PMRGCAuk
7,232 members11,763 posts

Calling ALL patients on Actemra/tocilizumab, wherever you are!

John Mills of Vasculitis UK is urgently seeking anecdotal evidence to present at a NICE meeting over the use of Actemra/tocilizumab in GCA. Please look at this post:

healthunlocked.com/vasculit...

He would be very pleased to hear from our US contributors who have been using it - and wants both positive and less positive experiences.

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Just to let folks know that PMRGCAuk will also be at the meeting and you can message me direct if you would like to contribute your experience of Actemra.

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Will the experiences shared at the meeting be posted? I am facing the Actemra decision and would love to hear other folks experience. Thank you.

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