PMRGCAuk
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Worsening paralysis in feet and legs

Is anyone else having this problem? Over the last two or three months I have become increasingly paralyzed. My left foot and lower part of my Left leg feel as if they are wrapped it in very tight bandages. My right foot and leg Are not as bad. Drs think PMR is in remission And this is something else. One suggestion from one doctor is NPH. I’m scared. Any thoughts? Waiting for appt with neurologist...

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Are they swollen, hot or discoloured? When you say paralyzed what do you mean. Can you wiggle toes and turn ankle?

I had terrible neuropathy until I got pre-existing diabetes back under control. My lower left leg has permanent nerve damage from an herniated disc. All these thing cause different sensations. I felt like I had right socks with a stirrup shape. Numbness pins and needles etc.

The main thing is that you get it investigated diagnosed and treated then you know what you are dealing with. I hope it eases soon and you get to the bottom.of it.

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NPH?

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You must be worried Nones. It’s no use us guessing and furiously googling and frightening yourself to death. This is not typical PMR. You are just going to have to sit tight and wait for various test and investigation results. I am just advising you not to do what I imagine I would do. Let us know what happens. I hope it is something that can be easily remedied. Bless you! Put your faith in the specialists. I hope your Neurologist is wonderful.

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Yes I didn't know what you meant by NPH- looked it up but couldn't find anything. You've done the right thing and gone to your GP and now have to hold tight while tests are being done. My situation might be totally different but I have started to get numbness and heat in my one foot , left and also the left leg seems harder, tighter and heavier. Also have tendon problems in that leg so I went to my friendly osteopath yesterday who is very aware of my GCA and PMR. She was less concerned about the tendons but felt that the vascular and lympathic pathways in my leg were not working properly. She suggested heat and icing of the leg and foot two times a day but for very short periods. I am also in the process of getting a doctors appointment as I am concerned about the numbness. Whether this is a similar situation to you, I'm not sure?

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I have problems with my legs too,swelling above my knees sometimes,and numbness ,it can sometimes feel like there is a tight strip of elastic down the back of my legs. I thought this was part of the PMG, A GP referred me to rheumatology,but as l am down to 3mgs of prednisolone,they wrote back to say they did not think it was necessary for them to see me. I cannot kneel down as this results in extreme numbness in my legs. After reading the previous comments l shall arrange another GP appointment .l hope everything goes well for you Nones, please let us know how you get on.

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I wonder if an orthopod or a vascular specialist might be more helpful? This "we haven't seen you but don't think you are worthy of our attention" attitude is getting silly - and willlead to trouble. I do realise they are desperately overstretched BUT...

But first of all - what about a physiotherapy assessment?

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having an MRI in 2 weeks, then seeing neurologist the following week. have had a bunch of nerve tests but if he found anything so far, he hasn't said anything. Not sleeping well...

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Thankyou PMRPro,l hope to see my GP next week,l hope that Nones will have some success in finding the cause of the problem with her legs too.l wish you all a lovely Easter ,l am staying in the Cotswolds and although the weather is miserable it is such a joy to see the lambs playing in the fields and beautiful daffodils everywhere,such a tonic after such a gloomy winter.

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