no added sugar or salt museli and add a handful of nuts- the few raisin they have in I leave as fibrous as are the chopped dates or prunes I add occasionally. I can't eat bananas as it's like a rocketship to high blood glucose reading. I have used cow's milk as a way of getting blood sugar back up during hypoglycemic 'attacks' it works better that glucose tablets - probably because the liquidity helps absorbtion.

I eat the occasional egg but it can make me feel a bit squeamish if I think about it too much.

Stir fry for me tonight too. But when my jackfruit arrives I will have tacos made with 50/50 gram flour and plain flour. But I may experiment and see if 70/30 is feasible. If you have a glucose meter you can check your blood glucose before a meal and then @2 hours later and see what it has done to the reading. That way you know what suits and what doesn't. It's not just the carbs but about the glycemic loading of the meal. Mixing foods that have a low and mid range glycemic index so the overall time and carb/sugar release is slower and lower.

diabetes.org/food-and-fitne...

Longtimer profile image
Longtimer in reply to

Thank you for that, I have been thinking about getting a glucose meter, will have to look online.....

I can`t find the no sugar/salt museli....can you tell me the make please.....and as for bananas, was told only eat then if unripe...no thanks.....will also look for the endame noodles.....never heard of Jackfruit, not sure if you are in another country, so we may call it something different?..... Once we know what we can eat, what suits us, and what we like it must get easier......Love eggs in all forms so can fill up on those when stuck...

Thanks for the link too............

in reply toLongtimer

I buy Tesco's own. The nutritional guide box on the back details carbs etc. I make sure I have around 20g to 30g max of the muesli a big handful of mixed nuts and usually unsweetened almond or soya milk, but don't feel like you have to dive in all at once. If cow's milk is your preference then top up with single cream. It's allowed on low carb high fat approach and tastes good. 😁

I get the noodles from Holland and Barrett but it's worth looking at all the supermarkets websites and see if they are availed. Most do a brand these days.

If you eat meat then you can stick with that. Jackfruit us said to have the texture of pulled pork. I have had a look online but will try some of ethnic supermarkets that I luckily have near me. It has 23g if carbs per 100g of fruit but is very fibrous so I will try it.

The good thing is about low carbs is that most of us have about 10 to 15 favourite foods and once you know what in each you don't need much thinking time to construct a meal.

ConventCassie profile image
ConventCassie in reply to

Let us know how you like that Jackfruit. I was not fond of the seeds.

in reply toConventCassie

I will re jackfruit. I was almost put off by the description of it as pulled pork like texture but will try it.

ConventCassie profile image
ConventCassie in reply toLongtimer

What’s “natural” yogurt?

in reply toConventCassie

Plain yogurt with no flavouring.

in reply toConventCassie

Soya yoghurt and coconut ones come in plain flavour as well I think.

ConventCassie profile image
ConventCassie in reply to

I bought cashew yogurt & it was a disgusting grey colour.

in reply toConventCassie

What it taste like? Many moons ago I used to make my own soya yoghurt. One you have the starter started it's pretty easy as I remember. I always used to make my own tofu. Those were the days. 😜😂

ConventCassie profile image
ConventCassie in reply to

About like it looked. I went back to the plain old dairy non fat Greek one. My daughter makes one from Almond milk, I think, I’m her Instant pot.

Longtimer profile image
Longtimer in reply toConventCassie

Sorry if I confused you, I have Onken natural set (doesn't have to be set) yoghurt, no fruit/no fat.....

ConventCassie profile image
ConventCassie in reply toLongtimer

Is it dairy based?

Longtimer profile image
Longtimer in reply toConventCassie

Yes......

Longtimer profile image
Longtimer in reply toConventCassie

Ps, no added sugar either.....must get that right!....blimey drives me mad sometimes.....

Leilagirl profile image
Leilagirl

I have totally played with this. I cut out almost all cookies.. candy. Soda.. sugar in general. Let go of white flour the best I can with a cracker here and there .. small amt of gluten only. Fruit and veggies .. yes there is sugar in fruit but I watch how much. No chocolate.. no wine. No yogurt or cheese.. yogurt makes me hurt badly. A big difference in pain for me. Much better. Then I tried incorporating slowly back to my old ways and Bamm.. no fun! I will have a glass of white wine and do fine. Please folks remember we are all different this is just for me .. not for everyone.. but it is interesting . I would love a piece of 🍰.. will wait for the right time I guess. Take care.

Mstiles profile image
Mstiles

Thanks Leila! ! Yes we are all so different, which makes a one-size-fits-all approach so useless and even harmful sometimes.

Dairy has never seemed to bother me, but don’t eat too much, just yogurt, an occasional piece of cheese or a little shredded in a burrito, and cream in my coffee.

ConventCassie profile image
ConventCassie

Whole 30 looks doable! Potatoes, nightshades, coffee. What not to like? And they’re giving away the lot without asking for money! That’s a great suggestion. Where did you hear of it?

angiek profile image
angiek

Wow what a lot of reading including all the links in this thread! I am going to try the Whole 30, start next week when I have more time to accumulate the foods I am allowed, and get rid of (eat...because I hate waste!) those I am not. All my life I have struggled to keep at a healthy weight, have horses/dogs to look after and exercise, bike to ride and badminton to play with friends. Atrial fibrillation and then PMR really stuck a spanner in the works, and I was 2 stone overweight before starting pred...6 weeks on and have added another 3 lbs, despite starting low carb at same time and despite now being able to walk the dogs and ride my horse, and even low level badminton once a week!

I think food allergy/intolerance may have been playing a part in my weight problems, I have always had low grade allergic rhinitis and IBS, but have never been unwell enough before to stick at elimination diets. I have been close to pre-diabetic at times, and have familial high cholesterol but choose not to take statins. I am also very lacking in will power...and I sabotage my own good efforts by binge eating on biscuits or chocolate when the mood takes me! If I clear out my eating down to these Whole 30 things, then gradually reintroduce whilst sticking to low carb I may find some answers.... Fingers crossed and thank you all for your input to this post.

angiek profile image
angiek in reply toangiek

p.s the hardest thing will be my porridge oats for breakfast :-(

ConventCassie profile image
ConventCassie

I think I’ll just go back to the Dash Diet. I felt good then.

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