Diagnosed PMR August 2015 and started on 15 mg Pred. After approx 8/9 months developed pain in right buttock. Have always been told this is not due to the PMR and encouraged to reduce steroids. Physiotherapy has not helped but physio did help with some muscle weakness I had at that time and that got better.
The last two years it seems has just gone by waiting for appointments (six months wait for Pain clinic). MRI last April ruled out any problem with metal hip joint. Last October pain got worse and spread down back of right thigh and back of lower leg. Cramp like pain feels like muscles are in some sort of spasm. Back Xray showed otheoarthritis lower spine and so now this is thought to be responsible for hip and leg pain. I have always doubted this but GP, physiotherapist and now doctor at Pain clinic all seem to think so. Now waiting for another MRI this time for lower spine as last one was only hips.
I have continued to reduce Pred slowly as instructed recently got down to 6mg and the pain has got worse! It has been so bad today I felt unable to concentrate on anything. The pain is so bad when walking and standing and is relieved when sitting and lying down. Seem to do everything sitting down these days. Paracetamol and Co-codamol are of little or no help. My shoulders hurt today but that might be because I am getting so stressed about it all.
I am so tempted to take more Pred to see if it helps. It would be going against what everybody is telling me.....would that be so bad and could I go straight back down again if it doesn't help.
Any advice would be most welcome.