7,232 members11,763 posts

Calling ALL patients on Actemra/tocilizumab, wherever you are!

John Mills of Vasculitis UK is urgently seeking anecdotal evidence to present at a NICE meeting over the use of Actemra/tocilizumab in GCA. Please look at this post:

He would be very pleased to hear from our US contributors who have been using it - and wants both positive and less positive experiences.

2 Replies

Just to let folks know that PMRGCAuk will also be at the meeting and you can message me direct if you would like to contribute your experience of Actemra.


Will the experiences shared at the meeting be posted? I am facing the Actemra decision and would love to hear other folks experience. Thank you.


You may also like...