Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,299 members • 38,029 posts

All posts for March 2018

PMR SURVIVORS COMMENTS

Dear PMR sufferers I am a 48 year old male who recently recovered from PMR ( unusually young and wrong gender, yes I know! ) and I came back into this site...

Dear PMR sufferers I am a 48 year old male who recently recovered from PMR ( unu...

Pmrsurvivor1

•6 years ago

26 Replies

support group-prednisolone- GCA

Is there a support group for GCA near Norwich? I am feeling isolated as the side effects of the prednisolone are so bad, but it would be good to talk to others...

Is there a support group for GCA near Norwich? I am feeling isolated as the side...

sharonnorfolk

•6 years ago

10 Replies

Delayed diagnosis of a pmr flare!

Hi everyone, I was diagnosed about a year ago, with both pmr/gca, just after Christmas I had terrible neck, shoulder arm pains, had blood tests, but it showed...

Hi everyone, I was diagnosed about a year ago, with both pmr/gca, just after Chr...

Kentishgirl

•6 years ago

5 Replies

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Steroids

I have been on prednisolone since Feb. Just reduced to 40. I am really suffering with side effects, they have really knocked me off my feet for the last 4...

I have been on prednisolone since Feb. Just reduced to 40. I am really suffering...

sharonnorfolk

•6 years ago

16 Replies

Super Bugs, MRSA, NARS, C-Diff< VRE

On my next appointment (although the Rheumo does know my work) I am going to bring this up with her again. I Wonder if any of you have any experience with...

On my next appointment (although the Rheumo does know my work) I am going to br...

PaulinaCanada

•6 years ago

8 Replies

PMR and Neuropathy

As I taper prednisone my neuropathy seems to be getting worse. Anybody else?

rbecich

•6 years ago

7 Replies

Settling in !

After three weeks I am learning to live with PMR. I read the posts daily, and can’t thank you all enough for the knowledge, compassion and support. I had ESR...

After three weeks I am learning to live with PMR. I read the posts daily, and ca...

aladymo

•6 years ago

13 Replies

Tiredness

Hi does anyone get extremely tired I have been tired in and out before but not as bad as recently Although I must say if I have visitors I seem to be ok The...

Hi does anyone get extremely tired I have been tired in and out before but not ...

Rusty8

•6 years ago

5 Replies

Tooth extraction while taking alendronic acid

I've had 2 teeth out since starting to take alendronic acid. Both done at the dentists, but the first time my dentist spoke to the local hospital's dental...

I've had 2 teeth out since starting to take alendronic acid. Both done at the de...

Phatgranny

•6 years ago

6 Replies

My appointment with Dr Wow

I wanted to update on my appointment yesterday. Dr Hughes was everything everyone told me he would be. He read the letters and blood results I brought with me...

I wanted to update on my appointment yesterday. Dr Hughes was everything everyon...

Elaine-W

•6 years ago

38 Replies

Starting reducing

Hi I have been on 15mg prednisolone since Feb this year was supposed to reduce to 10mg on 7th March but as I have had a few days of bad pain and stiffness...

Hi I have been on 15mg prednisolone since Feb this year was supposed to reduce...

Angelabur

•6 years ago

16 Replies

Blood checks

Hi My mum had been on 1 mg but because of much pain was put on 15 mg by a doctor who was not her usual doctor I wrote to her usual doctor with information...

Hi My mum had been on 1 mg but because of much pain was put on 15 mg by a doctor...

Kirklasu

•6 years ago

7 Replies

stopped lansoprazole and feeling grim......................

My GP changed my 30mg Lansop to 15mg for 5 days, so that I can stop them, as I am having tummy aches and feeling yuk! With 12 years GCA, I don't know how long...

My GP changed my 30mg Lansop to 15mg for 5 days, so that I can stop them, as I a...

karools16

•6 years ago

17 Replies

SMILE AND MUTTER

Does anyone experience a distinct temperature variation in left and right side? my hands and feet are about 2-3 C colder. And no i am not sitting with my hand...

Does anyone experience a distinct temperature variation in left and right side? ...

Hidden

•6 years ago

14 Replies

At last.

Gone blank tonight Ruddy Preds.x

morrison

•6 years ago

8 Replies

Sorry

Here is Wilson. He took overy somehow. X

morrison

•6 years ago

5 Replies

Lighter side of life

After spending the whole day with my grandchildren and daughter and feeling like crap Today. I sat downight tonight and looked at my Wilson. He has brought me...

After spending the whole day with my grandchildren and daughter and feeling like...

morrison

•6 years ago

4 Replies

Prednisone drawing

Thanks for the comments everyone, I can still draw and I’m so glad. I’ve got some difficulties sometimes with fingers and tendons, and some blurry vision...

Thanks for the comments everyone, I can still draw and I’m so glad. I’ve got...

Mstiles

•6 years ago

8 Replies

PMR Diagnosed today.... is 30mg start normal?

So, after a few months of wondering why i was aching all the time and a couple of visits to a chiropractor I finally went to the doctor (a locum) who said "it...

So, after a few months of wondering why i was aching all the time and a couple o...

MakingDo

•6 years ago

67 Replies

Do you give out prizes for stupid?

I think I should nominate myself. I am in the process of starting this journey. Diagnosed in Jan and on too little prednisone. Have about 70% relief-not all...

I think I should nominate myself. I am in the process of starting this journey. ...

Celebrant

•6 years ago

35 Replies

Meds

What mg of meds did you start at and for how long before you went down some?

viamonv

•6 years ago

17 Replies

Worsening paralysis in feet and legs

Is anyone else having this problem? Over the last two or three months I have become increasingly paralyzed. My left foot and lower part of my Left leg feel as...

Is anyone else having this problem? Over the last two or three months I have bec...

Nones

•6 years ago

8 Replies

Increasing Pred from 10 back up to 15mg

I've been very frustrated with my progress, going through the slow gradual taper to 10mg, over the last 4 months, and then trying to reach 9mg, feeling very...

I've been very frustrated with my progress, going through the slow gradual taper...

Jgyles

•6 years ago

9 Replies

PMR and tendonitis anyone?

I’ve had PMR since 2014 and during that time I’ve had 4 episodes of tendonitis. Usually I can identify a trigger such as the the frantic sewing session just...

I’ve had PMR since 2014 and during that time I’ve had 4 episodes of tendonitis. ...

linda49

•6 years ago

17 Replies

Blue Badge

PMR plus arthritis is very disabling. Has anyone applied for a BLUE Badge and if so - how straight forward was it?

PMR plus arthritis is very disabling. Has anyone applied for a BLUE Badge and if...

MarsiJay

•6 years ago

12 Replies

Stage fright?

Good morning After being ill since Nov 2016 with no firm diagnosis, or at least a diagnosis that keeps changing, I have not the bullet. I have an appointment...

Good morning After being ill since Nov 2016 with no firm diagnosis, or at least ...

Elaine-W

•6 years ago

30 Replies

Me and my Pred

A retrospective ranting.... things continue to be pretty okay for me the past serveral days. Shhhhhhhh. My "Pred" experience has been a double edged sword....

A retrospective ranting.... things continue to be pretty okay for me the past se...

Hidden

•6 years ago

36 Replies

Prednisone drawing

My drawing of what it feels like to be on pred

Mstiles

•6 years ago

29 Replies

Alendronic Acid, Fosamax...To take or not to take was my question.

So, you’ve been diagnosed with PMR and/or GCA and your doctor has prescribed something for your bone health: bisphosphonate, Alendronic Acid, Fosamax... Mine...

So, you’ve been diagnosed with PMR and/or GCA and your doctor has prescribed som...

Insight329

•6 years ago

9 Replies

After seeing GP

Went to see GP this morning about swollen abdomen. Internal examination (yuk) arranging an ultra sound, urine sample given and bloods taken to test CA125. So...

Went to see GP this morning about swollen abdomen. Internal examination (yuk) ar...

Horizon12

•6 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

PMR SURVIVORS COMMENTS

support group-prednisolone- GCA

Delayed diagnosis of a pmr flare!

Steroids

Super Bugs, MRSA, NARS, C-Diff< VRE

PMR and Neuropathy

Settling in !

Tiredness

Tooth extraction while taking alendronic acid

My appointment with Dr Wow

Starting reducing

Blood checks

stopped lansoprazole and feeling grim......................

SMILE AND MUTTER

At last.

Sorry

Lighter side of life

Prednisone drawing

PMR Diagnosed today.... is 30mg start normal?

Do you give out prizes for stupid?

Meds

Worsening paralysis in feet and legs

Increasing Pred from 10 back up to 15mg

PMR and tendonitis anyone?

Blue Badge

Stage fright?

Me and my Pred

Prednisone drawing

Alendronic Acid, Fosamax...To take or not to take was my question.

After seeing GP

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