Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for November 2017

Pred. Dosage when flaring

Hi everyone just looking for some advice; TA diagnosed in nov.15 started on 60mg pred.now down to 8mg.However today have severe stabbing pain just below right...

Hi everyone just looking for some advice; TA diagnosed in nov.15 started on 60mg...

tazzi

•6 years ago

7 Replies

Intermittent shoulder, calf pains.

Hello everybody, I hope this finds most of you doing well! I would like to ask a question of suffered who have been afflicted longer than I have, about a year...

Hello everybody, I hope this finds most of you doing well! I would like to ask a...

Kentishgirl

•6 years ago

12 Replies

how much?

with my Dr.s o.k. I am splitting my dose of prednisone, 7.5 at night usually around 1;30-2;00, the rest in the morning....works good so far the only problem is...

with my Dr.s o.k. I am splitting my dose of prednisone, 7.5 at night usually aro...

daworm

•6 years ago

14 Replies

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predisalone users

predisalone does any body else suffer from this side effect of predisalone which is suffering from vivid dreams sometimes nightmares

predisalone does any body else suffer from this side effect of predisalone which...

arangatang

•6 years ago

9 Replies

Functional doctor?

Has anyone had a good or bad experience of a functional doctor?

Ronnie101

•6 years ago

9 Replies

Low carb recipe

Thought I would share my favourite low carb recipe for replacing potatoes. This makes a lovely creamy mash for 4 but I use half the ingredients for the 2 of...

Thought I would share my favourite low carb recipe for replacing potatoes. This ...

Griggser

•6 years ago

61 Replies

Short update

Saw my rheumy yesterday and thought I'd put up a quick update. Been suffering quite a bit of pain since reducing from 12mg of pred down to 10 over the last 4...

Saw my rheumy yesterday and thought I'd put up a quick update. Been suffering qu...

Griggser

•6 years ago

9 Replies

Alternative medicine

Hi, after 4 years of prednisolone, and two flares when reducing the doses, I am now looking into alternative solution. Been to see a Chinese Dr. (?) yesterday....

Hi, after 4 years of prednisolone, and two flares when reducing the doses, I am ...

mepoly20

•6 years ago

73 Replies

The Lighter Side: Advertising on PMRGCA Health Unlocked - A Few Warning Signs...? ;-)

Greetings Polymarauders and Pred-poppers Worldwide (and in Wales too, 'Look You'..). It's nearly THAT time of the week again! So, after today's excitement on...

Greetings Polymarauders and Pred-poppers Worldwide (and in Wales too, 'Look You'...

markbenjamin57

•6 years ago

48 Replies

Omeprazole

Hi there, I’ve been on pred for PMR since June, down to 11mg at moment and also take omeprazole 20mg once a day. I’ve recently become aware of the negative...

Hi there, I’ve been on pred for PMR since June, down to 11mg at moment and also ...

Suzan62

•6 years ago

35 Replies

Advice please

Hi, I am looking for a bit of advice. I have had PMR for just over a year and have succesplease sfully reduces prednisolone to 7mg. Over the last week or so I...

Hi, I am looking for a bit of advice. I have had PMR for just over a year and ha...

HighlandCat

•6 years ago

5 Replies

Tolerance for Prednisone

I would like to encourage anyone that this might help. I was on Prednisone for several months for pretty severe PMR, and I have taken it in the past short...

I would like to encourage anyone that this might help. I was on Prednisone for ...

chiwawaa

•6 years ago

14 Replies

Starting to taper

So I've been on 20mg for 4 weeks, before that 1 week at 15 which wasn't enough...had blood work the other day, Dr. wants to try a taper now...17.5 for three...

So I've been on 20mg for 4 weeks, before that 1 week at 15 which wasn't enough.....

daworm

•6 years ago

17 Replies

To Kate Gilbert

To Kate Gilbert, Please tell me why you have sent this to me. I have taken a screen shot of your accusation and my reply to you.

To Kate Gilbert, Please tell me why you have sent this to me. I have taken a scr...

Riversnan

•6 years ago

56 Replies

Possible Temporal Arteritis Diagnosis

Just turned 60 this year and admitted to hospital early September with really bad headache following 4 days of flu like systems which I could not throw off....

Just turned 60 this year and admitted to hospital early September with really ba...

Chmar

•6 years ago

7 Replies

New Doctors more tests

Well my absolutely perfect GP has apparently freaked out on me and is now sending me to a Rhuemetologist and Cardiac doctor. I was told by Rhuemetologist it...

Well my absolutely perfect GP has apparently freaked out on me and is now sendin...

Hidden

•6 years ago

22 Replies

If you've ever...you may have PMR

I was on a two hour drive back from my Rheumatologist's office yesterday and I amused myself by thinking about some of the crazier aspects of having PMR (Jeff...

I was on a two hour drive back from my Rheumatologist's office yesterday and I a...

Rosedail

•6 years ago

74 Replies

secondary adrenal insufficency

Hello All, So thankful for your collective wisdom and good humour in the face the awful PMR/GCA. I have a question about secondary adrenal insufficency. I've...

Hello All, So thankful for your collective wisdom and good humour in the face th...

coda123

•6 years ago

6 Replies

“REST”...definition

“To cease work or movement in order to relax, refresh oneself or recover strength.” As PMRpro recently pointed out, driving the car around is not “REST”, nor...

“To cease work or movement in order to relax, refresh oneself or recover strengt...

Klah

•6 years ago

67 Replies

How much Prednisolone am I getting?

I was interested to hear (from PMRPro I think) that the gut absorbs only 50-80% of the Pred that you take. Presumably the amount excreted is due to a number...

I was interested to hear (from PMRPro I think) that the gut absorbs only 50-80% ...

podo

•6 years ago

1 Reply

Calling ALL patients on Actemra/tocilizumab, wherever you are!

John Mills of Vasculitis UK is urgently seeking anecdotal evidence to present at a NICE meeting over the use of Actemra/tocilizumab in GCA. Please look at this...

John Mills of Vasculitis UK is urgently seeking anecdotal evidence to present at...

PMRpro

Ambassador•6 years ago

2 Replies

Proton pump inhibitors

In case you haven't seen this......

rosie_jones

•6 years ago

27 Replies

GCA - Tocilizumab - NICE

If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact me, John Mills ASAP...

If you have had any experience of being treated with Tocilizumab for GCA/TA - fa...

John_Mills

•6 years ago

1 Reply

Extreme fatigue, shaking and palpitations

I can't believe how debilitating this condition is! I'm presuming the palpitations, shakiness and extreme fatigue are due to the condition, or could it be the...

I can't believe how debilitating this condition is! I'm presuming the palpitatio...

Footfairy-1

•6 years ago

11 Replies

Weight gain but loss of appetite

I have had PMR for 9 months and am currently on 8mg Prednisolone (increased recently recently from 5mg due to flare). Also have been on Alendronic Acid from...

I have had PMR for 9 months and am currently on 8mg Prednisolone (increased rece...

Hidden

•6 years ago

12 Replies

CPAP 1 week in

Just wanted to say that I am very happy and so relieved to have this machine. I hadn't realised how I must have been panicking as I drifted into sleep. I am...

Just wanted to say that I am very happy and so relieved to have this machine. I ...

IdasMum

•6 years ago

15 Replies

Alendronuc acid and the dreaded empty stomach before taking it ...

I'm a 57 year old female with pulmonary Sarcoidosis diagnosed in 2011. At the moment I'm taking 10mg prendisilone, 200mg hydroxychloroquine, 30mg lanzoprazole,...

I'm a 57 year old female with pulmonary Sarcoidosis diagnosed in 2011. At the mo...

Hidden

•6 years ago

3 Replies

Fatigue and Nausea

This is my second post, first was a month ago. Since then I have increased pred to from 22mg to 25mg, but I still have nausea and fatigue,pain and stiffness in...

This is my second post, first was a month ago. Since then I have increased pred ...

Lyon70

•6 years ago

10 Replies

GCA or not?

I am shuffling from rheumatologist to opthomologist to neurosurgeon to get diagnosis. Several symptoms of GCA so on 40 mg prednisone but neurosurgeon has...

I am shuffling from rheumatologist to opthomologist to neurosurgeon to get diagn...

Grammajoy

•6 years ago

8 Replies

To my PMRGCA Friends in the USA - after 'Manhattan'... :-(

Dear PMRGCA friends across the 'Pond'. Just a quick 'Hello', and to say how much these latest, bad and sad events have also dominated the BBC News here in the...

Dear PMRGCA friends across the 'Pond'. Just a quick 'Hello', and to say how much...

markbenjamin57

•6 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2017

Pred. Dosage when flaring

Intermittent shoulder, calf pains.

how much?

predisalone users

Functional doctor?

Low carb recipe

Short update

Alternative medicine

The Lighter Side: Advertising on PMRGCA Health Unlocked - A Few Warning Signs...? ;-)

Omeprazole

Advice please

Tolerance for Prednisone

Starting to taper

To Kate Gilbert

Possible Temporal Arteritis Diagnosis

New Doctors more tests

If you've ever...you may have PMR

secondary adrenal insufficency

“REST”...definition

How much Prednisolone am I getting?

Calling ALL patients on Actemra/tocilizumab, wherever you are!

Proton pump inhibitors

GCA - Tocilizumab - NICE

Extreme fatigue, shaking and palpitations

Weight gain but loss of appetite

CPAP 1 week in

Alendronuc acid and the dreaded empty stomach before taking it ...

Fatigue and Nausea

GCA or not?

To my PMRGCA Friends in the USA - after 'Manhattan'... :-(

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